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Weird Symptoms When Trying To Go To Sleep

holdthegluten

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holdthegluten Rising Star
holdthegluten
Posted

I recently made a new post called heart flip flop. Now i dont think it has anything to do with my heart. This is the sensation i get when i try to fall asleep: As i lay there getting tired and trying to fall asleep, i get this wave of fear feeling that starts behind my sternum (almost takes my breath away), then it moves down into my stomach and a big jolt (spasm) and its over until the next one. I tried to check my pulse while having these symptoms and it doesnt race or anything. I have been having a little more GERD lately and bloating, but i cant pinpoint what it is or where it is exactly coming from. Could it be Esophagael spasms, reflux, gas in the upper gi, ????????? Any ideas. If it was heart related why would it almost predominantely only happen when going to bed, and sometimes after eating?

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Emily Elizabeth Enthusiast
Emily Elizabeth
Posted

I wish I had an answer for you. Maybe try not eating 2 hours before going to bed and don't lie down 2 hours after you eat either. I know that really helps my mom (she has Barrett's Esophagus). This could help you feel better, but I wish I could help you figure out why you feel that way.

I recently made a new post called heart flip flop. Now i dont think it has anything to do with my heart. This is the sensation i get when i try to fall asleep: As i lay there getting tired and trying to fall asleep, i get this wave of fear feeling that starts behind my sternum (almost takes my breath away), then it moves down into my stomach and a big jolt (spasm) and its over until the next one. I tried to check my pulse while having these symptoms and it doesnt race or anything. I have been having a little more GERD lately and bloating, but i cant pinpoint what it is or where it is exactly coming from. Could it be Esophagael spasms, reflux, gas in the upper gi, ????????? Any ideas. If it was heart related why would it almost predominantely only happen when going to bed, and sometimes after eating?
GFhopeful Rookie
GFhopeful
Posted

don't know if it's exactly the same thing, but i would get these whole-body jerks that would happen most often before falling asleep, sometimes when i was awake, but usually right before sleep. sometimes a succession of them, like 4-5 in a row, and sometimes just a big one. anyway, doctors suggested maybe it was myoclonic jerks, and they are not dangerous. anyway, i am around 7 weeks into gluten-free diet and they are definitely becoming less often. i'm hoping just a recovery thing from Celiac symptoms. hope this helps as i'm not sure if it is exactly what you are describing or not and i don't even know if what i had was myoclonic jerks but the closest thing that docotors could give to label the weird sensation.

holdthegluten Rising Star
holdthegluten
Posted
  • Author
don't know if it's exactly the same thing, but i would get these whole-body jerks that would happen most often before falling asleep, sometimes when i was awake, but usually right before sleep. sometimes a succession of them, like 4-5 in a row, and sometimes just a big one. anyway, doctors suggested maybe it was myoclonic jerks, and they are not dangerous. anyway, i am around 7 weeks into gluten-free diet and they are definitely becoming less often. i'm hoping just a recovery thing from Celiac symptoms. hope this helps as i'm not sure if it is exactly what you are describing or not and i don't even know if what i had was myoclonic jerks but the closest thing that docotors could give to label the weird sensation.

I read about these earlier today and i thought it could be what it is..........i wish it would go away whatever it is!

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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