Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shingles (zoster) And The Immune System


UR Groovy

Recommended Posts

UR Groovy Explorer

Hi,

I'm a little concerned, but not freaking out by any means. I believe I'm having another shingles outbreak. I'm going to see my PCP tomorrow, so there's no urgency for an answer - I'm just wondering if anyone has experience with this:

Does one need to be immunosuppressed in order for this virus to crop up again, or can it just happen?

When I was 2 years old, I contracted the Herpes virus (not genital). It spread to my lungs & I was on life support and in a "steril room" for 2 weeks. My family had to wear hazardous materials clothes and masks to visit me. I actually have a slight suspicion that's one of the reasons my body rejects so many things - gluten, for example.

I haven't had so much as a cold sore until 2 years ago when I was on a 7 month course of "treatment" with steroids (Prednisone). I had a major outbreak - though, not near as bad as when I was a toddler.

For the last couple days, I've had pain near my spine & I have a wrap-around rash like I did when I was on the steroid. I'm almost certain it is shingles. The problem is: I'm not immunosuppressed right now. I'm not sick - in fact, in general, I feel great.

I understand we're not doctors here - I'm not looking for a diagnosis. I'm almost certain this is what it is. Just wondering if my immune system is crashing. I've heard that once you've had herpes, the zoster can crop up whenever. Maybe I'm just venting - another month with wrappings around my waist & pain.

I'm not sure which category this would go into. I'll try this one, since it's not gluten related, but is related to the immune system.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

I got shingles when I was healthy, BUT I was under a lot of stress at the time. I was told that stress can cause a break out as well.

I've not had another breakout of the rash, but I am having neuralgia of my skin (wide areas of my arms, back and abdomen and a little on my neck). A naturopathic practitioner has said she thinks it's related to the shingles that I had, but like you I only had the rash on a band on my back around my waist (like a belt) and this is over a much wider area.

I had chicken pox as a child, so that's where my shingles came from originally. :(

Fiddle-Faddle Community Regular
I got shingles when I was healthy, BUT I was under a lot of stress at the time. I was told that stress can cause a break out as well.

I've not had another breakout of the rash, but I am having neuralgia of my skin (wide areas of my arms, back and abdomen and a little on my neck). A naturopathic practitioner has said she thinks it's related to the shingles that I had, but like you I only had the rash on a band on my back around my waist (like a belt) and this is over a much wider area.

I had chicken pox as a child, so that's where my shingles came from originally. :(

Same with me--I was majorly stressed when I had shingles, but otherwise healthy.

What may have also contributed, in my case, was thimerosal-preserved inoculations I received 5 weeks before coming down with the shingles, but I'll probably never know for sure.

Shingles are the pits, aren't they? Hang in there, eat lots of sweet red peppers (if you are not sensitive to them, that is), or hot r edpeppers if you like'em, and try to find things that make you laugh as much as possible (old Groucho Marx movies, etc)!

UR Groovy Explorer
I got shingles when I was healthy, BUT I was under a lot of stress at the time. I was told that stress can cause a break out as well.

You know, I ruled that out at first, but just remembered that I had a very stressful event Thursday night. Maybe it triggered something. Thank You

Shingles are the pits, aren't they? Hang in there, eat lots of sweet red peppers (if you are not sensitive to them, that is), or hot r edpeppers if you like'em, and try to find things that make you laugh as much as possible (old Groucho Marx movies, etc)!

Awww - You're sweet ! I do have red bells. I just started Acyclovir, so, hopefully, that'll stop any progression.

Anyway, it's good to know that I'm probably not falling apart at the seems. Shingles are the pits !

dlp252 Apprentice

You're welcome! Yes, it's unanimous, shingles are the pits, lol!

UR Groovy Explorer
Shingles are the pits, aren't they? Hang in there, eat lots of sweet red peppers (if you are not sensitive to them, that is), or hot r edpeppers if you like'em, and try to find things that make you laugh as much as possible (old Groucho Marx movies, etc)!

And, while shingles are the pits, I hope they don't go into the pits. That would really suck ! :lol:

You said something about laughing - thanks Fiddle-Faddle. A little comic relief goes a long way, even if it's only funny to me.

Fiddle-Faddle Community Regular
You said something about laughing - thanks Fiddle-Faddle. A little comic relief goes a long way, even if it's only funny to me.

In that case, check this out:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbabe1968 Enthusiast

UGH! I had shingles on my face and in my hair when I was pregnant with my 2nd child. I was MISERABLE!! they are the WORST!!!

I still have scars from them and the "shadow pain" and he's now 5 years old!

I HATE SHINGLES.

I have heard that stress brings them on as well.

