Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Apprehensive/confused

celiacSuzie

Recommended Posts

celiacSuzie Rookie
celiacSuzie
Posted

I have several health issues and allergies which seemed to have just "popped up" only a few years ago.

No one in my family is lactose intolerant, sensitive to soy (I get migraines from it), sensitive to meat (inability to digest it properly, hence I'm a vegetarian)... I'm sure there are other things I don't know about.

I've been going from Dr. to Dr. for the past 5 years to find a Dr. who'd listen to me & acknowledge that indeed I do have a thyroid problem. Finally this new Dr I've been to said indeed I do have a serious problem.

This same Dr said I have IBS w/constipation - despite my not ever having constipation & prescribed me one of the Rx's for it... which I have never taken because I do not have the symptoms.

So, I decided, since she wasn't listening very well, to go on a diet that I'd done about a year ago and remembered how much better I felt & how fast weight came off. A gluten/wheat free diet. No processed foods. Only veggies, fruits, some grains (ie, rice - but no pasta), beans & nuts. Pretty basic, pretty simple.

So I started this diet again about 3 weeks ago... and I'll admit it's hard as all hell - especially when you have a family to feed & they don't always want beans & rice or stir-frys!

Then, due to work, forgetting to bring in food/lunches, going out to restaurants (plain baked potatoes & side salads got boring) it was all to easy to NOT follow the diet.

So last Wednesday I ate a sandwich. First time I'd had bread. I noticed by Thursday I felt bloated, gassy, uncomfortable. I felt like I'd gained back all that weight I felt I had lost over the past few weeks.

The worst part was, I woke up dizzy and nauseous on Thursday. I was scared but thought I was dehydrated or hungry... neither helped. So at work I drank a caffeinated coffee, that didn't work. It was pretty bad... but I trudged through work.

Friday came, same thing... but this time, the dizziness was less and the nausea was more. I did not eat all day of Friday out of fear of getting sick. Which happened only once on Friday. The look and smell of food made me feel ill enough to vomit.

I did contact my Dr. Friday a.m., but she didn't get back with me.

So now it's the weekend. I'm back to eating fruits & veggies & no flour/gluten-laden foods (as far as I"m aware of).

I'm still a little dizzy... but feeling better and can eat now. The dizziness seems to come after having eaten a large meal... which i'm not really used to doing... but I did notice after dinner out with friends last night I was very dizzy. I didnt feel nauseous, I just noticed the world spinning again. But it went away the more I walked around.

Is this really celiac? I've heard that if you introduce gluten back into the diet too soon you can have adverse reactions... but I dont know what these adverse reactions would be.

I would appreciate any information you would be able to provide me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BRUMI1968 Collaborator
BRUMI1968
Posted

I can tell you that when I would eat gluten, I would get anxiety attacks to varying degrees. Sometimes they would be full blown - I'd get tingly, clammy, feel like I needed to poop quite suddenly, wanting to throw up, nevous, shaking, scared, sometimes mentally disoriented, always dizzy. Sometimes they would just be mild - and what I noticed most was the dizziness -- or more a feeling of disconnectedness from the world altogether. When I quit gluten, this went away. This, canker sores, and itching are ways I tell if I'm getting mild glutenings. (Severe glutenings I usually tell by my running to the bathroom and barely making it there before bad bad things happen.)

What you've described could very well be celiac. I don't get those symptom myself, but I recognize them from other folks' posts.

Good luck to you. If you are able to keep on the diet, it is certainly worth a try. You should know, though, that if you do go on the diet and are on it for some time, any tests you take for celiac will come back negative. If you're interested in getting tested, you should keep eating it long enough to get the test. it's a blood test, so it's not too difficult. If you try the diet itself as a test, that's great. If you feel better, stay on it. It is hard at first, but eventaully it becomes easier.

You should also know that lots of folks with celiac are lactose intolerant, at least at first. And soy is difficult for many many people. Peanuts are related to soy, and should be avoided by everyone really since they're riddled with mold.

Take care.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,557
    • Most Online (within 30 mins)
      7,748
    Ortega
    Newest Member
    Ortega
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.