Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do The Numbers Mean?

Guest memoryofaspyn

By Guest memoryofaspyn
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest memoryofaspyn
Guest memoryofaspyn
Posted

Hello, I am new to this site, and this disease. I have a couple questions. First I just got my labs back and they were all positive, all of my numbers were between 135-139, my doctor said he has never seen all of them positive at the same time, and he said he thought mine were quite high. He has said he doesnt believe I need the biopsy, does this sound right?

My next question is I have a nine month old who I am nursing, if with this condition I am not getting the nutrients I need, is my daughter getting what she needs from me?

Thank you so much I would appreciate any help I can get!

Stacy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Lakefront Brewery

tarnalberry Community Regular
tarnalberry
Posted

It's a good sign that your doc is willing to go off of blood work! With numbers that conclusive, it's great to save yourself the trouble of having to have a biopsy.

As for nursing, from what I understand, there _could_ be some issues with nutrients, BUT don't worry too much! If she's looking healthy and happy, chances are, it's not a big problem. Of course, talk to your doc about this further, and maybe you'll want to get some bloodwork to check your vitamin/mineral levels, but you - and she - may be just fine!

And once you get gluten-free, it definitely won't be a problem.

lovegrov Collaborator
lovegrov
Posted

With numbers this high and particularly if you have symptoms, I wouldn't bother with the biopsy. However, if you need further convincing, then do it.

richard

Guest memoryofaspyn
Guest memoryofaspyn
Posted

Are those numbers high? I am not sure how to read the numbers. I do have the symptoms, do you know if severe muscle cramping in my legs is a symptom also? I would be very happy to get rid of that!

Racheleona Apprentice
Racheleona
Posted

I do consider those numbers very high...mine was 20, and my doctor considered this enough to go gluten free, and a number of 0-19 is negative result for gluten sensitivity...above 40 I believe is a strong positive...

Rachel

CarolynM Newbie
CarolynM
Posted

Be very glad the doctor is willing to go on the bloodwork. The biopsy is expensive even with insurance and you would have to wait until after to go gluten-free. You can get started getting healthy immediately :D .

On the leg cramping, I have heard it can be symptomatic of low potassium level. If so, then it could be related to celiac disease.

If your baby has been doing well, keep nursing. Things will be even better after you have gone gluten-free.

Guest memoryofaspyn
Guest memoryofaspyn
Posted

thank you all for your help, I really appreciate it!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
NutHouse! Granola Co.

Celiac.com Sponsor (A8-M):
NutHouse! Granola Co.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,016
    • Most Online (within 30 mins)
      7,748
    Oh My Paws
    Newest Member
    Oh My Paws
    Joined
  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Tierra Farm


  • Upcoming Events

  • Posts

    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill...
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By ShariW · Posted

      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
    • Scott Adams
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By Scott Adams · Posted

      Sounds great, we also have lots of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/
    • ShariW
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By ShariW · Posted

      When I had to go gluten-free, the rest of my family still ate gluten. They still eat regular bread products and crackers, but there are no other gluten-containing foods in the house. I bought a separate toaster that is only used for gluten-free products, and thoroughly cleaned all cookware, dishes and surfaces. We do have to be very careful with cross-contact, for instance when someone else is making a sandwich with wheat bread. Then I went through my cupboards and pantry, I set aside everything else with gluten and gave it away - flour and baking mixes, pasta, etc. So when I cook any recipe that calls for flour (perhaps for thickening) or bread crumbs like Panko, I only use gluten-free. My...
×
×
  • Create New...