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Maybe Mom Has It Too

Jo.R

By Jo.R
in Coping with Celiac Disease

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Jo.R Contributor
Jo.R
Posted

My mom was dx with neuropathy and MS (through elimination of other things and lesions). I am reading Celiac Disease A Hidden Epidemic and I am wondering if she really doesn't have celiac disease. She went gluten free for the MS diet and is getting better (she has primary progressive, so this shouldn't be happening). Anyway, she was sometimes cheating on the diet, and this last time she got D like she has never had before. We talked and she is just going to go with the idea that she has celiac. I am going to go through her cupboards, cosmetics, and meds this week. I am excited for her possible better health, and on the selfish side, she cooks, so she will learn all the good recipes. :P

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Guest jokamo
Guest jokamo
Posted
My mom was dx with neuropathy and MS (through elimination of other things and lesions). I am reading Celiac Disease A Hidden Epidemic and I am wondering if she really doesn't have celiac disease. She went gluten free for the MS diet and is getting better (she has primary progressive, so this shouldn't be happening). Anyway, she was sometimes cheating on the diet, and this last time she got D like she has never had before. We talked and she is just going to go with the idea that she has celiac. I am going to go through her cupboards, cosmetics, and meds this week. I am excited for her possible better health, and on the selfish side, she cooks, so she will learn all the good recipes. :P

Hi Jo.R

I was dx'd in 2001 with Lupus and Fibromyalgia. I have been doing the gluten-free diet now for a about 4 months (although I did cheat a little in the beginning) and I am still finding hidden gluten that is causing problems. My symptoms (when I get glutened) range from brain fog to severe myscle and joint pain and fatigue. Needless to say, I don't cheat anymore and if I do get glutened, it's by accident. I also have problems with Maltodextrin, Caramel color/flavoring, asparatame, splenda, and I really watch for Natural flavors (sometimes they can be a hidden gluten).

Hope your mom feels better and I hope I have helped.

Jodi M.

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