Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction After Touching Foods ?


wildones

Recommended Posts

wildones Apprentice

My kids (I have 8 yr old triplets all 3 have celiac disease or gluten intolerance) made a project at school that had pretzels, oreo cookies, saltines and licorice of all things :( used as building materials. My kids know better than to eat any of those things and they said they washed their hands several times afterwards. One of my boys, the one with the most severe problem has had diarrhea for the last 3 days. He also has other major GI problems too- short bowel syndrome so it can be hard to say what is the source of his problems sometimes.

Has anyone seen a similar reaction to/problem with touching foods ?

My kids are hand washing experts (better than almost everyone I know :P ) because of all the medical issues we have dealt with.

The food challenges at school have been dealt with, but this is a new one to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'd look for another source of the problem. Even fine or liquid gluten cannot be absorbed through the skin (molecules are too big), much less gluten in the form of cookie crumbs or such. He might have gotten some into his mouth accidentally, but he did not absorb it through his skin.

richard

gf4life Enthusiast

I know that they say that gluten cannot get into the intestines via the skin, but I have had reactions to touching gluten foods. I also wash my hands thouroughly after touching the offending foods, but still get a reaction. I think it is that the gluten is just very hard to wash out of the skin. So some residue must be there the next time I touch my own food. My solution is not always possible. I try not to let my kids or I touch any gluten. I have the problem with myself almost every week in Sunday School. I work in the nursery and the snacks are filled with gluten. I have to serve it, which is fine, but then I have to take care of the kids who have gluten all over their faces, hands, crumbs on the tables, and the toys, and the nightmare never ends! I would love to just say no to working in there, but I'm the boss. They put me in charge a few years ago, before it was a problem. I would love to step down, if someone else would take over for me, but our church is very small and I just don't see it happening yet.

At my daughter's kindergarten class I have to make a gluten-free alternative every week. They do a food/cooking project every Friday. So far it has been biscuits, celery with peanut butter and Alphabits cereal, a peanut butter playdough with powdered milk and graham cracker crumbs, and last week it was graham cracker "buses" frosted with yellow coloered whipped cream and chex cereal windows and mini oreo wheels. This week it is apple turnovers! I don't let my daughter touch the items the other kids are using. I bring everything for her that she needs to make the project gluten and dairy free. The teacher is very helpful and reminds the other kids not to touch my daughters things. It has taken a lot of preparation, but one good thing is that it is getting me busy trying new gluten-free recipes that I haven't been brave enough to try yet. :rolleyes:

I'm curious what the project was that they were making. Almost all of the things on there could have a gluten-free alternative that is almost the same (except the licorice, but I have found a rolled up fruit-by-the-foot or fruit roll up can work if you need it that bad). You have to get creative sometimes. I know it is triple hard for you, since you've got the three the same age and the one with lots of health problems. I have found that the older grades don't do so many food related projects. So my boys only need special gluten-free foods brought to school a few times a year.

Maybe the next time they have a gluten filled project come up the kids can wear plastic gloves so they don't have to actually let the gluten come in contact with their skin.

God bless,

Mariann

Guest gfinnebraska

The only time I have had a reaction was when I was making a lot of cookies and breathed in the air-born flour. I don't think I have ever had a reaction touching it.

I would be interested in hearing other opinions on this. Thanks!

hapi2bgf Contributor

I know I have heard everyone say you can't absorb Gluten through your skin, but I know my hands split open and bleed whenever I touched Gluten. I do not have DH. Now I wear gloves when touching any foods that contain gluten. I do not recall an intestinal reaction, but the last touch reaction was close to a year ago.

tarnalberry Community Regular

You can have contact dermatitis from gluten that is not related to being celiac as well.

wildones Apprentice

Thanks for your replies. My son who has had diarrhea does not have DH. I will next time make it known to the teachers that they can't even touch things with gluten in then, if I had known they were doing this, I would have had them use the gloves like suggested. I suppose it is possible that he didn't get his hands clean enough to get rid of all of the gluten maybe ?

The project they made was a Roman road. It would have been expensive (but worth it) for me to provide alternatives for them to use. We have to bring food to everything we do and it gets really expensive for some things, especially since a lot of places won't give you any kind of break for not utilizing the food provided :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

Hey there,

this is interesting. Just a few weeks ago my mother sent me a letter from germany with an articel from the newspaper. They were talking about a doctor who finds out allergies and intolerances with "Kinesiologie". I don't know the english word for it. But "Kinesiologie" is very widespread over there. Well, what they do is: They have different glass tubes shut with a lit. So nothing can come out of these glass tubes. Inside are pills with the allergen like wheat or so. The patient lies on the back and the doctor puts one glass on his belly. Then the patient has to lift one arm straight in the air and the doctor tries to push the arm down to his side. If the patient is strong enough to hold his arm up, there's no reaction to the substance in the glass. If the arm goes down, the patient also will show a reaction to the substance in the glass. After they tested all substances, they open the glasses with positive reaction, take one pill out and put it on your tongue, to make sure, the result was right. In the article they didn't say what reaction will show then. But that's kind of amazing. Unfortunately i've thrown it away. So i could've translated it word for word.

Greetings, Stef

sashabetty Explorer
Then the patient has to lift one arm straight in the air and the doctor tries to push the arm down to his side. If the patient is strong enough to hold his arm up, there's no reaction to the substance in the glass. If the arm goes down, the patient also will show a reaction to the substance in the glass.

The idea being that the patient doesn't know what is in which vial, and so the reactions are not biased. There are Americans that use this technique as well, which I have heard referred to as "muscle testing." Some people believe it to be a diagnostic tool and some people take it as quackery. I find it all interesting but am not really pro or con myself. But I am a believer that your body intuitively knows on some level what is and isn't good for it, so maybe for some people this would work.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    VanessaC
    Newest Member
    VanessaC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.