Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Importance Of Tests


foxdog

Recommended Posts

foxdog Newbie

My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lob6796 Contributor
My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?

Unless you need the test to give yourself piece of mind, I wouldn't even bother. You have the evidence you need to keep being gluten free, so just stick with it. In the future you can tell doctors that you have either celiac or a gluten intolerance proven by an elimination diet. That should be good enough for their purposes. To be tested for celiac you would have to go back on gluten for quite some time, given that you have been gluten free for so long. They could order you to be on gluten for up to 6 months before they would feel the tests to be accurate. I personally wouldn't want to go back to feeling so crummy and lose all that I had worked towards.

mftnchn Explorer

There is no benefit for you at this point, because you will have to go back to eating gluten, perhaps for months, for the tests to be positive.

Enterolab, which does not diagnose celiac, only gluten sensitivity may work for up to a year after you stop eating gluten. But at this point it is really hard to say if anything will show up for you.

I think you do what you know is right for yourself.

My suggestion: if you have first degree relatives with symptoms, encourage them to do testing before going gluten free. With a confirmed celiac in the family, if others have symptoms, doctors may take this more seriously. I.E. other may benefit.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.