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Wireless Capsule Endoscopy

JENinMICH

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JENinMICH Newbie
JENinMICH
Posted

Has anyone had this - where you swallow the camera in the pill?

They don't think I have celiac (they are wrong!). They think I have Crohn's dx.

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bklyn Enthusiast
bklyn
Posted

Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

Guest Chrisbee
Guest Chrisbee
Posted
Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

My daughter was just diagnosed with Celiac Disease this week and she was told that she was going to be put on a waiting list to have this done. We were wondering how in the world it worked, thanks so much for posting this!

little d Enthusiast
little d
Posted

I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

kay777 Newbie
kay777
Posted
I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

Hi! I'm new to this forum. I wondered how does this procedure help diagnose for Celiac. My doctor wants me to have it done after I have taken Pepto Bismo for six weeks because my colonoscopy showed I have Colitis. I also had an endoscopy done and it showed gastritis not Celiac. I have positive bloodwork, however, he does not seem convinced it is Celiac. I'm getting discouraged.

isiskingdom Contributor
isiskingdom
Posted

I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

Betty in Texas Newbie
Betty in Texas
Posted

what kind of pills are they going to give you, there aren't any pills for celiac only the diet .

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little d Enthusiast
little d
Posted
I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

I have no idea if I passed mine or not

donna

JENinMICH Newbie
JENinMICH
Posted
  • Author

Okay - my Dr. is saying that I have to drink a bottle of magnesium sulfate the day prior to the procedure? Did anyone else have to do this.

They are in for a rude awakening when they find out I have Celiac.

bklyn Enthusiast
bklyn
Posted

Some drs. require a "prep" for this test. Mine did not. He told me that about 40% of drs. use the prep because they think there is a clearer picture.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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