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Rash?


Izak's Mom

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Izak's Mom Apprentice

So my son Izak got glutened the other day - a well meaning but totally ditzy friend of my mom's was watching him for a few minutes while she went out to the post office, and when my mom came back, her friend said 'oh, we had such a good time - I gave him a cookie!!' AGH! the next day, he had his old explosive yellow liquid poop, but he also got this weird rash on his tummy...went from about his crotch not quite up to his nipple line, and it almost looked like little bug bites or chicken pox, but not blisters...almost pimply looking after a day had passed. Like they started out all red & raised like bug bites, then turned into little white-head-y looking things as they got smaller. I thought it was kind of weird that it was just on his abdomen too...anyone else's kids get something like this? It didn't seem to bother him, and was confined to just his belly - almost diaper rash-y looking. Weird?


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The rash sounds a lot like DH to me, even though the location sounds odd. I am sure it is caused by the gluten and will pass.

KatieKates Newbie
So my son Izak got glutened the other day - a well meaning but totally ditzy friend of my mom's was watching him for a few minutes while she went out to the post office, and when my mom came back, her friend said 'oh, we had such a good time - I gave him a cookie!!' AGH! the next day, he had his old explosive yellow liquid poop, but he also got this weird rash on his tummy...went from about his crotch not quite up to his nipple line, and it almost looked like little bug bites or chicken pox, but not blisters...almost pimply looking after a day had passed. Like they started out all red & raised like bug bites, then turned into little white-head-y looking things as they got smaller. I thought it was kind of weird that it was just on his abdomen too...anyone else's kids get something like this? It didn't seem to bother him, and was confined to just his belly - almost diaper rash-y looking. Weird?

I'm completely new to this website but just read your post about a rash. My son who is 2 developd a rash that sounds exactly the same, but only it was on his inner thighs and bum. This happened just about 1-2 weeks ago. I took him to the doctors and she said it was chicken pox. I wouldn't believe that it was b/c he had the vaccination for Chicken pox when he was one and there is about a 5% chance that he could get the chicken pox. So i finally got in to see my regular doctor and he said it wasn't chicken pox. We don't know what caused it but my son just had blood work done about 3 weeks ago to test for Celiac and it came back "suggestive" of celiac. So right away I was upset and concerned and confused, not knowing what celiac was. My son has been referred to a hospital to see a specialist but we haven't booked an appointment yet. My Ped. said it's just to rule things out and it may be that he doesn't have celiac. How does a test come back "suggestive" but possibly also mean that he doesn't have celiac?

Anyway, I was just really surprised when I read about your son's rash when my son was just getting over something similar. Now i"m just babbling.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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