Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cinnamon Buns, Pizza, Perogies


Jessica04

Recommended Posts

Jessica04 Newbie

Hi there im new..

I just want to start off by saying im 25 and Im always feeling sick :( .. Im overweight but i havent lost my baby weight which i had my baby in 2004.. growng up I tried not to eat to much cause i was always sick with stomac ackes.. its been worse now that I had her I talked to my doctor about this problem but he told me it was my hormones and to eat more flax seed... when I eat certin foods i start to bloat and im just sick feeling.. My Husban and I have been in lots of fights about this cause im always sick even my daughter now 3 asks me if im sick.. and now she starting to say shes sick which i hope she isnt.. but she is bloated and i make her go to the bathroom .. also I carry with me imodium and basicly im always taking them.. Im embarrased.. I hate going anywhere with people Im starting to feel depressed.. could this be Celiac?

cause this makes me feel panicie can this cause an anxiety disorder too?

I been searching online for anything to help me feel better and came across this site.. I asked my doctor to test me.. which he did last thursday im not sure how long it takes but im hopeing to find out the problem with me.. could this be it? and if it isnt dose anyone have anyother ideas what it might be? How long did it take for u guys to get ur test back?

Thanks for reading Jessica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

Celiacs can "start" or flare up after a major trama and child birth or surgery qualify. My Celiacs started after my first child was born too. It took 2 1/2 to 3 years of active health problems to finally get a diagnosis. Many people have 10 plus years of problems before they ever hear about celiacs. Many of us have stories of years of stomach problems, bowel problems, poor health overall, etc. Sound you sound like the rest of us.

Sometimes the post partum depression can hang around for a while too. You might need to ask the doctor about taking something to get past this depression that is starting.

As for celiacs, the test should be back in a couple of weeks. The people on this site know a lot of medical info. You will want to ask the doctor exactly what blood tests were run and what the results were. Another helpful test is for malnutrition. Even though you are eating well, if your body is not absorbing the nutrients you will be malurished which is another sign of celiacs.

If possible, get a gene test done. That is a quick way to know if your blood work is inconclusive whether or not you even have the gene for the disease. The blood work is often inconclusive. I biopsy of your intestines is the way most of us get diagnosed. DO NOT STOP EATING GLUTEN UNTIL AFTER YOU HAVE BEEN TESTED AND BIOPSIED.

If it is possible, find a good health food store and dietician. Start taking higher quality vitamins. The health food store workers or dietician can help you figure out which ones you need. Taking better vitamins daily and replenishing the nutrients your body is not absorbing from food will help you to start getting healthy. I was sick constantly before I saw a dietician and started taking better vitamins. Now I only get sick once in a while.

I hope some of this info helps. Ask more questions and start reading the posts here, you will learn a lot about you body and this disease. (In my opinion, if you have to be sick with something, celiacs would be my choice. Why? No daily medicine with side effects to manage the disease. Follow the diet and you will feel great!)

FYI: If you do have Celiacs, you will need to have the baby checked for it too. This disease runs in families :(

Jessica04 Newbie
Celiacs can "start" or flare up after a major trama and child birth or surgery qualify. My Celiacs started after my first child was born too. It took 2 1/2 to 3 years of active health problems to finally get a diagnosis. Many people have 10 plus years of problems before they ever hear about celiacs. Many of us have stories of years of stomach problems, bowel problems, poor health overall, etc. Sound you sound like the rest of us.

Sometimes the post partum depression can hang around for a while too. You might need to ask the doctor about taking something to get past this depression that is starting.

As for celiacs, the test should be back in a couple of weeks. The people on this site know a lot of medical info. You will want to ask the doctor exactly what blood tests were run and what the results were. Another helpful test is for malnutrition. Even though you are eating well, if your body is not absorbing the nutrients you will be malurished which is another sign of celiacs.

