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Rash?


Izak's Mom

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Izak's Mom Apprentice

So my son Izak got glutened the other day - a well meaning but totally ditzy friend of my mom's was watching him for a few minutes while she went out to the post office, and when my mom came back, her friend said 'oh, we had such a good time - I gave him a cookie!!' AGH! the next day, he had his old explosive yellow liquid poop, but he also got this weird rash on his tummy...went from about his crotch not quite up to his nipple line, and it almost looked like little bug bites or chicken pox, but not blisters...almost pimply looking after a day had passed. Like they started out all red & raised like bug bites, then turned into little white-head-y looking things as they got smaller. I thought it was kind of weird that it was just on his abdomen too...anyone else's kids get something like this? It didn't seem to bother him, and was confined to just his belly - almost diaper rash-y looking. Weird?


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Ursa Major Collaborator

The rash sounds a lot like DH to me, even though the location sounds odd. I am sure it is caused by the gluten and will pass.

KatieKates Newbie
So my son Izak got glutened the other day - a well meaning but totally ditzy friend of my mom's was watching him for a few minutes while she went out to the post office, and when my mom came back, her friend said 'oh, we had such a good time - I gave him a cookie!!' AGH! the next day, he had his old explosive yellow liquid poop, but he also got this weird rash on his tummy...went from about his crotch not quite up to his nipple line, and it almost looked like little bug bites or chicken pox, but not blisters...almost pimply looking after a day had passed. Like they started out all red & raised like bug bites, then turned into little white-head-y looking things as they got smaller. I thought it was kind of weird that it was just on his abdomen too...anyone else's kids get something like this? It didn't seem to bother him, and was confined to just his belly - almost diaper rash-y looking. Weird?

I'm completely new to this website but just read your post about a rash. My son who is 2 developd a rash that sounds exactly the same, but only it was on his inner thighs and bum. This happened just about 1-2 weeks ago. I took him to the doctors and she said it was chicken pox. I wouldn't believe that it was b/c he had the vaccination for Chicken pox when he was one and there is about a 5% chance that he could get the chicken pox. So i finally got in to see my regular doctor and he said it wasn't chicken pox. We don't know what caused it but my son just had blood work done about 3 weeks ago to test for Celiac and it came back "suggestive" of celiac. So right away I was upset and concerned and confused, not knowing what celiac was. My son has been referred to a hospital to see a specialist but we haven't booked an appointment yet. My Ped. said it's just to rule things out and it may be that he doesn't have celiac. How does a test come back "suggestive" but possibly also mean that he doesn't have celiac?

Anyway, I was just really surprised when I read about your son's rash when my son was just getting over something similar. Now i"m just babbling.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
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