How Many Of You Have Children With Celiac And You Do Not?

[LKN's mom]

Hi there

My 3 yo daughter was dx'd with Celiac 1 1/2 years ago.

She has done fantastic on the gluten free diet!

I also have a 5 year old son with Down syndrome, who doesn't have the genetic markers for Celiac and a 6 month old son who also doesn't have the genetic markers.

I had genetic testing done on myself a couple months and I have both of the markers for Celiac. So I'm assuming that my daughter has gotten this from me. ( I also have a second cousin who is 9 yo with Celiac).

My question is: I know I have the markers for it, but at the time she was dx's my TTG was normal, as well as my husband's. I was about 8 weeks pregnant when my TTG was checked. I'm recently noticing more and more"issues" that could be Celiac related, but I'm wondering if my mind's playing tricks on me because I now know for certain that I have the Celiac genes???

Thanks!

[chrissy]

neither my husband nor myself have celiac, but we have 3 girls with celiac and one boy that carries the gene. our ped gi told us he needed to be tested yearly, or sooner if he developes symptoms. this is probably what you need to do.

we do not know which of us carries the celiac gene, but we hope to find out soon.

[Viola 1]

We haven't had the genetic testing done, but our 40 year old daughter has Celiac, as do I. Our youngest daughter (38) had only the biopsy (her specialist told her he wouldn't bother with the blood tests) and that was negative. Although we all know that the biopsy can often be a false negative.