Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help....really Worried


Jenny1972

Recommended Posts

Jenny1972 Rookie

Can anyone help....really worried. Been gluten free for 4 months. Still waiting for a biopsy to confirm celiacs. For the last week when I go to the loo I pass undigested food. Feeling really weak and tired. No point seeing my doctor as they have refered me to hospital and don't seem to care. Yesturday I has steak for tea and no word of a lie I went poo this morning and it was my steak undigested. Sorry to be so graphic but really worried. Also I had really bad night swats last night. Woke up dripping wet. Whats going on? Any ideas. Comments from diagnosed celiacs would be helpful too. Any of you had this during early stages of gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Undigested food is not uncommon.

What I'm wondering is about the biopsy. Do you know that as you go gluten-free your intestines heal, so if you're gluten-free for the biopsy it will most likely be a false negative?

Are you sure you're 100% gluten-free? Have you seen any changes on the gluten-free diet at all? Have you cut out dairy? Did you have a positive blood test?

gfgypsyqueen Enthusiast
Can anyone help....really worried. Been gluten free for 4 months. Still waiting for a biopsy to confirm celiacs. For the last week when I go to the loo I pass undigested food. Feeling really weak and tired. No point seeing my doctor as they have refered me to hospital and don't seem to care. Yesturday I has steak for tea and no word of a lie I went poo this morning and it was my steak undigested. Sorry to be so graphic but really worried. Also I had really bad night swats last night. Woke up dripping wet. Whats going on? Any ideas. Comments from diagnosed celiacs would be helpful too. Any of you had this during early stages of gluten free diet.

You might want to look into Gastroparesis. It basically means your stomach fails to empty in a timely manner. With you it sounds like the opposite - add there must be a name for that? Some disease name?? Your system is moving the food through way too fast. They have a nuclear medicine test where you eat these loaded eggs and then the take pictures of how long it takes to empty from your stomach. With me it didn't empty for the hour they watched - way too long. I had to take meds to make my stomach process the foods faster. You need to take something to slow your bowels down.

Since your bowels seem to be on hyper mode, you might want to change your diet for a week. Eat things that bind. no ruffage, no acid. like a diarrhea diet. Rice, apple sauce, yogurt, bananas, dry toast. Keep the oils to a minimum. Eat lots of small meals. Like you are eating all day long - at least 6 - 8 meals a day.

I would also take liquid vitamins and Ensure or some other nutritional supplement. If your food is moving through you that fast, you are not processing and getting any nutrients from the food. Should mean you are starving hungry right now.

Go to a new doctor if your current doctor does not see a problem with how fast you are processing that food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    3. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    4. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    5. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.