Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry And Upset


georgie

Recommended Posts

georgie Enthusiast

I have run out of food to eat ! I went into town to see what the local shop had - and it wasn't much. Not even a gluten-free muesli bar. Its a holiday so fruit and veg shop was shut. My hubbie ate the last of the cold meat without telling me. In desperation I bought a shop cooked chicken , ate a piece driving home, and then realised that it probably had gluten on the seasoning.

I have planned a trip tomorrow to the city ( 200 miles away) to buy food. But now I am so scared that I will be too sick to drive. I am just feeling so down about all this. I go to the city about 1 x month but instead of shopping for fun - its just food now. Its all over the city - exhausting for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Georgie, I know how frustrating it is when your family eats the last of your food, when there is so much they can eat. At least I can usually find food to buy day and night, as we have one grocery store near by that is open 24 hours a day.

Is it possible for you to order some of your non-perishable gluten-free food online, so at least you don't have to run all over to find what you want? There is no way I'd have the energy to first drive 200 miles, and then run all over finding my food, and drive home without the danger of falling asleep behind the wheel from exhaustion. And I know you can't walk any better than I can. It must be awfully hard.

I hope the seasoning on the chicken didn't contain gluten.

georgie Enthusiast

There is an online shop and I have done an order but I guess I ran out of food before doing the order. It takes 3 days by post. And there are items in the city tthat the online shop does not have.

I was looking forward to this day tomorrow shopping with Mum. But now I will be terrified of falling asleep and getting home safely. I guess its just the reality of being Celiac FOREVER that is hitting home now. And having to buy food in quantities to last a month or 2. Our pantry can't cope !Being dairy free now is the last straw ! I am even wondering if I reacted to nightshades from last nights meal ...home made potato chips. Or if I am reacting to the dairy 2 days ago. Or ..what!

No - just had the skin and some meat of the chicken. But as soon as I thought about it ( dark brown glaze) I realised it was probably soy sauce. And had been handled in a non gluten-free way with a bread seasoning. So ..... that was a waste of $9!

Ruth52 Newbie

Hi Georgie,

I know it can be a challenge to buy food that is gluten free, and it becomes even harder when you are so far from a large shopping centre.

I noticed you are from Australia (so am I). I buy my flours online from wheatfreeworld and bake food that I can keep in the freezer. They have recipes for both sweet and savoury food.

If you like fish a good standby is a tin of tuna or salmon - mix it up with rice and a salad.

But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

Hope you feel better soon.

Ruth

miles2go Contributor

Geez, Georgie, that is quite a mess. I am so sorry, I wish I could FedEx some food to you as I've always been one who is prepared for the holocaust. Depression baby parents and all...

Tomorrow is probably not a holiday, right? Can you get hold of some fruit, veggies and maybe some eggs before your big shopping trip? We are having the daylight savings time shift early here and I was a little freaked about lunch tomorrow. I roasted some squash from last fall, crocked up some beans and am having celery and carrot sticks, some brown rice from last week and a green salad along with some grapes. Basically scraping the fridge.

I hope you eat before you travel the 200 miles and if it's within your pocketbook, stock up some, for days like this!

Big hug,

Margaret

georgie Enthusiast
But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

:lol: :lol: I will have to remember that!

I am not a big tuna fan - I used to have a favourite one but it was a flavoured type and has Gluten. But I can search for others and think about this.

Its obvious I have to get back into the kitchen :blink: and start cooking ! Being Dairy Free makes it harder - I like quiches .....groan ... I hate cooking ....

darlindeb25 Collaborator

Georgie--I can't remember if you have a problem with soy--if you do, be careful with tuna. I always buy tuna in water and that water usually is a broth made with soy. Here in New York, I have only found Bumble Bee Tuna in foil pouches to be free of soy. Sounds like you may not try the tuna anyways. ;) I always have my ricecakes at hand with my peanut butter--not sure I could survive without my peanut butter!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I second that vote for Chocolate Icing!!!!!

I cook a lot & then freeze meals in glass containers with plastic lids, then I can take one with me or take out of freezer take off lid, place glass plate on top & heat in the microwave.

A quick dish is to saute onions, garlic, celery, & what ever veggie you have & then to stir in cooked rice. If you want you can add cooked chop meat to this. Then I take a baked sweet potato (they freeze well) mash it up with a little brown sugar put in bottom of freezer bowl, put rice mixture on top, label with masking tape & a sharpie & pop into the freezer.

Yes, it is all easier when you cook yourself!! ;)

georgie Enthusiast

Back from my day and a much happier person tonight ! I found the gluten-free bakery and have gluten-free pasties, sausage rolls, lamingtons, cup cakes, choc cake, choc peppermint slice, tacos, corn chips and lollies !!!!!!! And have found that they ship ! All hand made on the premises by a qualified cook. Also stocked up on nuts and other healthy goodies. Ahhh ....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.