Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry And Upset


georgie

Recommended Posts

georgie Enthusiast

I have run out of food to eat ! I went into town to see what the local shop had - and it wasn't much. Not even a gluten-free muesli bar. Its a holiday so fruit and veg shop was shut. My hubbie ate the last of the cold meat without telling me. In desperation I bought a shop cooked chicken , ate a piece driving home, and then realised that it probably had gluten on the seasoning.

I have planned a trip tomorrow to the city ( 200 miles away) to buy food. But now I am so scared that I will be too sick to drive. I am just feeling so down about all this. I go to the city about 1 x month but instead of shopping for fun - its just food now. Its all over the city - exhausting for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Georgie, I know how frustrating it is when your family eats the last of your food, when there is so much they can eat. At least I can usually find food to buy day and night, as we have one grocery store near by that is open 24 hours a day.

Is it possible for you to order some of your non-perishable gluten-free food online, so at least you don't have to run all over to find what you want? There is no way I'd have the energy to first drive 200 miles, and then run all over finding my food, and drive home without the danger of falling asleep behind the wheel from exhaustion. And I know you can't walk any better than I can. It must be awfully hard.

I hope the seasoning on the chicken didn't contain gluten.

georgie Enthusiast

There is an online shop and I have done an order but I guess I ran out of food before doing the order. It takes 3 days by post. And there are items in the city tthat the online shop does not have.

I was looking forward to this day tomorrow shopping with Mum. But now I will be terrified of falling asleep and getting home safely. I guess its just the reality of being Celiac FOREVER that is hitting home now. And having to buy food in quantities to last a month or 2. Our pantry can't cope !Being dairy free now is the last straw ! I am even wondering if I reacted to nightshades from last nights meal ...home made potato chips. Or if I am reacting to the dairy 2 days ago. Or ..what!

No - just had the skin and some meat of the chicken. But as soon as I thought about it ( dark brown glaze) I realised it was probably soy sauce. And had been handled in a non gluten-free way with a bread seasoning. So ..... that was a waste of $9!

Ruth52 Newbie

Hi Georgie,

I know it can be a challenge to buy food that is gluten free, and it becomes even harder when you are so far from a large shopping centre.

I noticed you are from Australia (so am I). I buy my flours online from wheatfreeworld and bake food that I can keep in the freezer. They have recipes for both sweet and savoury food.

If you like fish a good standby is a tin of tuna or salmon - mix it up with rice and a salad.

But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

Hope you feel better soon.

Ruth

miles2go Contributor

Geez, Georgie, that is quite a mess. I am so sorry, I wish I could FedEx some food to you as I've always been one who is prepared for the holocaust. Depression baby parents and all...

Tomorrow is probably not a holiday, right? Can you get hold of some fruit, veggies and maybe some eggs before your big shopping trip? We are having the daylight savings time shift early here and I was a little freaked about lunch tomorrow. I roasted some squash from last fall, crocked up some beans and am having celery and carrot sticks, some brown rice from last week and a green salad along with some grapes. Basically scraping the fridge.

I hope you eat before you travel the 200 miles and if it's within your pocketbook, stock up some, for days like this!

Big hug,

Margaret

georgie Enthusiast
But my instant fix-all is to make a bowl of chocolate icing - that will cure anything!

:lol: :lol: I will have to remember that!

I am not a big tuna fan - I used to have a favourite one but it was a flavoured type and has Gluten. But I can search for others and think about this.

Its obvious I have to get back into the kitchen :blink: and start cooking ! Being Dairy Free makes it harder - I like quiches .....groan ... I hate cooking ....

darlindeb25 Collaborator

Georgie--I can't remember if you have a problem with soy--if you do, be careful with tuna. I always buy tuna in water and that water usually is a broth made with soy. Here in New York, I have only found Bumble Bee Tuna in foil pouches to be free of soy. Sounds like you may not try the tuna anyways. ;) I always have my ricecakes at hand with my peanut butter--not sure I could survive without my peanut butter!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I second that vote for Chocolate Icing!!!!!

I cook a lot & then freeze meals in glass containers with plastic lids, then I can take one with me or take out of freezer take off lid, place glass plate on top & heat in the microwave.

A quick dish is to saute onions, garlic, celery, & what ever veggie you have & then to stir in cooked rice. If you want you can add cooked chop meat to this. Then I take a baked sweet potato (they freeze well) mash it up with a little brown sugar put in bottom of freezer bowl, put rice mixture on top, label with masking tape & a sharpie & pop into the freezer.

Yes, it is all easier when you cook yourself!! ;)

georgie Enthusiast

Back from my day and a much happier person tonight ! I found the gluten-free bakery and have gluten-free pasties, sausage rolls, lamingtons, cup cakes, choc cake, choc peppermint slice, tacos, corn chips and lollies !!!!!!! And have found that they ship ! All hand made on the premises by a qualified cook. Also stocked up on nuts and other healthy goodies. Ahhh ....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.