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Gluten Challenge Time

dally099

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dally099 Contributor
dally099
Posted

well as per the docs orders im now gluten-free for 2 months (except for the 4 days leading up to the dermatologist) im also dealing with a soy allergy so all i can find in the house that has gluten and wheat and no soy is hotdogs and kraft dinner, so this will be my lunch and snacks for the next week and we shall see! i am noticing that their is soy in breads and crackers so we are wondering if it is not celiac/gluten intolerance but rather the allergy to soy, so this is step one of figuring that out.

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hmmm. I suspect that your bloodwork was negative because you were already off gluten for two weeks when the blood was drawn.

How is your gluten challenge set up? Are you just waiting for a noticeable reaction or are you planning to have blood drawn or a biopsy?

Because now that your intestines have healed, it may take months for you to have a noticeable reaction to gluten (it can be a cumulative thing), andas far as I know, it will take minimum of a couple of months on gluten for your bloodwork to be accurate (ditto with a biopsy).

On the other hand, many gluten intolerant people do react IMMEDIATELY to gluten after having been off it for a while.

What about bread and pasta--they don't have soy, do they?

dally099 Contributor
dally099
Posted
  • Author

my doctor is open to diet as a way of testing for gluten/wheat intolerance when the blood work is negative, i am avoiding soy (which is in most breads) but not in pasta. he wants me to do this for at least a week, im hoping soy is the worst of my problems, we shall see. if i have problems then i am going to see a GI as well as an allergist next. I have a good doc, im also waiting results from enterolab.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'm so glad you have a good doc--that's something most of us haven't seen!

I myself don't have an obvious reaction to being glutened, which means I don't know when I'm getting poisoned until my system can't take it anymore. Then I get DH and very minor loose stools/constipation/bloating, but nothing like what most others here experience.

dally099 Contributor
dally099
Posted
  • Author
I'm so glad you have a good doc--that's something most of us haven't seen!

I myself don't have an obvious reaction to being glutened, which means I don't know when I'm getting poisoned until my system can't take it anymore. Then I get DH and very minor loose stools/constipation/bloating, but nothing like what most others here experience.

im simaler to that it takes me a couple of days, allthough i was up at 4am with a very sore tummy, and very neusaous (pardon the spelling did i mention the brain fog?) i had terrible brain fog yesterday and headaches. ugh i dont think i could keep this up long enough if the GI tells me i need to for a biopsy, i can live happily begin gluten-free without a diagnosis if i know that i wont feel this way. oh did i mention the hot flashes im sure the D isnt far behind!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Did you feel better off gluten, or do you think there is still something else causing problems?

dally099 Contributor
dally099
Posted
  • Author
Did you feel better off gluten, or do you think there is still something else causing problems?

oh i feel much better off gluten, i woke up this morning nausus w/ a sore tummy and i have gas so i know the D is coming its just that i have an obvoius allergy to soy and soy is in everthing including lots of breads and crackers and such so we thought that could be the culprit, but my symptoms of that are different in that i swell and get hives. so my doc believes in the diet being the best sign of things so after 2 months of being gluten-free he wanted me to go back to eating it for a couple of weeks and see what happens, but its tough to find things that dont have soy in them, even most cerieals have it.

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