Hoping you heal quickly....:(

MGoers37 Rookie

Yeah shingles occurs when the immune system is being suppressed in some way. Normally when infected with the virus, your body fights it off and the virus lays dormant, while the immune system periodically prevents it from coming back. Most people that get the chicken pox never get shingles until they are elderly and their immune systems are suppressed. Unfortunately some people aren't as good at fighting off the virus and if there's some weakness to the immune system there's a chance of it coming back. The immune system can be weakened by stress quite easily, so i guess the best advice would be to not worry about it/chill.

I got the vaccine for the pox as i hadn't gotten chicken pox up till i was ten years old. at that point the docs decided it would be a good idea to get the vaccine so i don't get a more serious version of pox, like shingles. to this date i've never gotten chicken pox or shingles (knock on wood) but I wouldn't be surprised if i got it later. viruses mutate so often the strain i was vaccinated against is probably long gone.

oh and for further reading

Open Original Shared Link

everyone knocks wikipedia, but i haven't really found anything wrong with it yet...

MGoers37 Rookie

i've noticed the shingles rash/blisters look a lot like what happens in dermatitis herpetiformis, another disorder from eating wheat (which i have...joy).

so maybe get tested for that too?

Fiddle-Faddle Community Regular
i've noticed the shingles rash/blisters look a lot like what happens in dermatitis herpetiformis, another disorder from eating wheat (which i have...joy).

so maybe get tested for that too?

I noticed that, too!

In my case, the differences were that DH (on me, at least) was on both arms, and perfectly symmetrical, and there was no nerve inflammation or nerve pain. The shingles were only on one arm (going from my spine all the way to my hand, terrible place for a violinist), and the nerve pain was unbearable.

And I had the post-herpetic neuralgia, too, but only for about a year.

UR Groovy Explorer

Well, it's not shingles. It's actually really embarassing, as I shot up all the alarms and people were really concerned. I was thinking that the pain wasn't nearly as bad as it was when I did have shingles. I think that I had two coinciding problems. I think the pain was probably a gallstone that I pitched - probably into the bile duct. I remember having the phantom pains also for about 6 months after my actual outbreak a few years ago - and scars for a long time.

So, I'm now going to fess up and tell you all what really happened, at the risk of lookiing like a complete idiot. So, I go to the doctor Thursday morning. My doctor is completely perplexed. That's not shingles The rash is on both sides - uniformly. Sends me to the dermatologist. I say "Call Doctor House - we need to solve this mystery" . She says "Doctor House can't help us ... he's in New Jersey". So the derm, after 20 minutes of perplexed looks and concern says, "Have you been in a Hot Tub?" Bingo ! I have been in a hot tub. She tells me - you probably have Hot Tub Folliculitis - it's caused by an improper mix of chemicals that cause a staph bacteria to lodge in your follicles. Nice!

Sorry to have caused concern needlessly - I do feel like a complete idiot !

I have to say, however, that "hot tub folliculitis" :huh: really does suck, but not nearly the horror of shingles. Well, at least maybe some people may have seen this thread and will be more aware if they develop shingles of the progression and such.

Take Care - I'll try and not do this to you guys needlessly again.

dlp252 Apprentice

Not to worry...I always enjoy talking about my pain no matter what the cause, lol. :lol: We've had a nice discussion about shingles anyway. :P

gf4life Enthusiast

I'm glad it wasn't shingles, and I hope you feel better soon. I did have something to add about shingles though.

Both my boys have had shingles. They had the chicken pox when they were 3 & 1 1/2 (oldest got it and gave it to the younger...) and my youngest son got a mild case of shingles when he was about 3. They looked like individual blisters and he only had a couple, but the pain was horrible. The doctors just said it's shingle, but because it was so mild (really only about half a dozen blisters) they did nothing. He had pain where the blisters had been for over a year.

My older boy got a bad patch of shingles that covered one side of his belly when he was experiencing a lot of stress near the end of 4th grade. I took him to the doctor the same day he broke out and they were glad I did. I was told that you have to get medication for the nerve pain within the first 24-48 hours after breaking out or else there is no way of stopping the long term effects of the nerve pain. He was on the meds for a month and he had little to no long term pain. I was very glad I rushed him into the doctor. I knew it was shingles as soon as I had seen it. My nephew used to get it quite often ever since he was a small child because my sister had chicken pox when she was pregnant with him. He would break out at least once a year!

kbabe1968, you might want to watch your child for breakouts. He could have been exposed to the herpes zoster virus before he was born and most likely has it in his system. Not sure if it is only bad for the baby for the initial chicken pox breakout or if having a shingles attack affects the baby the same. What did the doctors say when you were pregnant?

Also my daughter, who was due to go in for her inmmunizations for kindergarten, was exposed to the virus from my son's shingles two weeks earlier and so they would not give her the immunization. She did get the chicken pox from his shingles (broke out a few days after her doctor's appointment). They said the shot would have made her case of chicken pox worse, since she already had it in her system.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,922
    • Most Online (within 30 mins)
      7,748

    Amber Gumm
    Newest Member
    Amber Gumm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.