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Just The Beginning

sillybug101

By sillybug101
in Coping with Celiac Disease

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sillybug101 Newbie
sillybug101
Posted

Hello Everyone,

This is my first time on this board. As I have reading other posts everyone has been so pleasant and willing to offer advice so I thought I would give it a shot. I have not yet been officially diagnosed with celiac however my doctor thinks its either that or IBS. My blood was negative for celiac. Either way she says those with IBS do well on a celiac diet. It's only been 4 days off gluten and so far I do feel better. Although I do wonder about hidden gluten and guess I just need to keep learning where to find it :)

Any hints out there for a newbie? How about a suggestion on chewing gum. As far as I can tell the one I like to chomp on has a forbidden ingredient. I have already ordered some cookbooks so hopefully this will help with dinner ideas....I love to cook so this is putting a bit of a kink in my meals. As long as I feel better, right?

I am trying not to be frustrated or stressed. Afterall the IBS symptoms get worse with stress ;) I go back to the doctor in two months to monitor my progress and see if the gluten free diet is working.

Anyway...I just wanted to say hello and introduce myself a bit. Feel free to hit me with all the advice a new person needs. I will appreciate every bit of it.

Ciao!

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Guest nini
Guest nini
Posted

Welcome! Check out my "newbie survival kit" all you have to do is click on the link in my signature below for my website, scroll to the bottom and you will find the link to download the newbie survival kit!

Mary Contrary Rookie
Mary Contrary
Posted
Hello Everyone,

This is my first time on this board. As I have reading other posts everyone has been so pleasant and willing to offer advice so I thought I would give it a shot. I have not yet been officially diagnosed with celiac however my doctor thinks its either that or IBS. My blood was negative for celiac. Either way she says those with IBS do well on a celiac diet. It's only been 4 days off gluten and so far I do feel better. Although I do wonder about hidden gluten and guess I just need to keep learning where to find it :)

Any hints out there for a newbie? How about a suggestion on chewing gum. As far as I can tell the one I like to chomp on has a forbidden ingredient. I have already ordered some cookbooks so hopefully this will help with dinner ideas....I love to cook so this is putting a bit of a kink in my meals. As long as I feel better, right?

I am trying not to be frustrated or stressed. Afterall the IBS symptoms get worse with stress ;) I go back to the doctor in two months to monitor my progress and see if the gluten free diet is working.

Anyway...I just wanted to say hello and introduce myself a bit. Feel free to hit me with all the advice a new person needs. I will appreciate every bit of it.

Ciao!

Hi I am pretty new myself..I had negative blood work about 3 weeks ago, but at the time I had been off of gluten for about 5 weeks...but I am having an endoscopy tomorrow, and I see from reading here that it will most likely be negative as well, since I have been off of gluten for almost 2 months now..but my constant D, that will respond to nothing, not even some high powered stuff my regular Doc gave me, is finally getting better, psyllium husks help as well..

I am having a colonoscopy as well in the morning just to be sure nothing else is wrong...but the change in diet is making a huge difference, with in a few days my horrible bloating and gas went away.

It has been fun trying to think of things to fix and the way we eat, which is rather simple anyway, it is not to hard, just good natural food cooked simply, atleast until I get healed up a bit better. So far I have found Quinoa to be the best substitue for pasta, atleast for our tastes anyway.

Good luck and this site is awesome, it has been extremely helpful for me to be here, mentally and physically, and it is good to know we are not alone in this.

Pink-Bunny Apprentice
Pink-Bunny
Posted

Hey...I started on thursday. And so far so good at least for me.

I took the advice about pasta from here and got tinkyada Rice pasta...absolutely love it tastes just like it in my opinion. I've also been eating a lot of rice and veggies, peanut butter, jennie's cookies, I also got different flours (for when I feel up to making bread). But my recommendation for something is definitely the Tinkyada rice pasta. I found it was cheaper in Wegman's than my organic food mart. Along with Jennie's cookies are cheaper at wegman's.

SchnauzerMom Rookie
SchnauzerMom
Posted

Hi, I'm glad you joined us. I'm fairly new too. My husband and I have been gluten free since the middle of October. We are becoming experts at reading labels. It was hard because we both love baked goods. Nothing better than fresh baked whole wheat bread. But it causes painful acid stomach in both of us. I'm learning to bake with alternative flours, quinoa, amaranth, sorhugm, etc. So far I like all of them but I think quinoa is my favorite.

Rebecca47 Contributor
Rebecca47
Posted

Welcome everyone, I myself am fairly new since Aug of this year. This forum is so helful and so are all the people. Sometimes I like just to write because it makes me feel better. sometimes I ramble and I try really hard not to. I think someone referred it as brain fog. There is so much to learn. I cook alot of fresh veggies, boneless skinless chicken with organic mushroom over rice oh so yummy. If you have kids I know that fruitty pebbles is of to eat. Amy's is good for quick. i haven't tried the tinkyada rice pasta I have not foud it yet. anyway its all good and things will get better. :D:rolleyes:

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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