Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think?

janelyb

Recommended Posts

janelyb Enthusiast
janelyb
Posted

My friend's baby seems not to tollerate most foods. When she was a newborn and my friend was breaskfeeding the baby reacted negatively to protien food like meats, wheat,dairy,corn,egg..etc....

And baby decided to wean herself off mamma milk so my friend gave her formula, then she switched to the hypo- allergenic one for a few months. Now she is on carnation good start.

The baby is 6-7 months old and seems to be reacting negatively to rice,oatmeal,some fruits.

She is a very fussy baby, gassy, gets a diaper/allergy rash ring on her bum when eats an offending food. She also has GERD/Refulx.

My friend took her to an alternative doc and did some muscle response testing and she came back allergic to just about everything.

My friend wants some testing done but doesn't want to expose her to the food before the test.

She wants to know what grain can she have???

Oatmeal is out and with Rice cereal she gets extremely constipated, even with just 1 tsp mixed with a jar of fruit in a day.

She also seems to be allergic to peas & bananas..And other fruits she has tried go through her fast.

Anyone have some advice I can send her, please email me.

Janel

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

at six months, it may just be too early for most foods. her digestive system may need more time to develop.

janelyb Enthusiast
janelyb
Posted
  • Author
at six months, it may just be too early for most foods. her digestive system may need more time to develop.

I tired to tell her that but she says her baby screams and gets really mad if she isn't also eatting baby foods...she eats 3 meals a day along with her formula...she's 7 months old now. She says the baby wants to eat from a spoon more than a bottle, she often refuses her bottles.

I personally think my friend introduced solids too early knowing her baby has possible food allergies.

wowzer Community Regular
wowzer
Posted

If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

janelyb Enthusiast
janelyb
Posted
  • Author
If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

That's the advise I give her but she isn't taking it. However she keeps asking me for advise on the topic. She says she can't not give her baby food, the baby is wanting it so badly...I give up don't know what else to say to her.

lovegrov Collaborator
lovegrov
Posted

Just my opinion, but I don't think I'd put much stock in the muscle response testing, especially not on a 6-month-old.

richard

chrissy Collaborator
chrissy
Posted

janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

janelyb Enthusiast
janelyb
Posted
  • Author
janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.

Can you reffer me to some sites that will better explain what this is?

janelyb Enthusiast
janelyb
Posted
  • Author
Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

kirbymom Newbie
kirbymom
Posted

Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

janelyb Enthusiast
janelyb
Posted
  • Author
Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

tarnalberry Community Regular
tarnalberry
Posted
I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

Perhaps it's time to say "I've given all the advice I can give. I understand that you are looking for a different answer, but I don't have a different answer to give, so please stop asking." (or time to just stop giving advise even when asked...) There's only so much you can do.

tarnalberry Community Regular
tarnalberry
Posted
Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

IBS is one of the most common mis-diagnoses of celiac.

janelyb Enthusiast
janelyb
Posted
  • Author
IBS is one of the most common mis-diagnoses of celiac.

I will be sure to let her know along with my mother in law who has IBS as well.

And I hate to sound harsh to her but I agree next time she asks for advise I will be blunt and tell her I have given you my advise and it's still the same.

chrissy Collaborator
chrissy
Posted

janel----i don't know a whole lot about the conditions i mentioned, but one of my friends has a child with FPIES and i know she would be happy to talk to either you or your friend. i will have her give me some sites and pm her e-mail addy to you tomorrow----if i happen to forget, send me a pm. (i have memory problems sometimes)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748
    sbr
    Newest Member
    sbr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.