Frustrated

[sandree]

Hi Everybody,

I am relatively new to this. Diagnosed gluten and casein intolerant through Enterolabs with a celiac gene and a gluten inolerance gene. I think I am being very careful about what I eat but I am frustrated with only seeing intermittant improvement in my symptoms. It has been about 5 weeks on the diet.

I have had chronic hives for over 2 years. They are improved but not entirely gone. My poop has improved (sometimes) but often is the same (pudding poop) as it was before removing gluten/casein. I have sore muscles/joints (especially sore feet) and that gets better occasionally but is mostly still the same. I am very tired by the evening...just completely run out of energy. I think I have seen the most improvement mentally...feel more clear and less anxious though that is also intermittant. My tongue has been slightly white for years and that also clears only intermittantly.

I wonder if I am being impatient or if there is something else that is not right here. I know I have very low Vit D levels. I have been taking Vit D supplements for a year and my level has gone up a little bit.

I will be going to see an environmental medicine md after Christmas so I am hoping he can shed some light.

Just thought someone might have had a similar experience. I wold love to be able to point out some clear improvement to my husband who is still wondering whether this great upheaval in our lives with eating, cooking, etc. is really making a difference.

Sandy

[CarlaB]

Five weeks is not very long even though I'm sure it's seemed like an eternity. The white tongue sounds like candida. A probiotic would help with that, yet at the same time you need to ask yourself why your body got out of balance enough to cause an overgrowth.

If you don't get better gluten-free/casein-free, then you will need to keep looking for what's making you ill. Have you been tested by IGenex for Lyme Disease? You can see the symptoms at Open Original Shared Link Sore muscles/joints are a big symptom for Lyme and so is fatigue.

There are a lot of people around here who have other health problems that go along with their gluten intolerance, so keep reading. If your health doesn't improve being gluten-free/casein-free, you can learn by reading here what else it could be. But, like I said, five weeks isn't very long ...

[tarnalberry]

You're trying to reverse damage that tooks months if not years, and nutritional deficiencies that took just as long to develope. 5 weeks is not enough time for your intestinal villi to entirely regrow and absorb all the nutrients to replenish your stores and bring you back up to normal levels. Definitely need more time.

[Ursa Major]

Sandy, Carla is right, it could be Lyme disease. You also might have other intolerances. Rice, eggs and soy (plus dairy, but you've eliminated that already) cause almost the same symptoms as gluten for me, with diarrhea, stomach cramps etc. But they also cause joint pain. Check out the links in my signature for more info.

You could also be hypothyroid and/or have adrenal fatigue.

Seeing an environmental MD sounds like a good idea. Hopefully you'll figure it all out.

[ravenwoodglass]

You really need to give your body more time to heal. Try to eat pure unprocessed foods as much as possible. Also make sure you have checked all toiletries, lotions, craft items like clays and glues, pet foods etc. Also make sure , real sure that all your meds are gluten free, especially OTCs, vitamins and tummy related ones like antiacids. Are you trying to eat in restaurants? At other peoples houses? Is your home kitchen entirely gluten-free ar are you also trying to accomodate gluten eaters? Give yourself at least a couple more months following the diet strictly. You did not get sick overnight and you will not become well overnight either. I hope you get some relief soon.

[sandree]

Thank you so much for your replies. I will take it easy on myself and not expect so much. Will also talk about Lyme disease with the dr. when I see him.

Thanks again, Sandy