Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated With Baking Products..just Frustrated

snapple

By snapple
in Coping with Celiac Disease

Recommended Posts

snapple Apprentice
snapple
Posted

Hello all,

I just need to let out some steam! I got glutened a little over a month ago at my parents, and I am still not back to normal. I have struggled with "C" for years, and finally found a way to keep it at bay with the gluten-free diet. Soo, you can imagine how frustrating it is to have to struggle again as I work my way through this. Nothing fits right, I am packing on the pounds! The worst thing is that I bought all this grainless baker goods b/c I thought I was on the mend and now, everytime I eat baked goods, I have a set back. I am afraid that I am going to really have to limit myself for the rest of my life if I don't get this under control!

Too top it off I have a medical procedure scheduled for the 21st of this month; I am worried about the drugs they are going to use; I am worried about the procedure; I am worried about the results; I hate that the procedure is going to be 1 day before my birthday (turning the big 3-0). Generally I am worried. I know that stress can change the way your body reacts to stuff, but I don't know how to turn it off.

I guess I just need someone to say I understand and that everything will be fine. Even if it won't. I know I will get throught this like everything else, but it is just so hard sometimes.

Anyway, that's how it is.

Kate :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Dear Kate, I truly sympathize. Unfortunately, it is possible that right now you simply don't tolerate any grains or starches very well. You may just have to stick to naturally gluten-free foods for a while, in order to heal properly. I know it sucks, as that is what I have to do (possibly for the rest of my life), but it is worth it to feel better.

And yes, you will be fine. Be good to yourself, treat yourself to nice things you CAN eat, and try not to focus too much on what you can't.

And hey, 30 is still YOUNG! Nothing wrong with being 30. Actually, nothing wrong with whatever age you are, as obviously, there is nothing you can do about it. Might as well accept it!

All the best for your procedure, I am sure it will be okay.

snapple Apprentice
snapple
Posted
  • Author

Ursula,

Thanks! I guess I just have to wait it out. And you are right, there is plenty that I can still eat, and it even tastes good :P I guess the holiday season is getting to me a little. Oh well, I have made it this far, I can make it all the way!

Thanks for the support!

Kate

NoGluGirl Contributor
NoGluGirl
Posted
Hello all,

I just need to let out some steam! I got glutened a little over a month ago at my parents, and I am still not back to normal. I have struggled with "C" for years, and finally found a way to keep it at bay with the gluten-free diet. Soo, you can imagine how frustrating it is to have to struggle again as I work my way through this. Nothing fits right, I am packing on the pounds! The worst thing is that I bought all this grainless baker goods b/c I thought I was on the mend and now, everytime I eat baked goods, I have a set back. I am afraid that I am going to really have to limit myself for the rest of my life if I don't get this under control!

Too top it off I have a medical procedure scheduled for the 21st of this month; I am worried about the drugs they are going to use; I am worried about the procedure; I am worried about the results; I hate that the procedure is going to be 1 day before my birthday (turning the big 3-0). Generally I am worried. I know that stress can change the way your body reacts to stuff, but I don't know how to turn it off.

I guess I just need someone to say I understand and that everything will be fine. Even if it won't. I know I will get throught this like everything else, but it is just so hard sometimes.

Anyway, that's how it is.

Kate :(

Dear snapple,

I definitely relate to you! I worry about everything because of gluten intolerance. I am going to be 24 the 16th, and I am still stuck living with my parents due to these health issues. I have Fibromyalgia, a possible yeast overgrowth, bad teeth, thyroid trouble, and eczema. Doing anything and going anywhere makes me a wreck. My parents are also less than understanding most of the time. My mother says I just need to go out and get a job, while she lays on the sofa like a beached whale. She is on so many pills, it is a wonder she even knows her own name! You know she actually had the nerve to tell me the dog is more important than me?! :angry: I do have a job, but it is not paying at this time. I began a company two and a half years ago, but finally just got the money to get a Web site designed for an online boutique. I am worrying since I spent all of my Christmas and birthday money on it. I have no orders yet, and desperately need them. :( I owe $50 a month on the site until I am done paying off the total. I am tired of being stuck in this house with her. Dad at least makes some effort to understand. He was not at first, but he is coming around more now. Having this condition is enough to make everyone worry constantly. It is like being paranoid. My parents are not gluten-free, but I am. There are crumbs everywhere. This is all very hard to cope with. Sometimes I feel like I need to live in a bubble. It sucks. At least we can all gripe to each other, and know we are not alone! :) Everyone else may call us hypochondriacs, but screw them! Do what you have to do! It is your body, your health! Ask questions about the procedure if you need to. You owe no one explanations!

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,128
    • Most Online (within 30 mins)
      7,748
    Steve715
    Newest Member
    Steve715
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
      My only proof

      By Mari · Posted

    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Sorry, I think I got you mixed up with another poster.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.