Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Failsafe Diet


elenarose

Recommended Posts

elenarose Newbie

...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moceansylvia- Newbie
Hello all.

I am not a regular to this forum but I feel it is my duty to describe how I finally fully recovered from Coeliac Disease (gluten free of course) so others may learn from my experience.

Like many Coeliacs, I initially recovered well, my villi were growing back and it seemed as though all my problems would be solved. However as I grew back and began to absorb, my symptoms seemed to become far worse. I cut out dairy, I went on a very "healthy" diet, I took many different supplements yet nothing seemed to stop the increasing food intolerances, exhaustion, brain fog and illness. I was now far worse than I had been before diagnosis. I tried the "candida" diet which helped a little. I then moved onto the SCD (Specific Carbohydrate Diet) which also seemed to help a little but nothing really worked.

After many months of dedicated research, I finally discovered the cause of my problems - Chemical Food Intolerance.

I am highly intolerant to amines and salicylates. These are natural chemicals found in most common foods. The symptoms are varied and include both physical and mental symptoms. Some people have intolerance to only one chemical, and variations in sensitivity do occur. Food chemical intolerance has been linked to many illness and conditions. These include Chronic Fatigue Syndrome, Fibromylgia, Porphyria, Hypoglycemia, Migraine, ADHD, Eczema/Dermatitis, Depression, Asthma, Insomnia, Panic attacks, Brain fog, Rosacea, Psoriasis, Lyme Disease and the ever so popular "Candida". All of these conditions have been cured on a chemical free diet.

If you are recovering from Coeliac Disease but seem to be getting worse or not recovering, then avoiding food chemicals may be the answer. As we recover, unfortunately we absorb more food chemicals. If you have strong detox pathways, this should provide no problem. Unfortunately many coeliacs, due to many years of malabsorption, are not as able to handle these chemicals.

If you wish to try a chemical elimination diet then view the following website:

Open Original Shared Link

This website is a host of information including details on amines and salicylates.

Many coeliacs avoid dairy. I find I only have to avoid cheese. I find casein hard to digest but this is not uncommon. Do not avoid dairy unless you have a real problem. Do not eat gluten on the elimination diet (despite being chemical free). Strictness is very important. Meat must be very fresh - no aged meat. I cannot tolerate minced meat or fish unless just caught. Keep a food diary.

I hope somebody finds this information useful. If anybody has questions or needs help, please contact me. I want to help others to finally feel healthy like I do.

Elena

Your post was very informative to me. I have been working so hard on my diet and still get ill sometimes. I just can't figure it out until you mentioned this information.

I know this sounds silly, but could you give me a sample of your meals for a day?

I know they say we can have wine, do you know of any specific kind? The holidays are coming up and I don't want to ruin my evening.

Please feel free to email me sylvia

Rachel--24 Collaborator
I know they say we can have wine, do you know of any specific kind? The holidays are coming up and I don't want to ruin my evening.

Her post was regarding the Failsafe Diet....it excludes natural occurring chemicals in foods as well as food dyes, msg, asaprtame and other harmful chemicals.

On this diet wine would be completely out as it is extremely high in both salicylates and amines.

If you dont have a problem with wine (especially red)....its unlikely you have a problem with salicylates or amines.

Rachel--24 Collaborator
After many months of dedicated research, I finally discovered the cause of my problems - Chemical Food Intolerance.

I am highly intolerant to amines and salicylates. These are natural chemicals found in most common foods. The symptoms are varied and include both physical and mental symptoms. Some people have intolerance to only one chemical, and variations in sensitivity do occur. Food chemical intolerance has been linked to many illness and conditions. These include Chronic Fatigue Syndrome, Fibromylgia, Porphyria, Hypoglycemia, Migraine, ADHD, Eczema/Dermatitis, Depression, Asthma, Insomnia, Panic attacks, Brain fog, Rosacea, Psoriasis, Lyme Disease and the ever so popular "Candida". All of these conditions have been cured on a chemical free diet.

I used to believe this was the case for me as well. I avoided salicylates, amines, glutamates, msg, all processed foods, etc. I also have environmental sensitivities as well.

I dont believe that avoiding the chemicals "cures" diseases such as Lyme...or conditions such as candida.

I believe that *something* has caused the detox pathways to not function as efficiently. There ia a high build up of toxins and chemical intolerance is the result.

What causes this though? I was once perfectly healthy and could tolerate anything.....suddenly my detox pathways arent functioning, my body is highly toxic and I'm intolerant to *everything*.

