Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Did It All Begin?


Lailalachina

Recommended Posts

sugarlust Newbie

i think my gluten intolerance may have started after i had bacterial pnuemonia back in mid 2004 - after recovering from that i started having mild stomach probs, always thinking i had food poisoning or it was from drinking Bad alcohol (i used to make home brew spirits and they were pretty dogdy for a while! lol) Or thought it may have been from the high dose of antibiotics i had to take when i had pnuemonia. and then a few months later i would eat maccas for example and always be holding screams in and begging to stop at a gas station for the toilet on the way home etc and then it went from a few times a week to many times a day no food was safe had cold sweats, fevers, labour-like stomach cramps, nauesu, all the regular stuff and sometimes passing out b4 i went to the bathroom or a mixture and thinking : do i get a bucket, go to the toilet or lay down incase i pass out! lol at that stage i thought i had stomach ulcers and the doctors werent intestested in doing any tests, just told me to eat 'bland foods' and hope for the best!

i have Always had Huge sinus infections and asthma my whole life, i have had glandular fever twice (once when 14 and once again just last year!) doctors tell me u can only get it once tho showed up in blood work Strongly both times i had it tho? anyways i do think my 'celiac problems' (havent been diagnosed, bloodwork was negative, not doing any biopsys) all 'started' after i got pnuemonia, stressful time on the body not to mention the mind!

~gluten free since 25th april 2007!~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heatherlm Newbie

Hello Everyone,

I am also a newbie. I was diagnosed with Celiacs on 3-19-07.

I have also looked back over years of feeling bad most of the time, lots of stomach unrest, tired, grumpy, depressed, anxious and strange pains at odd places in my body. I ended up in the hospital in November, 2005 with severe diarrhea and dehydration. I remember the reason we didn't go to the hospital sooner was because my husband and I were used to stomach upset in me. I have been called a hypocondriac, I have been called someone who needs attention...etc. by so many of my loved ones. Anyway, I had salmonilla poisoning and was in the hospital for 6 days. I had a colonoscopy that found several benign polyps. The official diagnosis was colotis by food poisoning.

Since then I have been sicker than ever and just blamed it on the colotis. I've had so many drs tell me to just take better care of myself. I finally had enough and the family dr told me there was nothing else she could do (all she had done was give me prevacid) and basically made me feel like I was crazy. She told me to go to the emergency room, if I really felt as bad as I was making it sound. I did just that and they referred me to my life saver, the gastro dr that in one visit spent 45 mins truly listening to me. He ordered an ultrasound and endoscopy and low and behold two weeks later I had a diagnosis.

I do think I've always had celiacs disease, but the colitis really intensified the symptoms. My greatest source of guilt is that my little boy has stomach issues and I had him "checked" 3 years ago (not knowing about celiacs) and since they said everything was fine I just assumed he and I were the type of people who had stomach issues, and nothing could be done. I know better now and have had both children tested, awaiting results to the blood tests.

Thank you for letting me ramble and get things off my chest, I just feel so relieved that I have a reason for all of this. Maybe I'm not crazy after all! Then again, maybe I am. :lol:

foxglove Rookie
I had various vague symptoms until my last pregnancy brought on the major "D".

I have read articles that have shown a link between QUITTING smoking and onset of Celiac symptoms.

L.

That is interesting about the quitting smoking link. I would love to read more on that if you happen to remember where you saw those articles. I just got diagnosed and really want to quit smoking, but I'm not sure if I should wait a bit or not - I have enough to stress about right now without taking away my normal stress-reliever! But I also want to do everything I can so I can heal - especially since sometimes my pain is worse when I smoke. Are there any former smokers out there who know how quitting affected celiac symptoms? Or current who feel the link between smoking and symptoms?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.