Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice On Type Of Doctor


nanafur

Recommended Posts

nanafur Newbie

I need to find a new doc but am totally confused as to what kind to start with and need some advice. I moved to a new area and have a BAD history with getting good help so I've been putting off finding a new doctor. I have been gluten free for about a year with super results, the issues I need help with are ongoing dizziness/lightheadedness, energy level and steadily dropping low blood pressure.

I never got an "official" diagnosis and I am NOT willing to go back eating gluten to get one. My blood tests were negative but I had been gluten-free for months before I was tested so I will never know if it was accurate. I am afraid to try a GP because my last one said she never would have suspected gluten since I wasn't anemic. Even though I had come to the office multiple times with malapsorbtion, vommiting and bloating... explaining that it seemed much worse after I ate bread - she said bread doesn't make you sick... has to be coffee or something. I had and allergist say she would run the blood tests for wheat realated illness... to find out later she just ran test for wheat allergy. I found a Naturopath who seemed to listen at first and caught the Allergist's mistake with the gliadin test, but wouldn't test me for anything until I spent months using her expensive Mercury cleansing program (which is dangerous and my levels weren't even that high).

Anyway, I generally (like many others here) don't have much faith in doctors and don't know where to start. What kind of doctor do you see for dizziness and low blood pressure? I am afraid I will start fainting soon if I don't see someone. Should I just try a new GP? I have no referrals around here and don't know where to start looking or even what type of doc I should be looking for. I thought maybe some of you had similar symptoms at some point and would have some advice for me. Any advice is super appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

I would try to find the local celiac support group in your area and ask them who is good to see. I'm sure you will get some good suggestions there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748

    cbattiato
    Newest Member
    cbattiato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.