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Wireless Capsule Endoscopy

JENinMICH

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JENinMICH Newbie
JENinMICH
Posted

Has anyone had this - where you swallow the camera in the pill?

They don't think I have celiac (they are wrong!). They think I have Crohn's dx.

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bklyn Enthusiast
bklyn
Posted

Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

Guest Chrisbee
Guest Chrisbee
Posted
Yes, I had this done in New York at the Celiac Center. It was simple, swallow the pill with some water, walk around all day with a device strapped around my waist, and then go back to the doctor and give him the device.

Of all the tests I've had done, this was the easiest!

Kathy C.

My daughter was just diagnosed with Celiac Disease this week and she was told that she was going to be put on a waiting list to have this done. We were wondering how in the world it worked, thanks so much for posting this!

little d Enthusiast
little d
Posted

I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

kay777 Newbie
kay777
Posted
I had this done too, I even had been eating regular food for 6 months and everything was fine so I continued to eat regular food now I a really paying the price for not sticking to gluten-free

donna

Hi! I'm new to this forum. I wondered how does this procedure help diagnose for Celiac. My doctor wants me to have it done after I have taken Pepto Bismo for six weeks because my colonoscopy showed I have Colitis. I also had an endoscopy done and it showed gastritis not Celiac. I have positive bloodwork, however, he does not seem convinced it is Celiac. I'm getting discouraged.

isiskingdom Contributor
isiskingdom
Posted

I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

Betty in Texas Newbie
Betty in Texas
Posted

what kind of pills are they going to give you, there aren't any pills for celiac only the diet .

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little d Enthusiast
little d
Posted
I already know I have celiac but, they want me to do the camera pill to see if my celiac is so bad I need to be on pills for the rest of my life. I'm worried about it not passing and then I would have to have it removed through surgery. How often does this happen? I have to make a choice to do it or not and I'm scared. :(

I have no idea if I passed mine or not

donna

JENinMICH Newbie
JENinMICH
Posted
  • Author

Okay - my Dr. is saying that I have to drink a bottle of magnesium sulfate the day prior to the procedure? Did anyone else have to do this.

They are in for a rude awakening when they find out I have Celiac.

bklyn Enthusiast
bklyn
Posted

Some drs. require a "prep" for this test. Mine did not. He told me that about 40% of drs. use the prep because they think there is a clearer picture.

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    • knitty kitty
      Gluten Free Sugar or Starch known to increase gas?

      By knitty kitty · Posted

      Even if you don't have Celiac Disease, you can still get SIBO.   Glad to hear you're taking the vitamins and magnesium!   Are you getting sufficient Omega Three oils like flaxseed, olive oil, or Sunflower seed oil?   I didn't like coconut oil because it upset my digestive tract.   How is your Vitamin D level?
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      Gluten Free Sugar or Starch known to increase gas?

      By xxnonamexx · Posted

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    • Aretaeus Cappadocia
      Prospective CRISPR research

      By Aretaeus Cappadocia · Posted

      @Lotte18, thank you for providing this page from the research proposal. Some comments, if I may (apologies for what you already know): They start by saying that previous research has shown that it's possible to modify the HLA-DQA1 gene and have that new version expressed "in humans" (not sure if they mean intact humans or just cells in culture). This is a standard form of scientific communication where you explain what is already known as it relates to what you want to do next. The HLA-DQA1 gene encodes 1/2 of a series of "locks" from my earlier metaphor. Two of the types of locks that can be made by variants of this gene are called DQ2.5 and DQ8 (either of which will confer susceptibility to celiac). DQ2.5, DQ8, and other DQ's are referred to as "heterodimers" - "dimer" means made up of exactly 2 pieces and "hetero" means that the pieces are not identical to one another (identical parts would be homodimer). HLA-DQA1 genes each make a protein that becomes one of the two parts of a series of heterodimers. Different forms of HLA-DQA1 are called "variants" or "alleles".  Next they say that they propose to use the same technology in attempt to minimize/cure celiac. The idea is reasonable science and before considering all of the caveats it certainly has merit as something to consider. As a side note, I would challenge some of their language. DQ2.5 and not-2.5 are both "variants" or "alleles" - one is not "wildtype" nor the other "mutant". Their proposal is to "modify", not "correct" the gene. This might sound picky but I have a background in genetics and this is jarring to me. The last paragraph outlines more of the roadmap for their proposal using relatively mundane steps (apheresis) and relatively advanced steps (CAR-T). There is a logic to their approach but there are severe caveats. CAR-T is kind of a nuclear option. It has shown many miracle cures in certain kinds of cancer and it is being studied for some kinds of life-threatening autoimmune disease. It also has devastating side effects. If tomorrow someone offered me a fully validated CAR-T procedure for celiac along the lines of this proposal, based on my understanding of the risks I would turn them down. Separately, I would also have concerns about the "off target" risk of the CRISPR part of the procedure. In addition to funding issues, there may be significant ethical issues that would challenge their proposal. Human clinical trial proposals go through extensive review before they are approved and one of the significant considerations is whether the risks to the patient are warranted (relative to the benefit). If a procedure has really horrible side effects but it is the only available option for a dying patient, the review board is likely to approve. However, if there is a much less harmful treatment option that delivers enough of a benefit, then there is a higher chance that the trial would not be approved. For celiacs, the availability and relative effectiveness of gluten-free diet will raise the bar for trying risky therapies in the clinic. Science and medicine constantly progress, so it's entirely possible that someday there will be a safe and effective genetic "cure" for celiac. However not anytime soon and I believe it would only come after these CAR-T procedures have become routine in the treatment of a long list of other diseases. In a world of unlimited funding for scientific research I would definitely fund this proposal. In the world of tight competition for research funding that we live in I would need to know a lot more about their proposal and the greater context of how it fits in with other research before I would give them money at this time (not that anyone is asking me).
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you for that info too!! will keep this in mind if he ends up in the ER again! 
    • knitty kitty
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      By knitty kitty · Posted

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