It doesnt make sense to me that I'm destined to live a life avoiding an ever growing list of chemicals and foods to feel better. :huh:

I kept looking for an answer and was finally diagnosed with Lyme Disease.

The bacteria produces toxins that eventually overwhelm the liver and the detox pathways. Candida develops as a result of the weakened immune system, antibiotics, poor diet etc. Both of these are highly "opportunistic". Of course Lyme is foreign to the body whereas yeast is not. However when yeast overgrows.....because of the Lyme...it too will produce its own toxins. More problems will also pile on top of these.....including food and chemical intolerance. Its a chain reaction of events that started somewhere.

In my opinion when Celiac is the only disease present....more and more intolerances should not present themselves once someone is gluten-free and healing. Some people are just not healing because something else is not being addressed.

I believe that avoiding chemicals can reduce symptoms but will not "cure" disease. In my opinion Fibro, CFS, Candida and some of the other conditions you mentioned are not diseases in and of themselves....they are symptoms of disease.

Lyme is NOT a symptom of a disease...its a real disease and it can produce symptoms that can lead to diagnosis of every disease/condition you mentioned. They are not always seperate conditions....although a person may get a diagnosis of Rosacea, Fibro and autoimmune disease....in the case of Lyme...these conditions are ALL symptoms of the Lyme.

The toxins produced by the Lyme create a toxic environment which is also favorable to other pathogens....especially when the immune system is weak. I think its a scenario such as this that leads to chemical sensitivity in some individuals. This is the exact reason my Dr. tested me for Lyme. My complaint was chemical sensitivities and the first thing my Dr. asked was if I'd been tested for Lyme.

He said that chemical sensitivity is extremely common for people with Lyme Disease. I was not aware that there was a link between the two prior to that....now I'm aware that there is a strong link.

  • 4 weeks later...
Nancysb Newbie

Hi Elena,

I am so very interested in your diet. I have been on the celiac diet for 9 months. I am better, but not nearly as well as I feel I should be. Could you please contact me at my email address? I would love to talk to you!

Thanks a bunch! Nancy

nancy@ladybugwreaths.com

Hello all.

I am not a regular to this forum but I feel it is my duty to describe how I finally fully recovered from Coeliac Disease (gluten free of course) so others may learn from my experience.

Like many Coeliacs, I initially recovered well, my villi were growing back and it seemed as though all my problems would be solved. However as I grew back and began to absorb, my symptoms seemed to become far worse. I cut out dairy, I went on a very "healthy" diet, I took many different supplements yet nothing seemed to stop the increasing food intolerances, exhaustion, brain fog and illness. I was now far worse than I had been before diagnosis. I tried the "candida" diet which helped a little. I then moved onto the SCD (Specific Carbohydrate Diet) which also seemed to help a little but nothing really worked.

After many months of dedicated research, I finally discovered the cause of my problems - Chemical Food Intolerance.

I am highly intolerant to amines and salicylates. These are natural chemicals found in most common foods. The symptoms are varied and include both physical and mental symptoms. Some people have intolerance to only one chemical, and variations in sensitivity do occur. Food chemical intolerance has been linked to many illness and conditions. These include Chronic Fatigue Syndrome, Fibromylgia, Porphyria, Hypoglycemia, Migraine, ADHD, Eczema/Dermatitis, Depression, Asthma, Insomnia, Panic attacks, Brain fog, Rosacea, Psoriasis, Lyme Disease and the ever so popular "Candida". All of these conditions have been cured on a chemical free diet.

If you are recovering from Coeliac Disease but seem to be getting worse or not recovering, then avoiding food chemicals may be the answer. As we recover, unfortunately we absorb more food chemicals. If you have strong detox pathways, this should provide no problem. Unfortunately many coeliacs, due to many years of malabsorption, are not as able to handle these chemicals.

If you wish to try a chemical elimination diet then view the following website:

Open Original Shared Link

This website is a host of information including details on amines and salicylates.

Many coeliacs avoid dairy. I find I only have to avoid cheese. I find casein hard to digest but this is not uncommon. Do not avoid dairy unless you have a real problem. Do not eat gluten on the elimination diet (despite being chemical free). Strictness is very important. Meat must be very fresh - no aged meat. I cannot tolerate minced meat or fish unless just caught. Keep a food diary.

I hope somebody finds this information useful. If anybody has questions or needs help, please contact me. I want to help others to finally feel healthy like I do.

Elena

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.