Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping


HAPPY DOG SUZ

Recommended Posts

HAPPY DOG SUZ Enthusiast

:( Aloha,

I am 1 1/2 month gluten free I was dx w / fibromyalgia before I was dx with celiac I am still in alot of pain but seems to have eased up some.

I was wondering if anyone else has fibro symptoms if they get gluten?

Thanks Suzanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tutahl75 Apprentice

Hello,

I don't have fibromyalgia but I do have Celiacs. I took a meditation course about three months ago and it helped me to quiet my thinking and relax more. It also helps the healing process and ultimately improves your energy. I have a friend who's mom has fibromyalgia and I told her about the meditation practice. She went to it and she is not nearly as tired through the day now. Just thought you might want to give it some thought. Hope this helps.

seeking-wholeness Explorer

Suzanne,

I used to get a large, lumpy tender spot in the muscles right up next to my spine, just about over my left kidney, whenever I ate gluten. It would hurt most when I woke up in the morning (especially if I rolled onto my back in my sleep--I am a devout side-sleeper), and if I massaged it deeply, it would jump-start a bowel movement (useful!). I don't know if this symptom is fibromyalgia-like, but it is definitely a much less intense problem for me now, after a year gluten-free.

Good luck to you!

--Sarah

Twister2 Contributor

Hi there, I also suffer from alot of muscle pain when I eat Gluten. Mostly in my legs. My mother and sister also have Celiacs and they have the muscle pain also.

:)

JUDI42MIL Apprentice

Hi I was dxed with fibromyalgia and chronic fatigue, 7 years ago. And celiac about 6 mo. ago.

I dont know if eating gluten had anything to do with the fibro. I suffered bad with it years ago. I was wheel chair bound, cause it hurt too much to walk. And was on 11 different meds a day, mostly for the pain. So, basically I was bed ridden.

What helped me with that was with doing some research I decided to go completely meat free. No meat, chicken, fish, etc........ I found within two weeks I went off all the meds, and the pain was gone.So for me my fibro had something to do with eating meat. Im thinking it was something they inject in animals.

Good luck! And try anything , fibro is horrible.The only problem I have now is what to eat. :(

llj012564 Newbie

I was on daily pain meds for Fibro for almost 3 years b4 my Dr finally found Celiacs. I have been gluten-free since Feb04 and off all pain meds since around Mar or Apr. I can't say for sure but I don't think I ever had Fibro at all. I think that it was the Celiacs the whole time. Now when I eat something I shouldn't I get the same pain back . When I first started the diet I felt so much better it was like a magic but recently I have had some problems. I had to evaluate my diet and dicovered that the coffee creamer I used was the problem . I eat only fresh foods , nothing processed and the creamer as little as I was using it had to be the culprit. I can see how the Dr can get it wrong , Joint pain , tired , bowel problems etc they mimic each other so its hard to tell without testing. I wasn't a typical Celiac either, b4 diagnosis I was heavy and had trouble losing weight, the reason I got tested was I started droping pounds fast . Ive lost over 100 in less than a year and still can't stop losing. Sorry didn't mean to go on. Gluten may not be the only thing giving you trouble so keep an open mind if your symptoms dont improve you may have to try cutting other things from your diet as well.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,589
    • Most Online (within 30 mins)
      7,748

    MM-110722
    Newest Member
    MM-110722
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.