Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I'm The New Aussie On The Block

Subhangi

By Subhangi
in Coping with Celiac Disease

Recommended Posts

Subhangi Newbie
Subhangi
Posted

Hi, I'm Subhangi from Australia. Just thrilled to be part of a forum full of people with the same symptoms as me. Been suffering alone for years. Only eye rolls from all the healthy family and friends whenever I complained. This is a b---- of an illness. Love you all and thanks for the gold mine of info. I guess I am in denial. Just changing my diet has not been enough. I was diagnosed 2 yrs ago, and still suffering everything under the sun....luv :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest dreams25
Guest dreams25
Posted

Hi Subhangi,

Going gluten free is certainly not an easy task, though getting easier with a lot of products going gluten free, but its the hidden little things you find gluten in that im finding more of a problem ..

Joining the Coeliac Society, has helped filling me in on products that are safe to eat.

Found out recently that the choc topping on coffee cappicino especially is not always gluten free.. so that was a hidden one for me i didn't even think of... but feel free to email me directly if you like to find out anything.. I have been gluten free for nearly 12 months and my cholestrol and health has improved.. but its a constant battle with food.

My email addy is noreenbriggs@optusnet.com.au if you want to me email me and just vent tis fine..

Good to see another aussie on here...

Thanks .. dreams25

Subhangi Newbie
Subhangi
Posted
  • Author
Hi Subhangi,

Going gluten free is certainly not an easy task, though getting easier with a lot of products going gluten free, but its the hidden little things you find gluten in that im finding more of a problem ..

Joining the Coeliac Society, has helped filling me in on products that are safe to eat.

Found out recently that the choc topping on coffee cappicino especially is not always gluten free.. so that was a hidden one for me i didn't even think of... but feel free to email me directly if you like to find out anything.. I have been gluten free for nearly 12 months and my cholestrol and health has improved.. but its a constant battle with food.

My email addy is noreenbriggs@optusnet.com.au if you want to me email me and just vent tis fine..

Good to see another aussie on here...

Thanks .. dreams25

Hi Noreen,Nice to talk to u ;)

Yep, seem to get contaminated everytime I turn around. I'm vegetarian anyway should be healthy but just feel like I'm dying constantly because of this disease. It is so incideous(probably spelt wrong but had to use that word as it is appropriate)I'm curious, diet coke is my weakness, anyone heard anything bad about gluten and coke?

Bye, Subhangi xx

Rosewynde Rookie
Rosewynde
Posted

Hello there, sorry your still having relapses. It's definitely not an easy diet but better than feeling awful 100% of the time. I think I prefer having to be on a diet than medicine for life ; D

I read somewhere that all Pepsi and Coke products are ok. Do a forum search on Coke.

mikeanway Newbie
mikeanway
Posted
Hi Noreen,Nice to talk to u ;)

Yep, seem to get contaminated everytime I turn around. I'm vegetarian anyway should be healthy but just feel like I'm dying constantly because of this disease. It is so incideous(probably spelt wrong but had to use that word as it is appropriate)I'm curious, diet coke is my weakness, anyone heard anything bad about gluten and coke?

Bye, Subhangi xx

Hi Subhangi,

I drink Coke a bit and I have no problems. I hate saying that because this disease affects everyone differently,and even if you aren't having symptoms,doesn't mean it's gluten free,you still need to verify. The best thing to do is call the manufacturer. They all have 800 numbers. I know it sounds like a pain,but you would be sure and it would ease your mind.

Here is a link to mainstream products that are gluten free on this site. :D

https://www.celiac.com/st_main.html?p_catid=12

Mike

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,328
    • Most Online (within 30 mins)
      7,748
    CGW
    Newest Member
    CGW
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      Am I celiac or not?

      By trents · Posted

      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Am I celiac or not?

      By trents · Posted

      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      Am I celiac or not?

      By Scott Adams · Posted

      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
×
×
  • Create New...