Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish Me Luck?


jaycee30

Recommended Posts

jaycee30 Apprentice

Well, I've decided to have a scope done and some biopsies. I had bloodwork done a couple of months ago that was only positive for AGA IGAs. One doc said no celiac, an allergist said possibly celiac and I went gluten-free anyway. It has helped, but every couple of weeks, I am still getting stomach trouble that puts me out of work at times and DEFINITELY subtracts from my life. So I made an appointment with a GI, saw her today, and Tuesday I'm going to have a scope/biopsy done.

I think I have a really good chance of a negative biopsy as I've been completely gluten-free for a couple of months and nearly gluten-free (due to other allergies) for over a year. I explained to the doctor, who is wonderful, that regrdless of biopsy results, I'm staying gluten-free...no matter what tests show, I know I get sick from wheat, etc. But I really want to check and make sure its nothing else, if that makes any sense. She understands and supports that, thank goodness. She is going to take several samples from my upper GI, check as far as she can go and also take stomach/esophegus (sp?) samples. I asked her to PLEASE PLEASE check everything she can "while she's in there"!

Anyway, please wish me luck. I am absolutely terrified of having this done (my personal worse fear is choking, being unable to breathe, etc), but I've read from so many of you that its not bad, that I'm just going to do it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Authentic Foods



Celiac.com Sponsor (A8-M):
Tierra Farm


GEF Explorer

Good luck to you, Jaycee! I don't know if you've had the endoscopy before, but it's not bad at all. Weird to think that someone will put a tube down your throat, but most don't remember much from the procedure due to the drugs they give.

Always a great idea to be pro-active about your health! I hope the test offers you some conclusive results.

Gretchen

celiac3270 Collaborator

Good luck, jaycee.

Try not to worry about the biopsy, cause once it's over, you'll realize that it isn't so bad. About the fear of not being able to breathe, try to remember that when you're going about your everyday activities, you probably breathe mostly through your nose, anyway. Also, this has been performed thousands of times on such a variety of people who haven't had problems with the procedure. Furthermore, they will probably attach a number of sticky pads with wires attached to them to your body (they put about four on me, mostly around the upper cheast area). They use these to constantly make sure that you're all right. Therefore, if you had difficulty breathing, they would see right away that heart rates would go crazy or whatever.

Once again, good luck. You'll be fine.

Best Wishes,

celiac3270

Canadian Karen Community Regular

Good Luck from Canada!

I can remember the last time I had that done, they didn't even use drugs, they just sprayed my throat with something that made it numb. The gagging feeling only lasted a few seconds, then you can relax.... I imagine that now that they give drugs, it would make it that much more tolerable....

Good Luck! I will be thinking of you on Tuesday......

Karen

plantime Contributor

It will be easy. The worst thing was the numbing spray. That stuff tasted like spray paint smells, and I thought it was going to trigger an asthma attack. That is about all I remember. My endo was to look for ulcers, but the doc found inflammationa dn redness, so he biopsied it and found celiac. I had previously been diet-diagnosed. I have been gluten-free since Feb 14, and the endo was Sep 15, so there is a possibility that you still might have damage. I agree that your doc should look for everything possible while she is in there! It is your health, take charge!

tarnalberry Community Regular

Good luck! I'm sure you'll be fine! :-)

MySuicidalTurtle Enthusiast

AWWW! I hope it goes well and wish you so much luck and will think good thouhts for you. Just be calm and it will be over with in no time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
GliadinX



Celiac.com Sponsor (A8-M):
Daura Damm


jaycee30 Apprentice

Wheeeee! Well, its over and all the fuss was for nothing. Thank you all for your support...........it really helped.

One bad note, a medicine I take for MS made the sedative that they give for the scope non-effective for the most part. 4 times the regular dose and I was still awake, so they just went ahead. But, all in all, it wasn't bad (although when it wore off a little bit I was just in tears for some reason).

I've got the pictures....first, normal stomach esophegus (sp?) and small intestine. No ulcers, no inflammation, everything looks great. They took biopsies throughout and that will be back in about a week, but the only thing that the doc thinks will show up is celiac. (nothing terrifying in my stomach like cancer or anything, which was a real fear of mine). She also understands that I've been gluten-free for 2 months, nearly gluten-free for over a year, the biopsy may be normal but can NOT be used to rule out celiacs.

So, I'll let you know what we find...........thanks again!

Jen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,540
    • Most Online (within 30 mins)
      7,748

    Suecon
    Newest Member
    Suecon
    Joined

  • Celiac.com Sponsor (A20):
    Lakefront Brewery


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX



  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):
    Food for Life



  • Upcoming Events

  • Posts

    • Zuma888
      I forgot to mention that exercise also triggers it, except for the period right before I tried the gluten challenge where I could do moderately intense workouts without getting this burning sensation and extreme fatigue for days afterwards.
    • Zuma888
      Hello everyone, I am 30 years old, female, and have Hashimoto's thyroiditis and suspected celiac disease (wasn't able to complete a gluten challenge, but have the symptoms and HLA-DQ8) or at least some kind of gluten sensitivity. When I first got diagnosed with Hashimoto's thyroiditis, I went on AIP and never reintroduced gluten. Whenever I would eat a little bit of gluten I would wake up feeling very old, achy, and unrested, with a burning sensation everywhere especially on my hip bones and chest area. It felt like severe inflammation. This would also happen during stressful times and times where I hadn't been sleeping well.  This symptom had decreased in intensity and...
    • knitty kitty
      @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test.  It looks like he just tested total IgG.   Were you taking any medications or over the counter stuff before the test?  Some can suppress the immune system and cause false negatives.  
    • Fabrizio
      Thanks for your article. 
    • NCalvo822
      Thank you.  Very helpful.
×
×
  • Create New...