Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How High Were Your Numbers?


jen2be2

Recommended Posts

jen2be2 Explorer

Hi there!

I just got the numbers from the kids lab work. I was curious to see what others numbers were and how severe the celiac disease was when digosed.

Shaylin (18 months) #169. She was severly sick.

Jiselle (4 years) #216. No symptoms. Tested because of Shaylin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Villanfam

If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

My Son 8yrs old 47lbs

Gliadin IgG = 173.9 H

Reference range 3yrs and older:

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

Gliadin IgA = 37.9 H

Reference range 3ys and older

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

My daughter 3yrs 23lbs

Gliadin IgG = 60.5 H

Reference range 0-2yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Gliadin IgA = 27.2 H

Reference range 0-2 yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Guest Villanfam

Oh yeah, my daughter was 2 at the time when the test was done. She will be 3 tomorrow!!!! :D

jen2be2 Explorer
If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

OK.

IgA testing scale that this lab(lab corp) used for both the girls tests are :

IgA~ 0-3 = Negative

4-10= Weak Positive

10 and over = Positive

Congrats to your DD on her birthday! Jiselle just turned 5 yesterday! :D

Shaylin's bio. came back + for celiac disease yesterday. I am just so glad that we finally got an answer to why she is so sick. She has been gluten-free since last Wednesday and she is doing so much better, but we still have a long way to go.

Guest Villanfam

Holy cow those are some high IgA's. Yeesh. No symptoms on Jiselle? I found out right a long with them that I have it. Well, I read about it in "Living gluten-free for Dummies" and found out for the 1st time that I couldn't eat pasta/bread/bagels/cookies/cakes/ect. because of a disease!!! And, I never would have thought that my kids had the same problem with wheat/gluten. They did not have any of my symptoms (GI related), but I read in that book ("Living gluten-free for Dummies") that celiac disease is linked to Autism-my Son, ADHD-my son again, Aches(bone/joint pain)-also my son, irritability-all 3 of my kids, short statue-all 3 of my kids, distended abdomen-my baby girl. I have since found out that there are several other neurological symptoms associated with celiac disease! A lot of which my kids and my self have. Check out this thread Open Original Shared Link. It's a really good read!

Oh, thank you, and congrats on your little girl turning 5! It's a fun age :P

Courtney

jen2be2 Explorer

Yeah, I thought the numbers were high too.

Jiselle really did not have any symptoms. I thought it was so strange that she had it. I thought for sure that my son would have it, but he came back less than 2.

I thought for sure that I would have it as well, since I have been anemic my whole life and the fact that I was dignosed with IBS with D in my early 20's, but my Celiac panel came back -. When I told my mom, she was so schocked that I did not have it too, that she could not say anything for a minute~ that is a truly rare thing for my mom to be speechless. :)

rez Apprentice

My son's tTG is only 8.4, but he's been on a gluten free diet for 4 months. Normal is below 7. We were given given the wrong blood test four months ago and went for a second opinion. I'm so frustrated since now I don't know if the biopsy will be accurate now. UUUUGG!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MomandDadtoOGS Newbie

When the Ig panels were run in August, our daughter's all came back within normal range. Our immunologist ran just about every one out there for us.

She had her ttg done on 10/27/06-- 480! Our Ped GI/lab uses anything under 20 as normal.

Her biopsy was done the same day and showed significant damage to the small intestine.

Her symptoms were: belly pain, gastroparesis, GERD, and frequently loss/gain of weight w/o diarrhea.

Nikki2003 Contributor

Nicole-- 80 Positive

Normal range

<20

Alivia--32.4 H

Normal range

<4

they were tested at 2 different labs at different times

had alivia tested because nicole was positive,no symptoms

but nicole was very sick

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    4. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    5. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748

    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.