Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet


Guest AlabamaGirl

Recommended Posts

Guest AlabamaGirl

In researching celiac disease, I came across several websites touting the Specific Carbohydrate Diet (SCD) as being superior for celiacs, seeming because it cuts out all processed, starchy foods -- supposedly the gut heals better when doing this. (You can go to this site to read a very opinionated article: Open Original Shared Link

Has anyone actually tried this? If so, what were your results? I'm very interested in opinions and experiences.

Gosh, I would just love to once again have excellent health. The diet sounds pretty restrictive, but if it works ...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator
In researching celiac disease, I came across several websites touting the Specific Carbohydrate Diet (SCD) as being superior for celiacs, seeming because it cuts out all processed, starchy foods -- supposedly the gut heals better when doing this. (You can go to this site to read a very opinionated article: Open Original Shared Link

Has anyone actually tried this? If so, what were your results? I'm very interested in opinions and experiences.

Gosh, I would just love to once again have excellent health. The diet sounds pretty restrictive, but if it works ...

There are several people on here who have tried it. I am on a modified one, actually more the Paleolithic diet (the way we ate as hunter-gatherers for millions of years) which goes a step beyond SCD, but I'm eating some rice. I don't use dairy and homemade yogurt is a big component of Elaine Gottschall's diet. Her book describing the diet is called "Breaking the Vicious Cycle" and is available in paperback. I will say that for me, as I seem to react to a LOT of foods or just eating in general, the Paleo diet has helped me. It has only been two months, however, and I'm still having ups and downs. Hopefully others will post regarding the SCD. I would say if you are symptomatic still it is worth a try. In her book she says to try it and be strict for one month; you will know then if you feel better and if so to continue for the full year. (her recommendation) After a year I believe she says you can begin putting foods back in. Good luck to you!

lisa

corinne Apprentice

I, too, am on the Paelo diet. I have collagenous colitis, not celiac, but collagenous colitis is also triggered by gluten (among other things). I started by going gluten free which helped some, but still had frequent D. I then tried the specific carb diet, but finally realized that dairy was causing problems. I finally cut out dairy too and things are more or less under control, just one imodium in the morning. The specific carb diet is worthwhile trying if gluten free doesn't work. There's several threads here from about 8 months ago.

JNBunnie1 Community Regular
Has anyone actually tried this? If so, what were your results? I'm very interested in opinions and experiences.

Gosh, I would just love to once again have excellent health. The diet sounds pretty restrictive, but if it works ...

Um, I never tried the specific carbohydrate diet, I just went crazy with protein and healthy fats at one point and felt way better. You know, all organic produce, organic beef and chicken (and lots of it!) Lots of avocado and coconut oil, eggs and raw olive oil, lots of raw milk and yogurt. I have to admit I healed faster than a lot of people, with less effects as time went by when I get glutened. I was only 'sick' for less than six months before I figured mine out, a lot of people have been sick for years and years, so it takes a lot longer to heal. I do know that most bodies function better without any processed grains or sugars, including white rice and corn and potatos. i would only add a little of these back in as you heal, there's a lot about grains on Mercola's website, he's one of the current 'health gurus', if you will. I think a lot of what he says makes sense. Hope this helps, sorry I don't know that particular diet.

Guest AlabamaGirl
Um, I never tried the specific carbohydrate diet, I just went crazy with protein and healthy fats at one point and felt way better ... I do know that most bodies function better without any processed grains or sugars, including white rice and corn and potatos. i would only add a little of these back in as you heal, there's a lot about grains on Mercola's website, he's one of the current 'health gurus', if you will.

Yea, we already do this. We began about a year ago getting rid of all processed foods, and we rely on raw milk, cheeses, etc. My childrens' allergy symptoms pretty much disappear when we are eating well, but return with a vengeance when they deviate from whole foods for more than a meal. Yes, it's that dramatic.

We are already pretty gluten-free (me 100%), but I am noticing that I tend to react to all grain-based carbs (corn, buckwheat, oats, rice, etc) just like they contain gluten. The main doctor who has promoted SCD addresses this in some articles. She says that there is some underlying damage that is causing me to do this -- which makes sense. I have read Mercola's opinions, and I'm thinking we're going to try the specific carb diet. I really want healing, and hope this will help.

Are there any celiacs out there who have tried this??? I'll look for some other posts.

Guest AlabamaGirl
I, too, am on the Paelo diet ...

What exactly is this? I went to the website, and it didn't tell much.

oceangirl Collaborator
What exactly is this? I went to the website, and it didn't tell much.

It's the Paleolithic diet- the way we ate for millions of years. No grains at all! No dairy, nothing that needs cooking in order to eat it. Hence, potatos which have a toxin in them and beans which need cooking are out. Most legumes are out. What we killed with sticks (meat, fish, chicken...) and picked off trees and ate from the ground- most veggies, most fruits allowed. Seeds, nuts are okay except for cashews which need to be cooked to get rid of a toxin. No sugars although I think honey is allowed. Grains were only introduced to the human diet about 10,000ish? years ago, therefore most of us are not yet adroit at digesting them as evolution has not yet caught up with this innovation. (Many researchers agree that no one digests the gluten molecule well- it is very large) And we didn't have dairy food then either.

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.