Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Can Kids Get Tested?

Q1821

By Q1821
in Related Issues & Disorders

Recommended Posts

Q1821 Apprentice
Q1821
Posted

I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jayhawkmom Enthusiast
jayhawkmom
Posted

Ok... deep breath!! =)

Since you don't have children yet... I would not be concerned with what age they could be tested. Who knows what is on the horizon for Celiac/Gluten Intolerance issues and testing. Things could change drastically in the next year... two years, three years down the road. In fact.... I certainly HOPE so!!

If you know you have issues with gluten.... don't eat it. Period. As long as you are eating a healthy diet, there will be no negative impact on your child/ren.

If you maintain a gluten free home, feed your children the same way you eat. Healthy whole grains, lean meats, veggies, fruits... there's no real "need" for gluten grains in there anyhow. No one needs gluten.

When the time comes - approach the subject with your OB. Our, your child's pediatrician. Some folks never feel it necessary to introduce gluten to their children, especially those who have a strict gluten free house. And, I can tell you right now.... it's MUCH easier when everyone is gluten free!! =)

Lots of luck to you!!! =)

Kelgs Rookie
Kelgs
Posted

This article says you can use the gene test at ANY time. They can even use cord blood. Open Original Shared Link

My husband is celiac and at least 2 of my boys are celiac. We have not given any gluten to our 1 year old yet.

Celiac is not the end of the world I am finding. My boys are doing great! You should be scared to have kids! LOL! They will change your life.... but in wonderful, wonderful ways.

Good luck,

Kelly

Mom of Alex 9 - Gluten free since 1/07

Ethan 6 - Gluten free since 1/07

Zac 1 - has never had gluten

Wife to Mark - Gluten free since 2003

I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you

  • 3 weeks later...
Kibbie Contributor
Kibbie
Posted
I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you

My daughter was diagnosed at 18 months old because she was showing symptoms and was the first in the family to show symptoms. For my next child (not pregnant currently) I plan on having them test him/her for the celiac genes using cord blood right away so that I'll know for school and stuff. (Our entire house is gluten free so its only important for me to know about the gene for outside our home.)

My daughter only got breast milk for 6 months at 6 months we introduced her to solid foods... you can choose to start rice/oatmeal at the point or choose not to and just stick with vegetables and fruits!

The great thing about being gluten free is that anyone with the celiac genes who are gluten free will never develop Celiac Disease! Being gluten free with no harm or hurt a child at all... infact it think my daughter is eating much healthier than most of the other kids her age because of the gluten free diet!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748
    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.