Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Non-gluten Sensitivity


mftnchn

Recommended Posts

mftnchn Explorer

I am rather miserable due to the increased sensitivities since going Gluten-free Casein-free 5 weeks ago. Anyone else have their allergies worsen after going gluten-free?

People talk about increase sensitivity to gluten and then discovering other foods they can't eat.

My chemical sensitivity is worsening. Even gluten-free soap for my face leaves a strange sense and headache that I have learned to associate with chemical sensitivity.

And then the eternal fogginess and fatigue that is so debilitating!! (Sorry, I'm discouraged.)

I am being as strict as I can but in my context that is hard. I don't have any options available for gluten-free shampoo, although I'll check next week when I am in Beijing for something else. So I am using gloves and being very careful to not get any in my mouth. Though I am trying to be conscientious about it, it is possible that I do touch my hair through the day before eating something.

Since I was mostly feeling pretty okay prior to going Gluten-free Casein-free other than constipation, this is not too fun.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

I've always had very sensitive skin. I'm thinking now it's been from gluten. My skin has improved so much since going gluten free. It does make you wonder why they have to put gluten in so much. I did read somewhere that people with any autoammune disorder should be allergy tested also. I talked to my doctor about the RAST test. He gave me the list, said he would test me for whatever I wanted. I kind of know what I'm allergic to. When I look at the list, I can't decide for sure. It does seem that many on this site find they have other allergies as well after going gluten free. I also found foods that I didn't do well with before going gluten free that I can eat with no problem now. It was probably because I ate gluten with those foods and blamed the other food.

mftnchn Explorer

I'm reluctant to start down the road of eliminating foods, and am waiting for my allergist to respond via email--I think he must be out of town.

Years ago, I did this, and eliminated food after food and never got any better even though it was clear I was reacting to the foods when I challenged them.

And then for years I have been quite a lot better and not nearly so reactive to everything.

Now I wonder---was the problem all along that I was celiac and was getting glutened by other people's food I was in contact with or in personal products, etc.? And/or that part of my healing process is going to be being hypersensitive for months? I hope not because it is very hard to live this way.

wowzer Community Regular

I did become more sensitive to gluten after going gluten free. I guess it is your body reminding you it doesnt' like it. Not fun I know, but seems to be the way.

Rachel--24 Collaborator

I also have chemical sensitivities and many many food intolerances. It didnt really become apparant to me until after I went gluten-free. The more I eliminated..the more things I noticed reactions to...its been never ending.

I'm sure the sensitivities were there prior to going gluten-free but when your system is very overwhelmed you dont notice things as strongly. When you remove gluten other sensitivities may then come forward and then become noticeable...you remove those and then more show up....its called "unmasking".

All of these things are actually affecting you but were not as noticeable before you went gluten-free as your immune system had been overwhelmed.

Didnt you say you still had high levels of mercury?? Thats not something that will correct itself without treatment. You may be doing very well with your Lyme treatment but Lyme is a multi-faceted disease...so alot of things need to be addressed alongside the Lyme. I suspect its the mercury which is the underlying cause of the sensitivities.....its definately the cause of mine and I've gone thorugh exactly what you describe.

You're right...its no fun at all. :(

mftnchn Explorer
Didnt you say you still had high levels of mercury?? Thats not something that will correct itself without treatment. You may be doing very well with your Lyme treatment but Lyme is a multi-faceted disease...so alot of things need to be addressed alongside the Lyme. I suspect its the mercury which is the underlying cause of the sensitivities.....its definately the cause of mine and I've gone thorugh exactly what you describe.

You're right...its no fun at all. :(

Yes, I have been chelating the mercury for the past two years, all fillings removed in 2000.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.