Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sssssoooooooo Tttiiirrreeedddd!


mainesgem

Recommended Posts

mainesgem Rookie

Hi there all,

I am so thankful for this board!!! With out it I'd be in a world of trouble!

Thanks so much for all of your insight into this problem.

I have been having "on" and "off" days since I started this gluten free life exactly a week ago.

Today is definitely an "off" day.

I have been having diarrhea and I am sssoooo tired!!! I am so exhausted that I can barely

keep my eyes open. I am having trouble typing because I can't concentrate.

My kids want mama and I just wanna crawl in a hole and sleep. I would call my husband home

from work but he has no more vacation days. We can't afford him taking off any work

right now-holiday expenses.

I am so done with being frickin tired all of the time. When can I be normal again??? I just wanna

be fricken normal!!! I just want to be able to get through a day with out a stinking nap!!!

Will this ever happen-probably not! I am cursed to exhaustion for the rest of my days!

Well anyway....

Had to vent! Baby crying: WWWAAAAHHHHH!!!!

I know I am slowly getting better-I have been feeling a difference until today. Why can't this be overnight?

My instant gratification desire is kicked into high gear.

Sorry for the Pi**ing and moaning...but I had to do it.

Jenny. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Jenny, sometimes being able to vent helps. So, vent away. I know how you feel, I raised five kids feeling like I couldn't even get out of bed. At least your husband understands that you truly are feeling exhausted. Mine would just call me lazy.

mn farm gal Apprentice

Sorry to hear you are having a bad day Jenny. I had terrible trouble with this until I see a NaturalPath doctor. She put me on a machine and it told her what my difficencies were. I was low with 17 minerals and vitamans. Some were very low and took a while longer. She put me on 2 things the first time I was there that had all of these areas and my health just got better and better. Of course you know this is not going to happen overnight. But I did see a fairly big difference in just a couple of weeks, and then it is just maintance once you levels get to normal. just give it some thought, it may be more than just going gluten free at first.

DingoGirl Enthusiast

Hi Jenny.....it does suck being that tired, doesn't it? I feel your pain as I was there. I am almost one year gluten-free, but I was sleeping at least 16 hours a day or more before getting my diagnosis. It took about a week to feel better - I remember feeling as though I'd come out of a fog - - but there have been many ups and downs. Now, I am almost never that tired, usually plenty of energy to get throgh the day - unless I've been glutened, and then it causes some insomnia, and pure exhaustion the next day or two.

Just wondering, have you gone over everythign with a fine-tooth comb and made absolutely sure you're not getting gluten somewhere (cosmetics, cross-contamination, etc)? the diarrhea sounds like a gluten reaction....

just keep at it, it does take a while!

hugs -

Ursa Major Collaborator

Jenny, both Susan and farm gal have good suggestions. Have you been tested for vitamin and mineral deficiencies? You might be very low in some key nutrients, which could cause exhaustion. You especially need to be tested for iron deficiency, vitamin B12, calcium and magnesium, potassium, vitamin D and K........and I'm probably forgetting some.

Have you bought yourself a new toaster? Did you replace any personal care products that contain gluten? Susan is right, if you have diarrhea, you probably got gluten somewhere. Also, you might not be able to digest dairy right now, are you consuming dairy? If yes, it might help to eliminate it for now.

Yenni Enthusiast

I was super tired like that too. It lasted a longer while for me actually. I had been tired for years but this last spring I was so tired it scared me. My husband started to read about Celiac and I eventually got tested at EnteroLab and it was positive.

I think the fact that I went for 4½ years feeling sick and with lots of stomach symtoms and brain foog makes it take longer to get back on track.

Like others have mentioned before, make sure to check vitamines, don't use plastic stuff in teh kitchen that has been used with gluten, check your shampoo, soap... So you don't get glutened still.

Were you checked for other stuff but gluten?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,722
    • Most Online (within 30 mins)
      7,748

    Diane Pippin
    Newest Member
    Diane Pippin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...