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Lab Results

pedro

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pedro Explorer
pedro
Posted

Hello everyone.

I finally received the results from Entero Labs here they are:

Fecal Antigliadin IgA 63 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 71 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 421 Units (Normal Range <300 Units)

Fecal anti-casein (cow

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Eriella Explorer
Eriella
Posted

Congrats at finally getting your test results in! I would definitely test your daughters, as well as your siblings and parents, because the gene came from somewhere and can affect them. It is better to know than to be in the dark.

Guest j_mommy
Guest j_mommy
Posted

It's a relief to finally know, isn't it!!! I was Dx'd 4-1 and have a biopsy on 5/15 and then can start the gluten free diet...thank the lord b/c now that I know what makes me sick...it's hard to eat it! But as far as the kids go...

As soon as I got my blood work back I had my son tested....he's 2.5 and hasn't shown symptoms but from what i hear not all people do. I wasn't worries so much for myself but for him. He's neg now but I have to have him tested every 2 years. I'm thinking baout getting the gene test done on him to find out if he has the gene or not....that way we wouldn't have to poke him unless necesary! I know I get this from my Dad's side and my sib;ings are being tested as we speak. Better to know early! I would get your kids tested...better safe than sorry. I thank God everyday that I found out about this at 24 and can start treating it now and hopefully ward of some other issues! Good Luck!

hathor Contributor
hathor
Posted

Nearly everyone in the US has gluten intolerance or celiac genes (only exception, some of Asian heritage). One-third have the celiac genes. Obviously more is involved in having a problem than simply having these genes.

If it were me, I would test when there are symptoms. That is the way my kids have decided to handle it (they are old enough so it is up to them, not me).

Of course, there is no harm to testing everyone periodically, except to your bank account :lol:

Ursa Major Collaborator
Ursa Major
Posted

Pedro, congratulations on finally knowing. Obviously you have intestinal damage, because you have malabsorption.

I would definitely test the children as well. It is much better to test BEFORE there are obvious symptoms. A lot of people find that when they eliminate gluten, symptoms that weren't recognized as such go away.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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