Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Menu Help


jodiegirl

Recommended Posts

jodiegirl Newbie

Hello,

I am new to this forum and this is my first post, hello everyone. .

My husband has Celiac disease along with Crohn's disease. After several years of non-stop stomach problems and countless doctor visits, we determined on our own that he was gluten intolerant. The tests always came back negative, but he has a grandmother with it and the symptoms were identical, except he never lost weight, he would gain it. After cutting out the gluten for two days, he was better and wasn't in the bathroom for five hours (at least) a day anymore and felt like a new man. At this time, he could not tolerate lactose either, over time this improved and he can have some diary products as long as he does not overdo it. He got better and better, with the occasional bout now and then, then a few years later things started to go down hill again. Long story short, he was diagnosed with Crohn's and has battled through the medications and things eventually settled down again, that was about two years ago. The Crohn's took away the fresh salads, most of the fresh fruit, nuts, seeds, beans and other staples from his already limited diet.

Now, he is back to gaining a couple pounds a week, he was slightly overweight to begin with. He is getting very frustrated, irritated and depressed with his condition, I am not sure what to do anymore either. He doesn't seem to eat much for someone his size (6'2", 250-ish) and he has a very physical outdoor job, so it not like he lays around all day. He used to love salad and fresh fruit, but his Crohn's cannot tolerate the fiber and he cannot have any citrus with his current medications.

His typical day is as follows; for breakfast he usually has a bowl of gluten-free corn flakes with soy milk or PBJ toast and coffee, lunch: a turkey or ham sandwich and a couple bananas, and for dinner: usually baked or grilled chicken breasts (or fish), steamed jasmine rice (or an occasional baked potato) and well-cooked carrots (or spinach). He either drinks soy milk, water, or the occasional juice, but no pop. Desserts, if any, consist of Jello with Cool Whip or canned peaches or pears. Snacks, if any, is a piece of cheddar cheese, yogurt, a banana, or hull-less popcorn puffs. This is not every day of the week, but it our basic meal plan for over half the week. On bad tummy-days, he will just eat a bowl of rice for dinner as that is the only thing we have found that doesn't cause a ruckus down below. I have not bought gluten-free cookies, cakes or other goodies in the past year or so, as they would dissappear too quickly.

There is not a lot of variety for him. I am trying to come up with some new meals that he can tolerate and that will satisfy him that won't add inches to his waistline. I love to cook, but my hearty Midwestern style of cooking doesn't lend itself to his needs. Also, we both work away from the home, so time is an important factor. I have run out of ideas and I need some fresh input, can anyone help me? Many thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

I don't know much about a Crohn's diet, but here are some low fibre, healthy ideas.

green and yellow beans, spinach, squashes eggplant and potatoes without the skin, beets and carrots, all cooked.

ripe bananas and melons.

white rice based noodles (both asian and pasta) or other rices (like basmati). wild rice, too.

eggs, white toast

all fish, shell fish...

applesauce or other fruit 'sauces' made without skin

any meats

dairy that he can handle

what about soups, stews, casseroles? homemade baked goods in advance he can take out of the freezer for on the go?

Susanna Newbie

Hey--sorry your husband is having such a tough time. Here are some ideas:

gluten-free noodles (Tinkyada pasta is the best), tossed with a little olive oil, a little Parmesean cheese, and those good Emeril Chicken sausages cut up and tossed in? Does your man tolerate onions? Sauteed onions tossed in would be good too. You could also toss the pasta with Classico Alfredo sauce, or Classico pesto sauce--these will not be as low fat, but you know, he's probably feeling pretty deprived, so he DOES need to take breaks from the low cal/low fat diet sometimes--this provides a HUGE emotional boost in sticking with a diet. I once heard a dietician say that if you can stick to your diet 90% of the time, it's OK, even recommended to splurge 10% of the time so you can enjoy life, and jump-start your metabolism.

What if you tried pizza? You can get good pizza crust thru the mail from Kinnickinnick, or there are some good gluten-free pizza crust mixes you can get at most health food stores. You could top the pizza with a thin layer of Classico Alfredo sauce, then sprinkle on whatever your man tolerates: feta cheese, again the low fat Emeril sausage (or grilled chicken, or salami, etc.)--you can make this low cal if you are creative with your toppings, and stay away from regular cheese, but use feta or soy cheese.

How 'bout grilled portabella mushrooms? You could brush them with italian salad dressing and grill, then serve on a piece of toasted gluten-free bread. YUM! Or, serve with sauteed mushrooms, and put a baked potato on the side.

Gluten Free Pantry sells a terrific angel food cake mix. I found it on www.amazon .com. It is fat free, and with a little cool whip or canned fruit, that would be a wonderful dessert for your guy.

Also, in the kosher section of your regular grocery store, look for the kosher macaroons--read the labels, but they're usually gluten-free, and small, so if you put say 4 of them in his lunch, he has a treat, but he also has portion control--and I've heard coconut is even good for twitchy guts.

Good luck,

Susanna

Susanna Newbie

Oh, Jodiegirl--I thought of one more idea:

Low fat omelet: whisk together one whole egg, 2 egg whites, salt, pepper, maybe a little chopped chives and cook in an omelet skillet with just a teaspoon of butter or margarine. Fill the omelet with one slice of Veggie Singles soy cheese, which actually tastes pretty good and melts nicely, and fill with whatever he likes or can tolerate (spinach? sauteed mushrooms? canned chili? A lot of people on these boards use Hormel chili--read labels). Pesto sauce is GREAT on omelets.

Let us know how it goes.

Susanna

jodiegirl Newbie

Thanks for the great ideas, they should help me out a bit of the rut I am in. The really tough thing to stay away from is Fiber (which he cannot tolerate at all at the present time), especially when I try to use fresh ingredients. I did try grilling Portabellos for him once, he really loved them, but they really tore him up (he probably just over-indulged), so I have been shying away from that. I will try to find that GFP Angel Food Cake mix, sounds like he would love it. Thanks again for your suggestions, if you have any more, please let me know- all are appreciated.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,900
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.