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Need Advice On Type Of Doctor

nanafur

By nanafur
in Doctors

Recommended Posts

nanafur Newbie
nanafur
Posted

I need to find a new doc but am totally confused as to what kind to start with and need some advice. I moved to a new area and have a BAD history with getting good help so I've been putting off finding a new doctor. I have been gluten free for about a year with super results, the issues I need help with are ongoing dizziness/lightheadedness, energy level and steadily dropping low blood pressure.

I never got an "official" diagnosis and I am NOT willing to go back eating gluten to get one. My blood tests were negative but I had been gluten-free for months before I was tested so I will never know if it was accurate. I am afraid to try a GP because my last one said she never would have suspected gluten since I wasn't anemic. Even though I had come to the office multiple times with malapsorbtion, vommiting and bloating... explaining that it seemed much worse after I ate bread - she said bread doesn't make you sick... has to be coffee or something. I had and allergist say she would run the blood tests for wheat realated illness... to find out later she just ran test for wheat allergy. I found a Naturopath who seemed to listen at first and caught the Allergist's mistake with the gliadin test, but wouldn't test me for anything until I spent months using her expensive Mercury cleansing program (which is dangerous and my levels weren't even that high).

Anyway, I generally (like many others here) don't have much faith in doctors and don't know where to start. What kind of doctor do you see for dizziness and low blood pressure? I am afraid I will start fainting soon if I don't see someone. Should I just try a new GP? I have no referrals around here and don't know where to start looking or even what type of doc I should be looking for. I thought maybe some of you had similar symptoms at some point and would have some advice for me. Any advice is super appreciated!

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darlindeb25 Collaborator
darlindeb25
Posted

I would try to find the local celiac support group in your area and ask them who is good to see. I'm sure you will get some good suggestions there.

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    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
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      Help!

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      Help!

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      I've been gluten free for 5 years, as well as being intolerant to gluten, my list of intolerances is growing.. from dairy, eggs, soya, yeast, to mushroom, garlic, onion, spinach and quite a few in-between, basically my diet is gluten-free cornflakes, rice, banana, almond milk and fish anything else causes bloating, severe abdominal pain, mucousy diarrhoea, lethargy, muscle and joint pain, kidney pain, headaches, and mouth ulcers. I've been told it's IBS, I think it's more than that... I've been sent to a gastroenterologist who tested for coeliac, if course it came back negative because, as I told him, I haven't eaten gluten for 5 years, he's asked me to eat gluten for 4 weeks and redo the blood test, so I've tried small amounts of crispbread for 3 days and am in agony, I can't do this for 4 weeks and then however long it'll take to recover. Has anyone got any suggestions, and is multiple food intolerances a common side effect of coeliac? I'm struggling! And struggling to be taken seriously 😒 
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

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      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
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