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Wireless Capsule Endoscopy

JENinMICH

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JENinMICH Newbie
JENinMICH
Posted

Has anyone had this - where you swallow the camera in the pill?

They don't think I have celiac (they are wrong!). They think I have Crohn's dx.

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bklyn Enthusiast
bklyn
Posted

Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

Guest Chrisbee
Guest Chrisbee
Posted
Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

My daughter was just diagnosed with Celiac Disease this week and she was told that she was going to be put on a waiting list to have this done. We were wondering how in the world it worked, thanks so much for posting this!

little d Enthusiast
little d
Posted

I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

kay777 Newbie
kay777
Posted
I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

Hi! I'm new to this forum. I wondered how does this procedure help diagnose for Celiac. My doctor wants me to have it done after I have taken Pepto Bismo for six weeks because my colonoscopy showed I have Colitis. I also had an endoscopy done and it showed gastritis not Celiac. I have positive bloodwork, however, he does not seem convinced it is Celiac. I'm getting discouraged.

isiskingdom Contributor
isiskingdom
Posted

I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

Betty in Texas Newbie
Betty in Texas
Posted

what kind of pills are they going to give you, there aren't any pills for celiac only the diet .

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little d Enthusiast
little d
Posted
I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

I have no idea if I passed mine or not

donna

JENinMICH Newbie
JENinMICH
Posted
  • Author

Okay - my Dr. is saying that I have to drink a bottle of magnesium sulfate the day prior to the procedure? Did anyone else have to do this.

They are in for a rude awakening when they find out I have Celiac.

bklyn Enthusiast
bklyn
Posted

Some drs. require a "prep" for this test. Mine did not. He told me that about 40% of drs. use the prep because they think there is a clearer picture.

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  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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