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Med.alert


Guest cd&dhspruehead

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Guest cd&dhspruehead

what should read on a medical alert tag?

  • 3 weeks later...

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Guest momof3

I have wondered this myself. I have spells of sudden fatiuge memicing epileptic seizures. I used to have the tremor spells w/ extreme fatiuge. Now the spells are sudden onset of extreme weakness, unable to speak or walk, loss of muscle,(pass out) hearing but not able to open eyes.

My guess is maybe (non epileptic spells) with an emergency contact #.

momof3

celiac disease 7-9-04

trying hard,gluten-free since 8-04

First time experiancing gut pain 11-6-04

Thomas Apprentice

You have the option of giving them more information than what can fit on the bracelet.

hapi2bgf Contributor

Call Medic Alert. They were very helpful when I called to get my daugthers bracelet. And they do collect quite a bit more info than is printed on the bracelet.

I have been told that hospital and paramedics check necks (for necklace medialert) and wrists (for the bracelet medicalert) first.

celiac3270 Collaborator

I wouldn't use a Medalert tag at all. If you lose consciousness and are rushed to a hospital, what if they needed to use a gluten-containing medicine to save your life? It's better to have abdominal pain...and be alive to have it, then to be dead because they didn't use medicine on you, fearing a reaction.

MySuicidalTurtle Enthusiast

I think it is good to have the alert tag. . .you never know when you may have a sudden new reaction.

celiac3270 Collaborator
I think it is good to have the alert tag. . .you never know when you may have a sudden new reaction.

Perhaps, when it comes to small children who might not know better than to accept food from a teacher, friend, or friend's parent, and for medication that a nurse or doctor might unknowingly give the child. For an aware child or an adult, however, I don't think it's a really good idea. Obviously, you know that you have celiac and that you need to be careful. The only time that you would have something administered without your control and without being able to warn the person of your celiac would be if you lost consciousness---and in that state, if medicine needs to be administered to save a live or something--gluten or not--it should be administered.


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Thomas Apprentice

Your decision...

MySuicidalTurtle Enthusiast

I was told at (by medical professionals) that you can have suddenly have a different reaction to gluten that you have never had before. If I have such a reaction to where I am not not able to speak for myself I want them to see that I have rections to what is listed on my medic alert bracelet (certain drugs and gluten).

I wasn't saying don't let them give you medas with gluten in them. . .just letting them know that you could be reactiong to something.

ryebaby0 Enthusiast

My son has something called a RoadID, which has 5 whole lines for information. The company started making them for runners, kayakers, etc. His dob, ph#, md ph#, etc. and "celiac -- no gluten" on it. It straps on his shoe with a velcro band, is stainless steel and cost $20...they also make dog-tag style ones, with various logos on the front (his has a gecko). If he were to be injured or something at a field trip, etc., I don 't want some well-meaning person to push him into eating a comfort cookie. This way he can just hold up the tag!

joanna

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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