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Headaches Related To Celiac?

mac3

By mac3
in Related Issues & Disorders

Recommended Posts

mac3 Apprentice
mac3
Posted

My daughter was diagnosed in April this year with celiac disease. The last month she's been complaining about fairly consistent headaches. Ibuprofen and tylenol seem to work but I would like to find out what the underlying cause is...if I can. Does anyone out there have any information as to whether her headaches are related to the celiac disease or not?

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trents Grand Master
trents
Posted

Have you had her checked for other food allergies/sensitivities? They can often cause headaches and celiacs tend to develop sensitivities to other foods that don't contain gluten. It comes with the territory. The damage to the intestinal mucosa allows incompletely digested food molecules into the bloodstream where they ae interpreted by the body's immune system as invaders. How old is your daughter?

Steve

Guest cassidy
Guest cassidy
Posted

What were her symptoms before going gluten-free?

mac3 Apprentice
mac3
Posted
  • Author

My daughter is 10. Before her diagnosis she would get pale and complain of a stomach ache pretty much every time we ate...then she'd spend 20 minutes in the bathroom and not eat anymore even though she wasn't full. She has only complained of a stomachache once...maybe twice...since we've gone gluten free. It's just been the past month that the headaches have become an issue. The other culprit is that it might be her glasses...I just tend to question the celiac disease first! She is also slightly allergic to milk.

Guest cassidy
Guest cassidy
Posted

I had headaches before going gluten-free and I still get them now when I'm glutened. If she has always had stomach symptoms when she is glutened then I would think the headaches would only be tied to gluten if she got them at the same time as the stomach aches. If you have been very careful with her diet, then I would look for other answers. Hopefully it is the glasses becauses that is an easy fix.

mike007 Newbie
mike007
Posted
My daughter was diagnosed in April this year with celiac disease. The last month she's been complaining about fairly consistent headaches. Ibuprofen and tylenol seem to work but I would like to find out what the underlying cause is...if I can. Does anyone out there have any information as to whether her headaches are related to the celiac disease or not?

I don't know if this will help her or not but I was diagnosed with celiac disease a few years ago and I suffer from chemical sensitivities and get severe headaches when I am around fresh paint, solvents, people wearing

perfume, etc. These substances are classified as contianing volitile organic compounds or voc's. Even new computers or computer monitors can give off low levels of voc's. I hope that that is not her problem but if it is then keeping away from the offending chemical substances should help.

  • 2 weeks later...
mac3 Apprentice
mac3
Posted
  • Author

Time has gotten away from me and I failed to check the messages here 'til today! Whoops. Thanks for your input - my mind doesn't get as carried away when there's input coming from another source!! She's still getting headaches. I can't think of any perfumes, paints, in the house...her whiteboard markers might be bothering her but that wouldn't explain the outdoor-headaches. I've been working hard at going totally gluten-free but I've unknowingly slipped up a couple of times so I wouldn't say that I've been 100% perfect there. We'll check-out the glasses too. Again, thank you all!

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tarnalberry Community Regular
tarnalberry
Posted

Dairy gave me headaches, before I discovered I was intolerant to it (through an elimination diet) and removed it from my diet.

DEE BAERTSCH Newbie
DEE BAERTSCH
Posted

Before I found out I had celiac disease I had headaches every day. Now that I'm gluten free they are gone. If I do get gluttened I will get a headache; I no longer get diarrhea. Your reaction to gluten can change as you have less in your diet. The important thing is to get good at finding where the gluten is. It is very easy to inadvertently ingest gluten. Your daughter will have to be the most vigilant; it must be impossible for you to always prevent it. To be a celiac has to be the hardest on children. Good Luck!

Dee

azmom3 Contributor
azmom3
Posted

Does she have any allergies (other than milk), seasonal or environmental? Any sinus problems? (sinus pain, drainage, coughing from post-nasal drip, sore throat, etc.)? Have you had a change in weather in the last month? Did she start any new medications that might have this as a side effect?

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
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      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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