Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here And Need Some Help

sjust

Recommended Posts

sjust Apprentice
sjust
Posted
  • Author

Thank you both so much for the advice. I have seen a lactation consultant and she does not think it is a foremilk/hindmilk imbalance but I did think of that. She tested my breastmilk and at the beginning of a feeding it has more fat than most formulas on the market.

I have stopped eating the chips so will see if that helps. I did notice that Rice Dreams said it contained gluten and I am using Pacific which states that it is gluten free. It is so hard as I do not have the reaction to the food to tell what could be causing it. I stopped buying bulk rice flour because I realized the risk of cc was incredibly high and that could be part of the problem. I am also taking the entire house gluten-free which is not making my husband very happy but I hope it will help.

Thank you both again. : :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


janelyb Enthusiast
janelyb
Posted
I am also taking the entire house gluten-free which is not making my husband very happy but I hope it will help.

He can join my hubby....no really tell him he will pretty much eat the same ol stuff he normally eats (chicken,steak,pork..etc). I would allow him to have his own shelf in the cabnit with a few gluten foods that he can only have to take to work or when the kids are in bed. My hubby has on his shelf cookies, granola bars and cereal. My hubby basically only eats gluten free at home, but for his work lunch we still have regular bread. It takes time but the kids catch on and don't even ask for dady's bread or snacks. The hardest part is eatting out and my son wanting to sample off Daddy's plate when he has a gluten meal.

Jodele Apprentice
Jodele
Posted
He can join my hubby....no really tell him he will pretty much eat the same ol stuff he normally eats (chicken,steak,pork..etc). I would allow him to have his own shelf in the cabnit with a few gluten foods that he can only have to take to work or when the kids are in bed. My hubby has on his shelf cookies, granola bars and cereal. My hubby basically only eats gluten free at home, but for his work lunch we still have regular bread. It takes time but the kids catch on and don't even ask for dady's bread or snacks. The hardest part is eatting out and my son wanting to sample off Daddy's plate when he has a gluten meal.

Same here with my hubby. He knew we had to do this for the kids, but he wanted to have his goodies too. He is my junk food eater and the kids loved him for it befor gluten-free. He had his stash in the bedroom and at night when the kids were off to bed he ate then. :rolleyes: In front of me who had to go gluten free also. Thats ok don't like sweets at all. give me fruit and i am happy as a little kid. B) I had so much stomic problems as a kid that candy and other sweets hurt me. Know I know why now but to this day I dont eat sweets and my 2 of my kids are the same. Ice cream they only eat two spoons fulls and thats that. but just understand it is hard on the men giving up foods just give them a spot to put it. my dh still has problems giving the kids stuff that could have gluten in it but it is a not on purpous and he has cried over glutenize the kids. I am the one that does all the food prep and shopping and still teaching him how to read lables. but when he takes the kids out for daddy time he loves to get them candy and thats when it happens. so now he makes them wait to come home so mommy can read the lable. So I become the meany. :blink: Well hope this give you a laugh Got to look at the light side of life and laugh or you just cry all the time. :P

Esther Sparhawk Contributor
Esther Sparhawk
Posted

Your baby is 5 mo. old, right? Mine were both teething at that time. Could there be any cross-contamination with items your child is teething on? My kids put their mouths on everything, when they were teething: the handle of a grocery cart, the back of their high chair, daddy's shoe, you name it! Gross, huh?

What about Grandma and Dad... could they be accidentally cross-contaminating? Sneaking gluten treats in, because they don't understand what celiac is all about? We had those issues at our house, so everyone in my family got a copy of Dana Korn's Kids With Celiac Disease for Christmas this past year.

Most importantly, when you're the mom in charge of a kid with celiac, it's sometimes very exhausting. Heck, just nursing a healthy non-celiac kid is exhausting, right?! But don't give up. It get's easier. It really does...

Mechelle ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,900
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.