Odd Reaction....

[JerryK]

So I sort of had an atypical reaction last night, or so I think. I'm waiting for a doctors appointment in a couple weeks. I know I need to eat as much gluten as I can, but I'm having trouble eating it all the time. But I know I need to eat some to keep the old immune response going...so I have a sandwich for dinner last night. I sort of know what to expect....I sort of start feeling comatose, drugged, lethargic, depressed....within 2-4 hours... Then I'll have a bout of intestinal problems, likely the next day. It follows a pattern that I've become familiar with. Almost exactly like you feel when you are coming down with a virus...it is the immune response I'm feeling...I'd bet money on it.

But last night...after about two hours...I started feeling really tense, anxious and shakey...very pronounced. It was like I was having an anxious reaction...rather than a depressed/lethargic one.

However, this morning...I'm back to feeling like I usually do after eating gluten...tired, shakey, I ache all over...my mood is a 5-6 compared to yesterdays 8-9.

So having said all that, does anyone else experience these odd peculiar reactions. I don't know if it

was simple anxiety, which I've really had a handle on lately, or if it was an actual REAL reaction, if you know what I mean...J

[darlindeb25]

Oh yeah, Me thinks you be a normal celiac, if there is such a thing!!!!!

[rmmadden]

Jerry,

Welcome to the wonderful world of Celiac!

Your description sounds very familiar especially during my first year post diagnosis. I had several bouts with anxiety and feeling shakey. It was only thru this forum that I didn't go crazy. People like Deb (and countless others) were there to share their similar stories and help me feel as if I wasn't alone in this disease.

Got a question? Ask away. Need to vent? Do it. I guarantee that there is somebody on the forum who has dealt with the same problems.

Best of luck!

Cleveland Bob

[JerryK]

Jerry,

Got a question? Ask away. Need to vent? Do it. I guarantee that there is somebody on the forum who has dealt with the same problems.

Best of luck!

Cleveland Bob

Well Yeah, I'll vent for a sec..thanks! I'm a short 5-6 blond haired guy, obviously of European decent.

I have a history of depression and anxiety...I had to have all my teeth crowned at age 40 because of severe enamel loss and attrition. Why the HE%% did the medical community feed me antidepressants for 5 years without even suggesting this could be a food related issue? Why the HE%% didn't any doctor even think about it. I now KNOW that I'm gluten intolerant, whether or not I'm truly Celiac is

anyone's guess, but why the HE%% did I HAVE TO figure it out?? Rhetorical questions

Whew thanks, doesn't make the aches and pains go away...but was somewhat satisfying anyway.

[JerryK]

Perhaps part of the reason men don't get diagnosed so often is we're not good at complaining.

I mean seriously what man actually wants to go to the doctor, especially to discuss poo issues?

And then there's the problem that we look too healthy...all muscular and manly...how can we possibly be physically sick...it must be mental. I love doctors...

[nikki-uk]

Perhaps part of the reason men don't get diagnosed so often is we're not good at complaining.

I mean seriously what man actually wants to go to the doctor, especially to discuss poo issues?

And then there's the problem that we look too healthy...all muscular and manly...how can we possibly be physically sick...it must be mental. I love doctors...

I think you're on to something there Jerry!!

My hubby absolutely had difficulty even admitting he was ill - and as you say who wants to discuss poo??

[Gentleheart]

Well Yeah, I'll vent for a sec..thanks! I'm a short 5-6 blond haired guy, obviously of European decent.

I have a history of depression and anxiety...I had to have all my teeth crowned at age 40 because of severe enamel loss and attrition. Why the HE%% did the medical community feed me antidepressants for 5 years without even suggesting this could be a food related issue? Why the HE%% didn't any doctor even think about it. I now KNOW that I'm gluten intolerant, whether or not I'm truly Celiac is

anyone's guess, but why the HE%% did I HAVE TO figure it out?? Rhetorical questions

Whew thanks, doesn't make the aches and pains go away...but was somewhat satisfying anyway.

Newly diagnosed "old" person here. I've had your uncomfortable anxiety symptoms 24/7 for years. And it's not been fun. No doctor ever got it right, even some pretty smart ones. They just stared at me blankly and kept prescribing antidepressants, which I chose not to take. Hang in there. It's gonna be OK.

[JerryK]

Newly diagnosed "old" person here. I've had your uncomfortable anxiety symptoms 24/7 for years. And it's not been fun. No doctor ever got it right, even some pretty smart ones. They just stared at me blankly and kept prescribing antidepressants, which I chose not to take. Hang in there. It's gonna be OK.

And RIGHT on schedule 18 hours after my Sandwich...here come the runs...actually a little earlier than usual. It's so predictable it's uncanny. Always after eating something with wheat...could it be much else??