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Wondering If I Have A Problem With Gluten.

snipe12

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snipe12 Rookie
snipe12
Posted

I have been looking in to many things to control my acne when I stumbled across information about Gluten. I saw it ages ago but I thought I might as well give it a go as I have tried pretty much everything else. I followed a gluten free diet for about 4 days and there did seem to be an improvement in my general feeling of wellbeing and my skin also improved slightly. It hasn't been too good recently due to all the beer I have been drinking.

I unfortunately went out for a friends leaving party and of course had many pints of beer and I noticed my skin take a turn for the worse as it always does 2 days later. I always thought I had a problem with Alcohol but it seems it might be gluten but who knows.

It would be fantastic to have finally found out what is causing my skin problems, my inability to put any weight on, even though I eat a lot and the fact I am pretty much always tired.

Anyone else have skin problems, basically acne and weight issues caused by gluten?

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flagbabyds Collaborator
flagbabyds
Posted

Yes, i ger eczema when i get gluten

davemu Newbie
davemu
Posted

I had weird experiences with beer in the past... For example... I once had a good 10 beers one night, and during my sleep I intermittently drank some water... I drank 3 litres (3/4 of a full 4L jug) of water during the night alone... Somehow after drinking beer I can drink endless amounts of water and always crave more.

When i drink a mickey of hard alcohol on the other hand I don't really get thirsty at all, during the night, or the next morning... Also the hangover isnt NEARLY as bad... so i'm still thinking what such experiences mean.... They haven't phoned me from the clinic, so i dont know if that means the blood test is negative or what...

Shouldnt the clinic call me anyways, to tell me the composition of my blood?

seeking-wholeness Explorer
seeking-wholeness
Posted

snipe12,

I definitely get acne (often cystic) as part of my reaction to gluten. First comes the digestive reaction, followed closely by acne. It's odd, but I've just started to notice that the pimples seem to migrate predictably from the edges of my face toward my mouth, with the last crop occurring at the very edges of my lips. I wonder what that means? If I have several "accidents" in quick succession I will also get acne on my chest and/or back.

My mood also goes haywire about three days after an "accident," although I never would have noticed this if I had not 1.) started tracking my moods on a chart and 2.) been placed on a mood stabilizer, which effectively eliminated "noise" that tended to mask this reaction.

I think it's all very interesting!

--Sarah

snipe12 Rookie
snipe12
Posted
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  • Recent Activity

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      Finding gluten free ingredients

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      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
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      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
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  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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