Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry And Upset


georgie

Recommended Posts

georgie Enthusiast

I have run out of food to eat ! I went into town to see what the local shop had - and it wasn't much. Not even a gluten-free muesli bar. Its a holiday so fruit and veg shop was shut. My hubbie ate the last of the cold meat without telling me. In desperation I bought a shop cooked chicken , ate a piece driving home, and then realised that it probably had gluten on the seasoning.

I have planned a trip tomorrow to the city ( 200 miles away) to buy food. But now I am so scared that I will be too sick to drive. I am just feeling so down about all this. I go to the city about 1 x month but instead of shopping for fun - its just food now. Its all over the city - exhausting for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Georgie, I know how frustrating it is when your family eats the last of your food, when there is so much they can eat. At least I can usually find food to buy day and night, as we have one grocery store near by that is open 24 hours a day.

Is it possible for you to order some of your non-perishable gluten-free food online, so at least you don't have to run all over to find what you want? There is no way I'd have the energy to first drive 200 miles, and then run all over finding my food, and drive home without the danger of falling asleep behind the wheel from exhaustion. And I know you can't walk any better than I can. It must be awfully hard.

I hope the seasoning on the chicken didn't contain gluten.

georgie Enthusiast

There is an online shop and I have done an order but I guess I ran out of food before doing the order. It takes 3 days by post. And there are items in the city tthat the online shop does not have.

I was looking forward to this day tomorrow shopping with Mum. But now I will be terrified of falling asleep and getting home safely. I guess its just the reality of being Celiac FOREVER that is hitting home now. And having to buy food in quantities to last a month or 2. Our pantry can't cope !Being dairy free now is the last straw ! I am even wondering if I reacted to nightshades from last nights meal ...home made potato chips. Or if I am reacting to the dairy 2 days ago. Or ..what!

No - just had the skin and some meat of the chicken. But as soon as I thought about it ( dark brown glaze) I realised it was probably soy sauce. And had been handled in a non gluten-free way with a bread seasoning. So ..... that was a waste of $9!

Ruth52 Newbie

Hi Georgie,

I know it can be a challenge to buy food that is gluten free, and it becomes even harder when you are so far from a large shopping centre.

I noticed you are from Australia (so am I). I buy my flours online from wheatfreeworld and bake food that I can keep in the freezer. They have recipes for both sweet and savoury food.

If you like fish a good standby is a tin of tuna or salmon - mix it up with rice and a salad.

But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

Hope you feel better soon.

Ruth

miles2go Contributor

Geez, Georgie, that is quite a mess. I am so sorry, I wish I could FedEx some food to you as I've always been one who is prepared for the holocaust. Depression baby parents and all...

Tomorrow is probably not a holiday, right? Can you get hold of some fruit, veggies and maybe some eggs before your big shopping trip? We are having the daylight savings time shift early here and I was a little freaked about lunch tomorrow. I roasted some squash from last fall, crocked up some beans and am having celery and carrot sticks, some brown rice from last week and a green salad along with some grapes. Basically scraping the fridge.

I hope you eat before you travel the 200 miles and if it's within your pocketbook, stock up some, for days like this!

Big hug,

Margaret

georgie Enthusiast
But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

:lol: :lol: I will have to remember that!

I am not a big tuna fan - I used to have a favourite one but it was a flavoured type and has Gluten. But I can search for others and think about this.

Its obvious I have to get back into the kitchen :blink: and start cooking ! Being Dairy Free makes it harder - I like quiches .....groan ... I hate cooking ....

darlindeb25 Collaborator

Georgie--I can't remember if you have a problem with soy--if you do, be careful with tuna. I always buy tuna in water and that water usually is a broth made with soy. Here in New York, I have only found Bumble Bee Tuna in foil pouches to be free of soy. Sounds like you may not try the tuna anyways. ;) I always have my ricecakes at hand with my peanut butter--not sure I could survive without my peanut butter!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I second that vote for Chocolate Icing!!!!!

I cook a lot & then freeze meals in glass containers with plastic lids, then I can take one with me or take out of freezer take off lid, place glass plate on top & heat in the microwave.

A quick dish is to saute onions, garlic, celery, & what ever veggie you have & then to stir in cooked rice. If you want you can add cooked chop meat to this. Then I take a baked sweet potato (they freeze well) mash it up with a little brown sugar put in bottom of freezer bowl, put rice mixture on top, label with masking tape & a sharpie & pop into the freezer.

Yes, it is all easier when you cook yourself!! ;)

georgie Enthusiast

Back from my day and a much happier person tonight ! I found the gluten-free bakery and have gluten-free pasties, sausage rolls, lamingtons, cup cakes, choc cake, choc peppermint slice, tacos, corn chips and lollies !!!!!!! And have found that they ship ! All hand made on the premises by a qualified cook. Also stocked up on nuts and other healthy goodies. Ahhh ....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.