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casnco

By casnco
in Doctors

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casnco Enthusiast
casnco
Posted

Hi, I was wondering, after being off gluten for over 3 years, should I see a specialist when my symptoms reoccure? Such as with an accidental glutening? Does anyone on this board see a specialist for maintenance?

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ENF Enthusiast
ENF
Posted
Hi, I was wondering, after being off gluten for over 3 years, should I see a specialist when my symptoms reoccure? Such as with an accidental glutening? Does anyone on this board see a specialist for maintenance?

When I hit three years gluten-free, I'll probably get evaluated again by endoscopy, biopsy, bone density test, etc. As far as glutening, I don't think there is anything the doctors can do for you when this happens. I'm recovering from a bad bout of it myself right now.

Generic Apprentice
Generic
Posted

If you get a severe reaction from glutening, they can give you steroids. They work like a miracle. It happened once to me.

casnco Enthusiast
casnco
Posted
  • Author
When I hit three years gluten-free, I'll probably get evaluated again by endoscopy, biopsy, bone density test, etc. As far as glutening, I don't think there is anything the doctors can do for you when this happens. I'm recovering from a bad bout of it myself right now.

ENF: Your probably right about not being able to anything for us when we get contaminated. Percoset help eleviate the cramping but I don't know any doctor that would prescribe a narotic for prn use. Tee! Hee! I had some left over from my gall bladder surgery and was able to use one when I felt the cramps coming on. I know once they start I can't hardly swallow my own saliva let alone a pill.

Did you read somewhere that you should be retested or is this something you would like to do for peace of mind?

casnco Enthusiast
casnco
Posted
  • Author
If you get a severe reaction from glutening, they can give you steroids. They work like a miracle. It happened once to me.

Generic: I just did a steroid taper and a shot of steroid, I cant remember the name right now. They worked great for a short peroid of time but once they were out of my system the itching came right back. Boo Hoo! How long do you do the steroids for and how much do you take?

ENF Enthusiast
ENF
Posted
ENF: Your probably right about not being able to anything for us when we get contaminated. Percoset help eleviate the cramping but I don't know any doctor that would prescribe a narotic for prn use. Tee! Hee! I had some left over from my gall bladder surgery and was able to use one when I felt the cramps coming on. I know once they start I can't hardly swallow my own saliva let alone a pill.

Did you read somewhere that you should be retested or is this something you would like to do for peace of mind?

Drugs don't really help with glutening - at least the type of symptoms that I had.

As far as getting retested, I've had blood tests since going gluten-free, and the results have been negative - but I know that I've been glutened by BEANO, and the test didn't show any elevated antibodies, possibly it was too little to come out. That test was performed by my GP, not a gastroenterologist.

I would like to get another endoscope and biopsy to see if there is a noticeable improvement in the villi, since it was moderately bad when I first got one for Celiac. In Dr. Peter Green

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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