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Healing?

GlutenWrangler

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GlutenWrangler Contributor
GlutenWrangler
Posted

Hello Everyone,

I read a good article that said when a person has celiac disease and also has diarrhea, it means that the intestinal damage extends all the way through the small intestine. People who do not have diarrhea have less damage, and the damage is located closer to the stomach.

My symptoms progressed over time from bloating and indigestion to severe diarrhea and 65 pounds of weight loss. I started on the gluten-free/casein-free diet about 5 months ago. I am very strict but I have been glutened about 10 times. I have improved in many ways, but I still have diarrhea and loose stools every day. I was wondering if it was normal to see no change with diarrhea after 5 months. Any help would be appreciated. Thanks,

-Brian

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par18 Apprentice
par18
Posted

Sounds like you may be getting gluten from somewhere or maybe you have an issue with some other food. You can try an elimination diet with what you are currently eating. Things like soap, shampoo or toothpaste could also be the culprit. I was told at a seminar last summer by one of the leading doctors for Celiac in the US that he had a patient who was sure she was doing everything possible to avoid gluten but still had symptoms. He asked if she paid the bills and she said yes. The next question he had was did you lick the envelopes and of course this was her problem. It is things like that which can trip you up. I personally had chronic D and weight loss prior to diagnosis. Mine went away in 2 days and never came back. It has been 18 months. I did give up dairy for a couple of weeks in the beginning but was able to add it back. Basically it is a process of elimination as to what you can or cannot tolerate. Try to eat as much naturally gluten free food as possible during the elimination process. Things like meat, fruits, veggies are good in that there is less chance of an additive issue. Find something that seems to work and expand it from there. Good luck.

Tom

GlutenWrangler Contributor
GlutenWrangler
Posted
  • Author

It makes me wonder what's going on when you say that yours went away after two days. But I check absolutely everything. There is nothing that I put on or in my body that contains gluten. I've done a lot of research on hidden sources of gluten. I try to keep the chance of getting glutened as low as possible. It just bothers me that I have seen no change. I asked the same question to Enterolab a while back. They told me that many of their patients experience a 3-6 month worsening period before feeling better and cessation of diarrhea. I'm just not sure what to expect. Thanks for your reply.

-Brian

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