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Lab Results

pedro

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pedro Explorer
pedro
Posted

Hello everyone.

I finally received the results from Entero Labs here they are:

Fecal Antigliadin IgA 63 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 71 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 421 Units (Normal Range <300 Units)

Fecal anti-casein (cow

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Eriella Explorer
Eriella
Posted

Congrats at finally getting your test results in! I would definitely test your daughters, as well as your siblings and parents, because the gene came from somewhere and can affect them. It is better to know than to be in the dark.

Guest j_mommy
Guest j_mommy
Posted

It's a relief to finally know, isn't it!!! I was Dx'd 4-1 and have a biopsy on 5/15 and then can start the gluten free diet...thank the lord b/c now that I know what makes me sick...it's hard to eat it! But as far as the kids go...

As soon as I got my blood work back I had my son tested....he's 2.5 and hasn't shown symptoms but from what i hear not all people do. I wasn't worries so much for myself but for him. He's neg now but I have to have him tested every 2 years. I'm thinking baout getting the gene test done on him to find out if he has the gene or not....that way we wouldn't have to poke him unless necesary! I know I get this from my Dad's side and my sib;ings are being tested as we speak. Better to know early! I would get your kids tested...better safe than sorry. I thank God everyday that I found out about this at 24 and can start treating it now and hopefully ward of some other issues! Good Luck!

hathor Contributor
hathor
Posted

Nearly everyone in the US has gluten intolerance or celiac genes (only exception, some of Asian heritage). One-third have the celiac genes. Obviously more is involved in having a problem than simply having these genes.

If it were me, I would test when there are symptoms. That is the way my kids have decided to handle it (they are old enough so it is up to them, not me).

Of course, there is no harm to testing everyone periodically, except to your bank account :lol:

Ursa Major Collaborator
Ursa Major
Posted

Pedro, congratulations on finally knowing. Obviously you have intestinal damage, because you have malabsorption.

I would definitely test the children as well. It is much better to test BEFORE there are obvious symptoms. A lot of people find that when they eliminate gluten, symptoms that weren't recognized as such go away.

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  • Recent Activity

    1. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
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      My only proof

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      Is this celiac?

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      ttg iga high (646 mg/dl) other results are normal

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  • Posts

    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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