Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying A New Way Of Vitamins


melrobsings

Recommended Posts

melrobsings Contributor

A friend of mine told me about this company that makes a vitamin type thing in a shake base that you take 2 times a day. He told me how much better he feels and how it has really improved his life (IE: no more head aches or fatigue and sleeps better). His friend then told me that she has depression and fibro milga (i know i spelled that wrong, sorry!) and it has REALLY improved her symptoms. Neither of these people have celiac.

I suffer from fatigue, depression and celiac (DUH!) and they think it might help me feel better. So I'm going to try it for 3 weeks. If it works I'm passing on the info! But I just wanted to give yall a heads up and I'll post on here if i feel any changes.

Has anyone else tried something similar to this? I REALLY hope it works, i'll try anything at this point!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFhopeful Rookie

please do pass on the info if you find this supplement helpful. i am on a bunch of vitamins now have a hard time swallowing pills so would love to drink a shake instead, or in addition, to a vitamin regamin. at this point (around 6 weeks in) i will try anything (as long as it's gluten-free) to get feeling closer to normal!!

melrobsings Contributor

here is a short summary of the past few days:

day 1: took it, felt fine, started to feel like i was gunna barf but thought it was cause i didn't eat much and was just hungry.

day 2: took it in the morning and barfed my brains out for a few hours.

day 3: took it and could bearly get it down, felt sick after

day 4: took it and i'm trying everything in my power not to barf.

I'm done, it didn't work.

Does anyone have a good vitamin that helps with fatigue?!

grey Explorer

I have fatigue as a major symptom. The best thing for me has been my every-other-day B12 injections (I give them to myself); I was dx'd w/ b12 def. long before celiac and may have PA too.

I've been taking Garden of Life Living Multi women's formula. I don't know yet if it really helps w/ fatigue, but it's the first vitamin I've been able to take w/o severe pain, d, reflux, or vomiting. It's a 'whole food' vitamin, meaning that the vitamins come from food (not chemicals) and have been made "body-ready" w/ probiotics and enzymes. It also spreads the dose - you take two 3x a day ... this allows more to be absorbed by your body and it to be less shocking to the system. Big downside - expensive.

I also use a juicer (my favorite is kale-carrot-apple w/ parsley) to up vitamin, etc intake in easily digestible form; juicer takes out the fiber.

I'm looking forward to hearing what vitamins others take - it's such a difficult process!

GFhopeful Rookie

i have a juicer and have been making juices and that supposedly is the best way to get vitamins back into your system. and some are pretty tasty.

melrobsings Contributor

thanks guys i'll try it. I told my friend who got me the vitamins and he called the company. They said that they are going to try me on something different to see if we can get something that works. Call me crazy but I'm going to try it, i'll try anything at this point! I'll keep you posted.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748

    TGreen
    Newest Member
    TGreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.