Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Carbamazepine Or Tegretol


NicoleAJ

Recommended Posts

NicoleAJ Enthusiast

I was just diagnosed with trigeminal neuralgia--a painful disorder involving the largest nerve in your face. The treatment the doctor prescribed is Tegretol, which is one of the various forms of carbamazepine, an anti-seizure medication. Have any of you taken this? Have you had problems with it. It looked like the ingredients were ok as far as celiac is concerned though I do need to call, but it seems like this is a serious med, and I wanted to know if you have had any problems with it in the past. Apparently, I need to get a medic alert bracelet with my dose since there are serious interaction risks with other drugs commonly administered in emergency situations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Here's a link to the Open Original Shared Link. (You'll actually have to scroll down and click 'more' next to the drug name.) I find it useful to google these (with the syntax "prescribing information <drug name>" when I take something new.

While the inactive ingredient listing in the PI does mention starch, it is often NOT wheat starch. As you noted, however, it is absolutely best to call, as it could be.

Make sure to read the Contraindications and Warnings section, as well as the two sections Agents That May Affect Tegretol Plasma Levels and Effect of Tegretol on Plasma Levels of Concomitant Agents so that you know what other medications will change the effective dosage of this one (like Claritin, Advil, and grapefruit juice, among other prescription drugs) and what other medications this one will change the dosage of (tylenol, corticosteroids, some antibiotics, and birth control, among other prescription drugs).

If you're not used to reading PI's *PLEASE remember to take the information in context*. It reports *a lot* of information. And it can sound scarier than the true picture. It's useful for reference, but don't let it make you paranoid about the drug either. The FDA requires a lot of warning and cautionary information - and with good cause - but if you're not used to reading them, they can easily scare you. There's information there to work with, but not to panic over. It's good to be informed, but still work with your doctor on the application of that knowledge. (I don't know if you're familiar with reading these things or not, so this bit may be totally unnecessary for you.)

NicoleAJ Enthusiast
Here's a link to the Open Original Shared Link. (You'll actually have to scroll down and click 'more' next to the drug name.) I find it useful to google these (with the syntax "prescribing information <drug name>" when I take something new.

While the inactive ingredient listing in the PI does mention starch, it is often NOT wheat starch. As you noted, however, it is absolutely best to call, as it could be.

Make sure to read the Contraindications and Warnings section, as well as the two sections Agents That May Affect Tegretol Plasma Levels and Effect of Tegretol on Plasma Levels of Concomitant Agents so that you know what other medications will change the effective dosage of this one (like Claritin, Advil, and grapefruit juice, among other prescription drugs) and what other medications this one will change the dosage of (tylenol, corticosteroids, some antibiotics, and birth control, among other prescription drugs).

If you're not used to reading PI's *PLEASE remember to take the information in context*. It reports *a lot* of information. And it can sound scarier than the true picture. It's useful for reference, but don't let it make you paranoid about the drug either. The FDA requires a lot of warning and cautionary information - and with good cause - but if you're not used to reading them, they can easily scare you. There's information there to work with, but not to panic over. It's good to be informed, but still work with your doctor on the application of that knowledge. (I don't know if you're familiar with reading these things or not, so this bit may be totally unnecessary for you.)

Thanks for the info, tarnalberry. I actually did read this yesterday, for the most part--I skimmed some parts of it (yes, definitely some scary worst-case scenarios even though those don't apply to everyone), but it is always good to let people know that this is out there. I googled it as well. I'm definitely going to have to double check on the birth control since I believe that mine is estrogen-based rather than progestin-based.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.