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Scd Diet

Lindsay GFMom

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Lindsay GFMom Apprentice
Lindsay GFMom
Posted

I'm in the middle of reading "Gut and Psychology Syndrome" by a doctor from the UK. Her son had autism and she started on a quest to heal him. In the process, she noticed the connection between gut issues and a lot of prevalent problems with kids--ADD, ADHD, autism spectrum issues, etc... She advocates for a much more rigorous diet for these kids than just gluten-free/CF.

Has anyone read the book and/or used the SCD diet? Especially for a kid with gluten intolerance and/or Celiac?

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taweavmo3 Enthusiast
taweavmo3
Posted

I've been wondering the same thing. My daughter is being evaled for autism next month. I happened to find a SCD website, and it really sparked an interest. But I'm hoping to find out more before I get the book. The idea of putting dd on an even more restricitve diet is daunting, but if it will help her, it will be well worth it. She did great initially with the gluten-free diet, but the past 6 months or so, she seems "off". She still doesn't seem 100% to me, so I am curious if this diet might do the trick. The mechanics behind the reason it works certainly seems to make alot of sense.

gfpaperdoll Rookie
gfpaperdoll
Posted

I have not read the book but am familiar with the SCD diet as that is mostly the way that I eat.

I totally recommend it. One of the reasons is that almost all the grains are cross contaminated with gluten and very sensitive people like me (& probably autistic children) cannot eat the stuff anyway.

Not specifically to the two posts here but for anyone to read. For people that have an autistic child and have them on a gluten-free diet. If the child is the only one on the diet there is no way that they are not being cross contaminated. Just using wheat flour in the home is enough to make the child sick. Just breathing the flour in the air will make them really sick. Not counting that it poofs up & drifts down on everything in the kitchen and if the AC is blowing the air out of the kitchen, well you get the idea.

What happens with some of these kids, once they get the gluten out of their system the teeniest speck of gluten will make them sick. Did you eat a sandwich & then touch the TV remote? & then the kid touches the TV remote & then eats an apple with their fingers. The kid just got cross contaminated.

So I would like to repeat that these kids are getting sick because they do not have a safe gluten-free haven. Gluten is like rat poison to us. I just cannot tell you how sick we get from the tinyest speck.

It is well known among us that have the DQ1 genes (I have two, as does most of my family) that this comes with the ADD, ADHD, depression, migraines, seizures, Autistic tendancies, paranoia, temper, in other words a lot of the neurological stuff. & yes it is related to the food that we are eating.

A gluten-free friend recently told me of a twin girl, autistic, that was taken off the gluten-free diet after a year because she was not doing any better. Well the other twin has ADHD but was not put on the gluten-free diet. My heart (&my friends was just crushed) because we knew that the one twin was never really gluten free, no way with her twin eating gluten and the rest of the family. & OMG how awful is that to split the twins diet. When really at least both of them should have been gluten-free, & truth be known dairy free as well.

I think that parents look at it as depriving the child. Well unless they are sitting there eating take out pizza in front of the child while the child is eating carrots & grilled chicken, it is not depriving. But families are not researching this and making the committment to go gluten-free with the child. ( I mean for petes sake, they can sneak bread when they are out on date night or something, if they are so inclined)

I think families should realize that having a safe haven for their child and supporting the child is more important than having take out pizza etc.

Sorry for the long post, this was just something I have been wanting to say...

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      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

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