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Grrr...the Rash And Loose Poos Are Back...

Momof2cuties

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Momof2cuties Apprentice
Momof2cuties
Posted

I can't figure out what's going on! It seems like Ali's symptoms are back, although not nearly to the full extent that they were before the gluten-free diet. I can get the rash to go away with some hydrocortisone cream, but it comes right back as soon as she poos again.

When they have multiple sensitivies are the symptoms similar? Her pediatrician won't test her for anything else until we can get her in to see the pedi GI, but the appt we have isn't until September. She's trying to get her in sooner, but we'll see...until then do I just keep dealing with this? I really don't want to go the route of an illimation diet, but I may have to.

Oh, how long after eating something they shouldn't do your kids end up with symptoms?

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bjshad Apprentice
bjshad
Posted

Oh, how long after eating something they shouldn't do your kids end up with symptoms?

  • 2 weeks later...
johalex Rookie
johalex
Posted
Oh, how long after eating something they shouldn't do your kids end up with symptoms?

My DD has multiple food allergies - she's also allergic to dairy, soy and egg in addition to being gluten sensitive. It kind of depends on what it is she gets a hold of as to how soon she reacts - if she accidentally gets any dairy of any kind, within 30 minutes she starts turning red and gets "glazed" over and her nose starts running. Soy - it can be almost immediate coughing. But if she gets glutened, I'll know by her 1st bowel movement. So it depends really, but if it's gluten, I may not know immediately, but I'll definitely know by her next dirty diaper.

Hope that helps some-

Beth

I do know that my son's symptoms never totally disappeared until we also elimnated all dairy,so there may possibly be more to your dd's food issues than the Celiacs.

Any more rashes or new info lately?

Electra375 Newbie
Electra375
Posted

Did you go gluten-free before having the Celiac Diagnosis made "firm" by a GI through endoscopy? In order to do the endoscopy/ biospy the child must be ingesting gluten. We made that mistake.

Once the gut is irritated, many things will irritate it that might not have before the initial irriation. In the case of dairy, it seems like it is secondary to gluten irritation. Many Celiacs go gluten-free and DF from the first few months and add dairy back in to see if they can now tolerate it. So Dairy out would be my suggestion once already gluten-free.

After that Soy & Corn.

Other than seafood, generally, there are very very very few people allergic to beef, chicken and turkey (I have met one, but generally that is not the case). If I were unable to solve the rash and poo I would likely try moving to all organic free range grass fed meats and poultry and then slowly add back 1 veggie or 1 fruit at a time, then add back rice, followed by more allergen offenders such as corn and soy or corn related grains like sorghum.

I truly hope you find an answer. A pedi not willing to run tests is pathetic. Our pedi ran a full array of blood based allergy tests along with the Celiac test. She tried to be as through as possible. It's too bad there are not more like her. On the other hand, food allergies are totally different from foot intolerances and to date there are not reliable medically approved tests for food intolerances other than the patient eliminating them from their diets. Food Allergies are an IgE response and food intolerances are not.

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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