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Just Diagnosed

palfour

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palfour Newbie
palfour
Posted

My son was just diagnosed with Celiac. He just turned 14. I've been taking him to an endocrinologist for his height. They did a screening test, which came back positive for Celiac. Then he had an endoscopy, which confirmed it.

He has not seen a nutritionist yet. Our appointment is scheduled in two weeks.

In the meantime, I would like to know if you know of any support groups in Nassau County, NY

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Guest lorlyn
Guest lorlyn
Posted

Just wanted to say hi and welcome :rolleyes: I live in Alabama so do not know of support goups up there. There seems to be no support groups down here but this forum has been the best support yet. My 10 year old daughter was diagnosed in Nov. 06 and has done really great understanding the situation she is in, but my heart breaks for her to have to deal with this the rest of her life. We are pretty sure my husband has it to just never got him tested, did not want it on his medical records. My daughter dietitian did not know very much about all the things she could not have or touch or be around I have learned most everything I know from reading this site every night for months. Good luck to you and your son it is hard at first but it will get easier over time. If you have any question just ask here and some one will help you

darlindeb25 Collaborator
darlindeb25
Posted

Palfour, I'm not sure where you live in Nassau. I live in Suffolk County and we have a great support group which meets in West Islip. We do have many members from Suffolk County. We meet on Higbie Lane at an old elementary school that is now a community center--the first Tuesday of the month, usually. If you would like more info, just pm me--ok.

You should attend our gluten free vendor fair on the 29th. It's being held at Farmingdale College in Rt. 110. We have over 50 vendors coming and Dr. Peter Green will be there speaking--2 sessions. He is a wonderful speaker.

There is a great book out called, "The Gluten Connection" by Shari Lieberman, after 7 yrs of being gluten free, I still learned things I didn't know. Also, "Gluten Free for Dummies" is a very good book.

Feel free to email me for info about our group or the vendor fair.

joelcontrol Apprentice
joelcontrol
Posted

hOPE FULLY YOU CAN FIND OUT ABOUT THE nassau groups

1 meets at winthrop outreach center 4 times a yeear at 730 pm on a friday

i dont know when the next meeting will be,

The Rock group much smaller mmets at the library in Lynbrook a few times aa year.

i think they are meeting at 7 to 8pm at the lynbroook library on april 30

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      Accuracy of testing concerns

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