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Food Refusal

kirst4588

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kirst4588 Apprentice
kirst4588
Posted

When Justin's "under attack" as I call it, meaning, has been exposed to gluten, I assume - or so his bowel movements seem to evidence - it seems that he refuses to eat - Before I knew he had celiac disease, he always seemed starving - when he was 100% breastfeed, he nursed 24X7 - but now, he goes back and forth - I realize this is partly normal for any kid, as they go through growth spurts (sp) etc - and some kids are grazers - but Justin will go days on days (including today) where all he wants is to drink - and I have to bribe or force him to eat. Today, for example, I had to call my neighbor and have her call my cell phone and pretend to be ChuckECheese and tell him, if he didn't eat, he couldn't come there and play - then when he ate 4 or 5 bites, we went to ChuckECheese - now he's just sleeping!

#@$#%

krs10

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kathyhay Apprentice
kathyhay
Posted

My son is not diagnosed celiac, but I feel that he has to be gluten intolerant. AND I COMPLETELY KNOW WHAT YOU'RE TALKING ABOUT! Before I suspected wheat intolerance, I hated the fact that my son would ALWAYS be wanting to nurse (he's 27 months old and still nursing). I didn't think that was normal for a 2 year old, and it made me think that something was wrong with him. I didn't realize that pudding/peanut butter consistency poops weren't normal. Anyway, he would ask to nurse several times each hour, and I KNEW he was just starving hungry, but he didn't want whatever I offered. I would offer 20 different foods, and he would just cry because he wanted to nurse. I figured his tummy was hurting for some reason, making him want the most easily digestible food possible. I am so thankful for the internet, because without all of these online resources, I never would have been able to figure it out. It's too bad that doctors don't look for causes of symptoms, and just want to treat the symptoms. I'm so glad that there is this forum where I can talk with people who are going through the same thing as my family. It is such a strength to me.

TaylorsMom Rookie
TaylorsMom
Posted

Kirsten,

I know that we talked earlier today about all of this but I just wanted to respond for everyone else. Taylor (going through testing for Celiac) will often refuse to eat, but she will beg me without end for something to drink. There are times that she goes for days without eating anything but a banana here, some strawberries there, maybe some grapes but absolutely will not touch anything else. And I can't say that I blame her because today she only had a banana and some strawberries and was having a good day, then I convinced her to eat some macaroni. Within an hour of eating it her abdomen swelled up 3.5 inches larger than it was before eating :(

Megan

rgeelan Apprentice
rgeelan
Posted

William does that same thing with not wanting to eat. Our doctors just kept telling us it was 3 year old wilpower and that nothing was wrong with him... Of course when they said that they also said to seriously limit what we gave him to drink and force him to eat. Then he got sicker... :( I now firmly believe that maybe they know what theya re talkng about when they say that eating makes their tummy hurt... And the doctors should have listened sooner while I kept draging him in there.

kirst4588 Apprentice
kirst4588
Posted
  • Author

*crying*

I let him drink Pediasure because when all he wants to do is drink, it kindof makes me feel like he's getting SOMETHING healthy, beings that it is a nutritional supplement - but I feel like a crummy mum because he should be eating healthier - I shouldn't be celebrating if I can get him to eat a handful of JUNK! You know what really makes me think...when I do his food diary - on the days that I do it, I feel like I'm just not seeing him eating much - I'd be embarrassed to have anyone else read what he consumes in a day..."hot dog; gluten-free macaroni n cheese; Pediasure; some rice cereal mixed with cocoa pebbles..." THATS IT - Maybe since he's starting preschool tomorrow, I'll actually have time to cook some of these darn recipes from the gluten-free cookbooks!!!

thanks for letting me vent :rolleyes:

kirst4588 Apprentice
kirst4588
Posted
  • Author

p.s. Kathy - Your child knows what's best and that's what your milk is and you may not get raving support from the greater at large for nursing, but it's what God intended and I'm sure that thanks to you, your child is better of than without - stay strong!

rgeelan Apprentice
rgeelan
Posted

Kirsten... Dont be so hard on yourself!!! He is eating just FINE! Hell, remind yourself that he is EATING! Ok! I never worry about if the food my kids eat is bad or good I only worry that they are getting it in them! We have gone through days where my son hasn't eaten more than 2 or 3 bites of food and that is very stressfull, I would rather him eat tons of junk food than nothing...

I am sending you lots of hugs! LMK if you need to talk.

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cdobbs Rookie
cdobbs
Posted

i know exactly what yall are talking about. my 5yr old is the same way. he hardly eats anything and if all he its is junk so be it. also with the tummy ache. i never noticed it till recently everytime my 2yr old easts afterwards he says his tummy hirts but now that we have been diagnosed with celiac disease that explains alot. hes happy with just flake cereal as he calls it(envirokids corn flakes) kids will grow up and learn to eat better i think. you just have to hang in there and hope for the best.

christi

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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