Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems And Pregnant.......need Help


harley

Recommended Posts

harley Newbie

Hi. I probably should have posted this under the Pregnancy board but it seems that more people frequent this board.

I was diagnosed via biopsy in July 06 (after the birth of my first child). My main problems were gastrointestinal. Things slowly improved after that. I had a repeat biopsy done in Jan. o7 and things were looking better. My gastrointestinal symptoms had improved too.

I found out I was pregnant again in early May. Since then, it seems like all of my pre-diagnosis symptoms have returned. I have loose stools 5-6 times a day (not to be gross but a lot of undigested food in stool). The same as before I was diagnosed. I have not changed my eating habits and maintain a strict gluten free diet. I have talked to my OB and seen my GI doctor and no one seems that concerned--except for me. Despite all of my stomach problems, I am not losing weight and the baby seems to be growing.

Has anyone had experience with a pregnancy reactivting celiac symptoms? I have not found much on the internet. I am very concerned about refractory celiac. any comments would be much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi. I probably should have posted this under the Pregnancy board but it seems that more people frequent this board.

I was diagnosed via biopsy in July 06 (after the birth of my first child). My main problems were gastrointestinal. Things slowly improved after that. I had a repeat biopsy done in Jan. o7 and things were looking better. My gastrointestinal symptoms had improved too.

I found out I was pregnant again in early May. Since then, it seems like all of my pre-diagnosis symptoms have returned. I have loose stools 5-6 times a day (not to be gross but a lot of undigested food in stool). The same as before I was diagnosed. I have not changed my eating habits and maintain a strict gluten free diet. I have talked to my OB and seen my GI doctor and no one seems that concerned--except for me. Despite all of my stomach problems, I am not losing weight and the baby seems to be growing.

Has anyone had experience with a pregnancy reactivting celiac symptoms? I have not found much on the internet. I am very concerned about refractory celiac. any comments would be much appreciated.

Are you taking any prenatal meds that are not gluten free?

harley Newbie
Are you taking any prenatal meds that are not gluten free?

Hi. No, my prenatals are gluten-free. I am taking prometrium progesterone supplements as my progesterone was a bit low at first.

GFhopeful Rookie

I also had some GI-type problems like you are describing during both my pregnancies but at the end of the pregnancies, which doctors attributed to "early labor" signs but it did occur for much of the last trimester. I am newly diagnosed Celiac so don't know if that was from the Celiac or early labor, like they said. Pregnancy is really hard on your body - is this your first baby? I would guess it would re-aggrevate things that you had under control but hopefully it's an adjstment period and you will get through it soon. The second trimester is easier on your stomach and body in general so maybe, hopefully, things will turn around for you then. Good luck!

GFhopeful Rookie

oops - sorry, i see it is not your first but your second child. it's early on in the pregnancy though so hopefully this will pass like the nausea in early pregnancy. :)

Rosewynde Rookie

I had problems like this at the end of my second pregnancy. The doctors never did figure it out. Their guess was I had a flu bug that killed of the flora (digestive bacteria) in my intestines and was aggravated by the fact that i was lactose intolerant. They had me take acidophilus and stick to a BRAT Diet with boiled chicken. My symptoms got better but never really cleared up completely. I got told not to worry as long as the baby and I remained healthy, Stress on the body often makes problems worse and you more sensitive to things. This was three years before they removed my gall bladder and six years before I was diagnosed as Celiac.

My guess is your body is stressed and not getting enough of what it needs because the baby is pulling it all. It's also quite possible that something new your on has gluten and is fouling you up throughly OR that you've developed a new allergy to something. Also possible something that was safe that your eating lots of is no longer safe.

EmmaQ Rookie

I would double check everything you are putting in your mouth, including calling the manufacture of the prenatals.

Be sure you are also not doing oats, not even safe oats, especially if you are DQ2.

I would then eliminate the following 1 by one to see if it is a major allergen

1) Dairy

2) Soy

3) Corn

4) Corn related gluten-free grains like Sorghum

After that, I haven't got a clue.

I know my baby was telling me when I ate something wrong, I would be flat out on the couch nearly passing out with fatigue, unable to lift my legs up on to the couch. It was scary and it happend 3 times before I figured out what it was. It was my lunch so I had eliminated each thing 1 by one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,635
    • Most Online (within 30 mins)
      7,748

    dysmathers
    Newest Member
    dysmathers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.