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Why Cant I Sleep

DVK

By DVK
in Related Issues & Disorders

Recommended Posts

DVK Apprentice
DVK
Posted

New to all this and only on Day number 2 of gluten-free. Since this all started I have some nights I can sleep and some like last night that 6am was the time I finally went to sleep. I start falling asleep and then its like (BAM) Wake up, then I am startled and awake after 20 minutes of sleep. WHY? Is this Normal, It Sucks :unsure: I fianlly had no choice but to take a small Quarter of Xanax, But I guess the cup of coffee at 9am and the Vitamin B Complex I took at 5 pm probably didnt help, and then of course I got to get up for the Job, I dont take Xanax ever, actually first time for this, However I dont want it to be a norm. Does this get better for sleeping once my body clears of Gluten?

DVK

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clhsc Apprentice
clhsc
Posted

Before going gluten free I would have horrible anxiety problems and could not sleep. I was in the same pattern you are with some nights being fine and others being horrible. I finally got to the point where out of nowhere I just broke down crying because I just wanted to sleep but couldn't. My doctor put me on Lexapro for anxiety and gave me Ambien to take "as needed." It worked wonders at getting me out of the routine of not sleeping.

Now if I can't sleep I will write down everything that is bothering me and keeping me awake. It helps to know that I can't do things at three in the morning and it usually relaxes me enough to go to sleep. Then in the morning I will wake up energized and ready to go. I changed my B complex vitamin to mid-day, when I really need the boost. Also, if you work out, pay attention to when you do. If I run at night I have trouble getting to sleep.

I am now glad to report that I am sleeping better than I have in years. If you stick with the gluten free lifestyle it will get better. There have been numerous reports/studies on the relationship b/t celiac disease and anxiety. Mine has gotten so much better since being gluten free. I hope to get off the Lexapro at my check up in February. Hope you get feeling better soon! :)

  • 1 month later...
luvkin Newbie
luvkin
Posted

I came off Lexapro last June. I do not need to take it anymore since I stopped eating gluten. I still have some sleep problems, sometimes my brain will not turn off.

mtdawber Apprentice
mtdawber
Posted

Some nights are great - tonight not so much. I wish I could sleep. I'm tired but itchy as $%**. For me the itch of DH keeps me from sleeping. I sure hope this gets better soon. :angry:

Viola 1 Rookie
Viola 1
Posted

I've solved the problem of not sleeping ... just one glass of wine each night does the trick, and I even hear it's good for you :lol:

dagreen Newbie
dagreen
Posted
Some nights are great - tonight not so much. I wish I could sleep. I'm tired but itchy as $%**. For me the itch of DH keeps me from sleeping. I sure hope this gets better soon. :angry:

Hi,

I went to the Canadian Celiac convention in Toronto in May 06, and there is a drug for DH that stops the itch. I don't have DH, but phone the association at 1-800-363-7296. Ask your doctor or dermatologist, and they could give you something even before you see the gastroenterologist.

Danielle

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      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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