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Gliadin Antibody


Bellasmama

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Bellasmama Apprentice

My daughter (who is only 14 months) has had a lot of blood work done and we are getting them back slowly one at a time. The latest one was the Gliadin Antibody it was out of range High >100 U/ml. What does this tell me?

We are still waiting for the celiac panel and other results which should come tomorrow or Wednesday. She also has an endoscope schedualed for the 26th.

The results we got before these said her white blood count was up.

Why does it take so long to get results?!?! ugh! :( They did a lot of stool samples and they all came back okay....no parasites or anything.

Her symtoms are MAJOR constipation, extremely bloated stomach and loosing weight.

I'm still having a hard time really thinking its Celiac. Everyone seems to be so sick after having something they shouldnt and Bella has never been really sick....lathargic yes...but never threw up and has never had diahreah. I'm so confused. :(


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Disney323 Apprentice

Hello,

I am in the same situation as you. My son is 16 months old and has just been diagnosed w/Celiac. When the Dr. mentioned she wanted to test for it I couldn't even beileve it because he's never had any symptoms that would appear to be Celiac. His only symptom is that he doesn't enjoy eating and that he is only 19 lbs. Well, his test came back elevated (I believe 98 was his # when the normal is about 19). He had his biopsy done this past Friday and we are still waiting for results (but we are almost certain it's celiac since the dr. saw bumps in his intestine.) The biopsy is the only official diagnosis of celiac. I am still in a bit of denial as there is no family history (and it's hereditary) and he is such a happy and energetic baby. I hope that your dd doesn't have it but I know that these message boards are a great resource. I know there is a lot of support on here and I'm sure I'll spend a lot of time on here asking questions! Best wishes to you and your family.

Kibbie Contributor
My daughter (who is only 14 months) has had a lot of blood work done and we are getting them back slowly one at a time. The latest one was the Gliadin Antibody it was out of range High >100 U/ml. What does this tell me?

We are still waiting for the celiac panel and other results which should come tomorrow or Wednesday. She also has an endoscope schedualed for the 26th.

The results we got before these said her white blood count was up.

Why does it take so long to get results?!?! ugh! :( They did a lot of stool samples and they all came back okay....no parasites or anything.

Her symtoms are MAJOR constipation, extremely bloated stomach and loosing weight.

I'm still having a hard time really thinking its Celiac. Everyone seems to be so sick after having something they shouldnt and Bella has never been really sick....lathargic yes...but never threw up and has never had diahreah. I'm so confused. :(

Though my daughter did eventually start throwing up she had what the Dr.'s called atypical symptoms.

1. She never had diahreah but was constipated

2. Her stomach was not bloated (until the week that we had the biopsy done)

3. She began to loose weight she was in the 95% at her 15 month check up and at her 18 month checkup (the day before her biopsy) she was in the 50% (dropped weight)

Other than that she was a bit grumpy and extra clingy and whiny!

3 days after her biopsy (3 days after going gluten free) I had my happy 18 month old daughter back! If she does end up having Celiac at least it is something that can be controlled by diet and not pumping a ton of medications into her little body!

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
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    • Scott Adams
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    • Scott Adams
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