Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

They Messed Up The Samples On My Daughters Biopsy


Electra

Recommended Posts

Electra Enthusiast

They sent the wrong skin samples for the opposite testing, so my daughter screamed and cried and got emotionally scarred for life with the IV's and crap and they have to re-do the damn biopsy. She has a scar now that I didn't even want her to have and now they tell me that she will have another one. I'd like to scream right now UG!! What in the hell are these people thinking? If you do a test like this on a 2 yr. old you better get it right the first time around. The doctor assures me that the hospital will pay for the tests since they messed it up, but I don't care about that part I care about my daughter going through that ordeal again and about her having another scar on her little body. This is just absolutely rediculous. Why don't they just diagnose her with DH already and just call it good. CALGON take me away LOL!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

That is absolutely horrible!!! They should pay for more than the second test! You should be able to request/demand that they give her gas (nitrous oxide?) before they insert the IV. She will be totally out and will not even feel the IV. Since she will be asleep an anesthesiologist will need to be present. They should have no problems accommodating your request. If I were you I would demand that she be asleep, even if she has to get the procedure done somewhere else. Poor little girl. :(

Phyllis28 Apprentice

That's terrible.

I do not know if the medicine still exists, when my son was little the doctor prescribed a topical cream that we put on and covered about an hour before any needles. It numbed the area so the needle would not hurt.

Izak's Mom Apprentice
That's terrible.

I do not know if the medicine still exists, when my son was little the doctor prescribed a topical cream that we put on and covered about an hour before any needles. It numbed the area so the needle would not hurt.

it's called EMLA cream - it's a topical anesthetic. you put it on for an hour beforehand under an occlusive dressing (like saran wrap) and then the area is totally numb for a couple hours.

janelyb Enthusiast

If it were me they'd be hearing from my lawyer once I had hired a good one. And actually if she responds to the diet once you start that is proof enough than a 2nd biopsy.

iluvbread Newbie

Seriously, I would have them pay for their screw up and not take her back. Just take her off Gluten. I have life long phobias from early childhood experiences like these. So I would not be inclined to do it again. You get one chance with me and then I'm done.

If you do have them redo it, make sure they knock her out lightly.

Electra Enthusiast

Thanks everyone for the support. She has actually had the cream before and it didn't help at all. She's only 2 and a half so the fact that they are holding her down to stick a needle in her outweighs any chance that she may not even feel it. She just freaks out because they are trying to hold her still and stab her, so she's not reacting to the pain as much as them doing things to her that scare her.

The anesthesiologist told us that the medicine they gave to sedate her didn't work in her case and that next time he recommends they give a quick shot that will put her completely out and then after she is out they put the IV in. He said he would not recommend EVER putting an IV in again with her awake, because it will traumatize her.

I haven't made a decision on weather I will allow her to have another surgery or not. I guess it depends on if she ever breaks out as bad as she did the first time. That is the only time we've ever seen it get that bad and it's been very mild since, so I'm hoping it's not DH and it's just something she'll grow out of, but only time will tell.

Thanks again for all the support and advise!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I would not recommend a biopsy if the outbreak is not very bad. I had one that turned out negative (and left me with two HORRIBLE scars) because I had been on Prednisone the month before and had been gluten-free for a month--and the doctor didn't tell me that that would screw up the results. In my case, I believe that it WAS DH because I have not been able to find another cause for a totally symmetrical-on-both-arms blistering oozing rash and my IgG was through the roof.

I agree with everyone else that you should contact a lawyer. Scarring a child and putting her through major stress for nothing because the doctor screwed up is clearly malpractice.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    4. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,005
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.