If possible, get a gene test done. That is a quick way to know if your blood work is inconclusive whether or not you even have the gene for the disease. The blood work is often inconclusive. I biopsy of your intestines is the way most of us get diagnosed. DO NOT STOP EATING GLUTEN UNTIL AFTER YOU HAVE BEEN TESTED AND BIOPSIED.

If it is possible, find a good health food store and dietician. Start taking higher quality vitamins. The health food store workers or dietician can help you figure out which ones you need. Taking better vitamins daily and replenishing the nutrients your body is not absorbing from food will help you to start getting healthy. I was sick constantly before I saw a dietician and started taking better vitamins. Now I only get sick once in a while.

I hope some of this info helps. Ask more questions and start reading the posts here, you will learn a lot about you body and this disease. (In my opinion, if you have to be sick with something, celiacs would be my choice. Why? No daily medicine with side effects to manage the disease. Follow the diet and you will feel great!)

FYI: If you do have Celiacs, you will need to have the baby checked for it too. This disease runs in families :(

To be honest I dont think I have depression.. Im just upset on how I feel about not knowing whats wrong with me.. and asking the doctor and him telling me its hormones and I know its not that..

It will be 2 weeks tomorrow since I had my blood test.. how much longer dose it take?

Now that I been tested couldnt I go gluten free now I mean I would like to stop the damage if I am celiac and if i am would there already be damage? I was talking to my mom about this and she has stomac problems too not as bad as me but she always thought it was dairy.. so shes been dairy free for years but she still feels sick.. Ok im rambling.. but when should I expect my results back?

Thanks for reading

Jessica

ravenwoodglass Mentor
To be honest I dont think I have depression.. Im just upset on how I feel about not knowing whats wrong with me.. and asking the doctor and him telling me its hormones and I know its not that..

It will be 2 weeks tomorrow since I had my blood test.. how much longer dose it take?

Now that I been tested couldnt I go gluten free now I mean I would like to stop the damage if I am celiac and if i am would there already be damage? I was talking to my mom about this and she has stomac problems too not as bad as me but she always thought it was dairy.. so shes been dairy free for years but she still feels sick.. Ok im rambling.. but when should I expect my results back?

Thanks for reading

Jessica

Your results should be there soon but DO NOT rely on just those tests. The answer to whether you can start the diet depends on whether you are going to agree to an endoscopy if they are. If you are going to go with the endo you need to wait to be gluten-free, however there are risks of false negatives on the endo so again do not just go by that. If you do not plan on doing the endo then you can go ahead and give the diet a try for a couple of months, that is the true test anyway.

zagadka Newbie

oh man, pierogies...yum. potatoey, cheesey filled lumps of goodness. and kolaczki...mmmmmmmmmm. apricot kolaczki...

sometimes i like to day dream about food...

well, jessica- like others have mentioned...don't rely on the tests alone! many people go this route, maybe for closure or for justification, which is fine. personally, i didn't go that route because i feel that modern medicine and many doctors treat symptoms- not the cause or root of the symptom.

listen to your body!! chances are that if you think you're having a problem with gluten, you are. i don't think you stumbled upon this place for no good reason!

i hope you start feeling better.

Jessica04 Newbie

Well Igot my results back from the doctor he says its not that :unsure: .. so dose anyone know what else it could be? :(

Jessica

gfgypsyqueen Enthusiast

You might want to start a new post and ask for help interpretting the results. It does make a difference on exactly what blood work was done. You may not have had the right test or your resutls may have been a false negative. A lot of people on this site are very good at interpreting results.

Otherwise, there is no harm in doing the gluten-free diet and see how you feel. Many people can't get an official diagnosis and go gluten-free because the diet makes them feel better. Another thing to look at is your hormone levels - estrogene and testosterone. Have your thyroid checked - I think there are three specific things that should be checked. See if you can get the doctor to do more blood work.

Think about seeing an herbalist/kinesiologists. They can help get you on some suplements and feeling better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748

    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.