Obvious Wheat Reaction

[Tina81980]

My DD (21months old) was allergy tested last week with positive results for soy, peant, almond, dairy, & wheat. The allergist isn't convinced that they are true allergies, but possibly intolerences, or even false positives. To be safe I removed all of the above foods, except soy which the allergist wanted to test over the weekend. On Monday, they told me that it wasn't nessassary to remove the other foods, so I slowly started to add wheat back, first with a cracker, no reaction, so 24 hours later we tried pasta. In the middle of the night she woke up (the first time since removing the wheat) scratching her belly like crazy, she broke out with an eczema like rash, she went back to sleep, woke up a few hours later with terrible diarhea (sp?), so bad that it went through her diaper, clothes, bedding, and down in her socks. I called her allergist who isn't convinved that she is reacting to wheat, and thinks it's fine to continue to give it to her. All other foods she reacted to are out of her system, except soy which she had tolerated fine for a week now. I give her wheat and this is the reaction I get. On a developmental note..wheat free..her joint attention drastically improved. I plan on asking her ped about testing for celiac but not sure how far I will get with that. Is is just me or does it seem like she reacted to wheat?

Tina..Mommy to Justin 6 Aspergers, Kelsey 4, & Megan 21 months Developmental Delay

[twmixon]

My DD (21months old) was allergy tested last week with positive results for soy, peant, almond, dairy, & wheat. The allergist isn't convinced that they are true allergies, but possibly intolerences, or even false positives. To be safe I removed all of the above foods, except soy which the allergist wanted to test over the weekend. On Monday, they told me that it wasn't nessassary to remove the other foods, so I slowly started to add wheat back, first with a cracker, no reaction, so 24 hours later we tried pasta. In the middle of the night she woke up (the first time since removing the wheat) scratching her belly like crazy, she broke out with an eczema like rash, she went back to sleep, woke up a few hours later with terrible diarhea (sp?), so bad that it went through her diaper, clothes, bedding, and down in her socks. I called her allergist who isn't convinved that she is reacting to wheat, and thinks it's fine to continue to give it to her. All other foods she reacted to are out of her system, except soy which she had tolerated fine for a week now. I give her wheat and this is the reaction I get. On a developmental note..wheat free..her joint attention drastically improved. I plan on asking her ped about testing for celiac but not sure how far I will get with that. Is is just me or does it seem like she reacted to wheat?

Tina..Mommy to Justin 6 Aspergers, Kelsey 4, & Megan 21 months Developmental Delay

Tina, I have been dealing with Celiac disease for years and did not know what nwas wrong. Three and a half years ago I found a doctor that had the disease and he diagnosed me. Before I was diagnosed with celiac and removed the gluten from my diet I suffered from Rasses on my stomache and elbows as well as gastric distress. If I get a little glutten today i will break out in a rash on my elbows. Very mutch makes me extreamly Ill. It sounds to me like your Baby is having a reaction to the wheat and I would find a Dr. in your Area that has experience with Celiac disease.

[jayhawkmom]

My baby tested positive for soy - but his allergist said that the numbers were low enough that it is probably a false positive, and advised me to continue to feed him soy.

I'd pulled it out of his diet - and didn't notice much. However, after 2 weeks with no soy - he started having TERRIBLE diarrhea, horrible diaper rash, and eczema like mad.

As a trial, we pulled it again for a month. Decided we were better off with him NOT having it and decided to leave it at that. Two days ago he got ahold of an EnerG cracker from his big sister. His butt is now redder than red, diaper rash like mad, diarrhea from h*ll, and he's covered with eczema. So, I'm going to have to go with the assumption that the test was accurate.

It seems to me that your daughter DID react to wheat. My daughter is also allergic to wheat and intolerant to gluten. Being "allergic" to wheat, on paper, actually makes our case a little easier to deal with.

I hope you are able to get some answers!!!

[Tina81980]

I believe that it was the wheat she was reacting to, so we have decided not to give it to her anymore reguardless of what the allergist thinks. Why is it so hard to get these Dr.'s to believe what you say. We know our & our kids bodies and they shouldn't disreguard what we tell them just because we don't have a medical degree. So I will probbly be hanging around here for food ideas and such. I hope that is ok, since she isn't Celiac as far as we know & just allergic.

Thanks

Tina

[jayhawkmom]

So I will probbly be hanging around here for food ideas and such. I hope that is ok, since she isn't Celiac as far as we know & just allergic.

Tina - many of us do not have "official" diagnosis of Celiac disease. In fact, I'm fairly certain that more of us don't than do.

And, I totally agree with you. When I feed my child something and he reacts, whether or not he has a positive blood test, skin test, or anything else... I'm NOT going to feed him that food again just to watch him get sick. I mean.... there's trailing, and then there is blatant disregard for the obvious. None of us will continually feed our kiddos something that obviously makes them sick, even when we have medical professionals telling us that it's "impossible" for the child to react to these things based on "test results."

Woah... I am not making ANY sense. LOL!!!

You do what your mommy instinct tells you to do.

(Let's try to see the professionals argue against mommy instinct!!)